Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

706 total results

Comments (634)

Hello @dorphy82, Welcome to Mayo Connect…as you can see you’re not alone in your journey with...

https://connect.mayoclinic.org/comment/848438/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

I am fortunate as I am in stage 0 and may never need treatment due to...

https://connect.mayoclinic.org/comment/1094116/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

I have never heard of cll being a side effect of a vaccine. I was diagnosed...

https://connect.mayoclinic.org/comment/795869/

Discussion: Diagnosis of low grade lymphoma leukemia

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Please tell me what NETs are. I also have had CLL and MGUS for several years...

https://connect.mayoclinic.org/comment/908564/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Actually my labs were better this time. I did start taking magnesium. I have CLL. I...

https://connect.mayoclinic.org/comment/1175941/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2024

Barbara, I found another one like us on HeatlhUnlocked in the CLL forum. That forum has...

https://connect.mayoclinic.org/comment/211088/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2019

Hi @bobcat277, you've had a long and arduous road to get the medical care you need....

https://connect.mayoclinic.org/comment/978601/

Discussion: Diagnosed with small lymphocytic lymphoma (SLL)

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

I only had the typical injection site tenderness. To be fair, my cll is stage 0...

https://connect.mayoclinic.org/comment/1127247/

Discussion: CLL and immunization experience

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

Definitely check out cllsociety.org website, join one of their regional support groups (now done via Zoom),...

https://connect.mayoclinic.org/comment/794713/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

liver enzymes normal -bloodwork today wbc 34000-reached a high of 49000 3 years ago-7 years later-all...

https://connect.mayoclinic.org/comment/792047/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

I treat my CLL related itch with an antihistamine called cetrine which works brilliantly. For some...

https://connect.mayoclinic.org/comment/960431/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

I had a partial remission for less than 6 months following a couple rounds of rituxan...

https://connect.mayoclinic.org/comment/165755/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2018

Hi I'm currently on watch and wait for CLL. I have cirrhosis from hep C ,which...

https://connect.mayoclinic.org/comment/1105913/

Discussion: Bruising with CLL

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

12 years ago I had very bad painful burning, sweating with nausea. I actually could not...

https://connect.mayoclinic.org/comment/996579/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

If you have MyChart or something similar, the results may be posted in about a week...

https://connect.mayoclinic.org/comment/948883/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

I was diagnosed with CLL in December 2020 when my wbc was 65 and started using...

https://connect.mayoclinic.org/comment/801861/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2023

The information is very informative. I would like to connect with individuals or families dealing with...

https://connect.mayoclinic.org/comment/992764/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2024

Hi, I’m sorry to hear about your diagnosis. Do yo mean CLL? I also go to...

https://connect.mayoclinic.org/comment/751034/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

Welcome to Mayo Connect @janicegoe23 and @otto2023 Janice, I had to giggle a little with the...

https://connect.mayoclinic.org/comment/945829/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

@usernameca, if you are interested in learning what clinical trials are out there right now, you...

https://connect.mayoclinic.org/comment/165758/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2018