Blood Cancers & Disorders Support Group

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Comments (941)

@palepa Well, I deal with multiple health conditions, one of them being multiple myeloma. I go...

https://connect.mayoclinic.org/comment/1198168/

Discussion: Multiple Myeloma: Could fatigue and breathlessness be ME/CFS?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Howard, reply to your questions are too long to post here. Months of waiting and close...

https://connect.mayoclinic.org/comment/817049/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

@janetlen I realize the post you are referring to is 7 years old. Thank you for...

https://connect.mayoclinic.org/comment/1289597/

Discussion: Tests for blood cancer ...the bills!!

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

My father-in-law diagonsis is IgG kappa diagnosed in April 2018, On account of disease progression, change...

https://connect.mayoclinic.org/comment/917561/

Discussion: Relapsing myeloma when did your oncologist change your meds?

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

I was diagnosed with Sjogren’s over 15 years ago. Two and a half years ago I...

https://connect.mayoclinic.org/comment/1337283/

Discussion: Sjogren’s and MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

@sheryl71 I did find this from Sloan Ketterling. I'm not sure all the MGUS experts agree...

https://connect.mayoclinic.org/comment/1304569/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2025

Hello @packgb19. I'd like to add my welcome to @jcather's. You may also notice I moved...

https://connect.mayoclinic.org/comment/109742/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2019

MGUS " Monoclonal Gammopathy of Undetermined Significance, abnomal protein in blood.. My Oncologists tells me a...

https://connect.mayoclinic.org/comment/74535/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2012

I am sorry your father died of multiple myeloma. One of my friends died recently of...

https://connect.mayoclinic.org/comment/1149341/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hi Lori, I thought someone mentioned not having an SCT for multiple myeloma, which my husband...

https://connect.mayoclinic.org/comment/693843/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2022

Is he or she a multiple myeloma specialist? I really think that’s key. The information keeps...

https://connect.mayoclinic.org/comment/858320/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2023

@shescomeundone welcome to the blood disorder discussion group. I remember when I was diagnosed with MGUS...

https://connect.mayoclinic.org/comment/1248301/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

I was diagnosed in 2024 with Multiple Myeloma. First biopsy, to confirm dr's suspicions; second to...

https://connect.mayoclinic.org/comment/1334485/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2025

I would like to share on @ilse's behalf, an opportunity, for those who are able, to...

https://connect.mayoclinic.org/comment/209504/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2018

I'm 70 and have had MGUS and polyneuropathy for 8 years, still asymptomatic. My kappa level...

https://connect.mayoclinic.org/comment/1189012/

Discussion: High Kappa Lamda ratio: What can affect the test?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2024

My hematologist tells me MGUS is not a disease and does not require treatment. She says...

https://connect.mayoclinic.org/comment/74586/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2019

@hgearhart I’m so sorry you’ve had so much to deal with. As a MGUS patient I...

https://connect.mayoclinic.org/comment/1009396/

Discussion: Anyone else been diagnosed with CVID and MGUS and have multiple cancer

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

@googi Thanks for the context. As you have been told and have read, the likelihood of...

https://connect.mayoclinic.org/comment/1372181/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

Hi @tod56 I just stuck my nose into the conversation to welcome you to Mayo Connect...

https://connect.mayoclinic.org/comment/1561906/

Discussion: Do you exercise daily while in multiple myeloma treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28 1:52pm

I was diagnosed with MGUS over ten years ago. I meet with a hematologist and oncologist...

https://connect.mayoclinic.org/comment/830721/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

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