Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

854 total results

Comments (771)

Hi guys - I'm Bob, an over 4 year carrier of CLL. Yesterday I gave up...

https://connect.mayoclinic.org/comment/603866/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2021

Hello @coralbells1 As I'm not familiar with this disorder, I looked it up on Mayo Clinic's...

https://connect.mayoclinic.org/comment/324274/

Discussion: What causes Neutropenia?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2020

I'm 58 and was diagnosed with CLL about 6 months ago. The WBC and HGC counts...

https://connect.mayoclinic.org/comment/1112465/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

Wanting to know information concerning treatment with Brukinsa(zanabrutinib) versus Bendamustine and Rituxan for CLL What are...

https://connect.mayoclinic.org/comment/800065/

Discussion: Starting Bendamustine and Rituxin for Follicular Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Thankyou for your kind word's. I do visit the site daily just to see if there...

https://connect.mayoclinic.org/comment/1321150/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 5 8:23pm

I would love to hear from anyone who has CLL and if you are on osteomeds?...

https://connect.mayoclinic.org/comment/1088786/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Hi @pebbles I appreciate the update. Is the elevated alkaline phosphatase an indicator of CLL? I...

https://connect.mayoclinic.org/comment/238071/

Discussion: CLL - Referral to CLL Specialist

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2019

Hi @marytheresacll It’s been a couple of months since we spoke last. I think you were...

https://connect.mayoclinic.org/comment/1061227/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

I have the prothrombin mutation along with Factor V Leiden. I also have CLL and a...

https://connect.mayoclinic.org/comment/913820/

Discussion: Factor ll prothrombin mutation

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Hello @pebbles, I'd like to invite some members who have been diagnosed with CLL for some...

https://connect.mayoclinic.org/comment/238059/

Discussion: CLL - Referral to CLL Specialist

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2019

I’ve had a CLL for greater than 14 years without symptoms, but increasing WBC and decreasing...

https://connect.mayoclinic.org/comment/304662/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2020

I am 75 and just diagnosed my doctor said if you have to have cancer CLL...

https://connect.mayoclinic.org/comment/1354400/

Discussion: Newly Diagonised CLL in March

Support Group: Blood Cancers & Disorders

Posted: Jul 23 8:09am

Chronic lymphocytic leukemia (also called CLL) is a cancer of the blood and bone marrow. Read...

https://connect.mayoclinic.org/comment/866629/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 25, 2023

What made the doctor invesitgate? I have been diagnosed with CLL and SLL not really understanding...

https://connect.mayoclinic.org/comment/813968/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

I have been on Hydroxyurea for 5.5 years with virtually no side effects (other than my...

https://connect.mayoclinic.org/comment/947310/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2023

I just came on this thread, and just wanted to mention that I know of one...

https://connect.mayoclinic.org/comment/1327247/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 14 5:15pm

Hi @tina, It’s been quite a while since we’ve chatted. I hope ‘no news is good...

https://connect.mayoclinic.org/comment/1056387/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I have stage 0 CLL and my oncologist does not believe that is the cause of...

https://connect.mayoclinic.org/comment/1258363/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:03am

Hello Kellim. My understanding is that Mayo suggests 2 cups green tea per day based on...

https://connect.mayoclinic.org/comment/789997/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I don’t know what to think my blood came back with CLL Now my doc is...

https://connect.mayoclinic.org/comment/957315/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023