Blood Cancers & Disorders Support Group

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Comments (307)

CRISPR doesn't exist yet for treating MGUS/SMM/MM which can be associated with a number of genetic...

https://connect.mayoclinic.org/comment/1163333/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

I have multiple myeloma and amyloidosis. My treatment for this was 4 drugs - Daratumumab, Dexamethasone,...

https://connect.mayoclinic.org/comment/1511568/

Discussion: Al amyloidosis treatment after 6 years of remission

Support Group: Blood Cancers & Disorders

Posted: Feb 21 8:31pm

@evoxmas I just found out about this forum yesterday, so I am sure a lot has...

https://connect.mayoclinic.org/comment/1041695/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

I was diagnosed with system amyloidosis AL in March @ the Mayo Clinic in Rochester Minnesota....

https://connect.mayoclinic.org/comment/1069538/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

It is definitely more likely that one will die with MGUS as a benign and asymptomatic...

https://connect.mayoclinic.org/comment/1112835/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Thank you I know nothing about this disease I have been battling HCM since 2013 since...

https://connect.mayoclinic.org/comment/886104/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

What is the process for wanting to be evaluated at the Mayo Clinic? How do you...

https://connect.mayoclinic.org/comment/645619/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2021

Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...

https://connect.mayoclinic.org/comment/787456/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Connections between MGUS and Peripheral Neuropathy: Direct Antibody Activity**: The monoclonal protein (M protein) produced in...

https://connect.mayoclinic.org/comment/1163047/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

I have a co worker with MM Amyloidosis but his was with his lungs. He received...

https://connect.mayoclinic.org/comment/903269/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 27, 2023

Knowledge is power. You’ll find the doctors and the medical teams at Mayo are very approachable,...

https://connect.mayoclinic.org/comment/726744/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022

@nsnipes11 (Nan), I just had another thought. It's quite possible that your primary care doctor just...

https://connect.mayoclinic.org/comment/995165/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2024

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Hello Bob, so sorry to hear of your wife’s diagnosis. Hopefully her treatment can be performed...

https://connect.mayoclinic.org/comment/88336/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2019

Hi Susan, I’m sorry to hear you’re also not being heard, and I hope you have...

https://connect.mayoclinic.org/comment/883939/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

I do think there is more happening with some of us than the research or statistics...

https://connect.mayoclinic.org/comment/1061564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

Hi, Jill and Board. Back again Not much has changed with me. Except that I have...

https://connect.mayoclinic.org/comment/104706/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2017

My husband has been diagnosed with cardiac WTTR amyloidosis and AL confirmed by myocardium biopsies,which is...

https://connect.mayoclinic.org/comment/624591/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2021

Well, Dell, I always try to help. I am 77 (April), and I actually know very...

https://connect.mayoclinic.org/comment/163804/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2017

Hi Lori thank you for the welcome. I'm a 73 year old male. My journey started...

https://connect.mayoclinic.org/comment/782404/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

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