Blood Cancers & Disorders: Discussions | Page 13

Unfortunately I’m not a pilot 😂,you can say I’m an airline ground dispatcher pilot ,I don’t...

https://connect.mayoclinic.org/comment/1022506/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Thank you so much! My team up in Portland at OHSU is great and have informed...

https://connect.mayoclinic.org/comment/1324221/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 10 10:31am

Hi cindy e m, Thank you so much for posting. If you do not mind sharing,...

https://connect.mayoclinic.org/comment/1298131/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: May 6 10:59am

Hi chrisatwell I am 65 and was diagnosed with ET on January 10, 2025 which my...

https://connect.mayoclinic.org/comment/1267651/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 26 9:21pm

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

My blood disorder was initially diagnosed as essential thrombocythemia but was later changed to myelofibrosis. My...

https://connect.mayoclinic.org/comment/1091333/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

After my JAK2 was found my O/H ordered a bone marrow biopsy which could be done...

https://connect.mayoclinic.org/comment/1270695/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 8:22am

You have elevate number of thrombocytes, also known as platelets, due to a cancer gene mutation...

https://connect.mayoclinic.org/comment/980340/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I was started on HU in November to lower platelets, but have experienced extreme fatigue, shortness...

https://connect.mayoclinic.org/comment/840955/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Hi...I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was...

https://connect.mayoclinic.org/comment/132623/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2020

I was diagnosed with ET and put on 500 mg a day to lower platelets from...

https://connect.mayoclinic.org/comment/1081405/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

My wife just tested positive for JAK2 on Dec 15th, after blood work on Dec 8th...

https://connect.mayoclinic.org/comment/994115/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

@juniperjgin Thank you so much! Yes it's true that the extra long wait time is simply...

https://connect.mayoclinic.org/comment/1113190/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

Hi @1pearl, There are a number of different blood conditions and cancers with subsets to each....

https://connect.mayoclinic.org/comment/1348374/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: 9 hours ago

Good morning @ruthiek519 Well, of all the gifts you could have gotten for your 72nd b-day,...

https://connect.mayoclinic.org/comment/1312373/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25 9:16am

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890151/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Reply by @missypurtee THANK YOU FOR YOUR LOVE AND CONCERN; 1.Cold Induced urticaria, 2. Cold Anaphylaxis...

https://connect.mayoclinic.org/comment/804071/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2023

Hi @gigi05 You’re getting some great question suggestions from our helpful members! I can toss in...

https://connect.mayoclinic.org/comment/1272546/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 11:09am

Good questions. I’m not a medical doctor. My career was at the diagnostic end (lab). Therefore,...

https://connect.mayoclinic.org/comment/981500/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

The problem is skinney doesn't stop. My wife usually wears a size 8 and now finds...

https://connect.mayoclinic.org/comment/132652/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2020

Blood Cancers & Disorders Support Group