Blood Cancers & Disorders Support Group

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Comments (867)

I would like to share on @ilse's behalf, an opportunity, for those who are able, to...

https://connect.mayoclinic.org/comment/209504/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2018

@hgearhart I’m so sorry you’ve had so much to deal with. As a MGUS patient I...

https://connect.mayoclinic.org/comment/1009396/

Discussion: Anyone else been diagnosed with CVID and MGUS and have multiple cancer

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

@googi Thanks for the context. As you have been told and have read, the likelihood of...

https://connect.mayoclinic.org/comment/1372181/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

I was diagnosed with MGUS over ten years ago. I meet with a hematologist and oncologist...

https://connect.mayoclinic.org/comment/830721/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

I am new here but I am going though clinical study for smoldering multiple myeloma. For....

https://connect.mayoclinic.org/comment/109779/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2020

There is a study: A Study Comparing a Plant-Based Diet With Supplements and Placebo in People...

https://connect.mayoclinic.org/comment/1299310/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2025

@mikxtr lab results for MGUS, Smoldering Multiple Myeloma or Multiple Myeloma can be complex and you...

https://connect.mayoclinic.org/comment/1406311/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2025

I have smoldering multiple myeloma since mine was more aggressive then average I was able go...

https://connect.mayoclinic.org/comment/325696/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2020

I found out this year that i have MGUS. I am scared and was told to...

https://connect.mayoclinic.org/comment/732035/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2022

@carolesg It is certainly an interesting question. When I was diagnosed in 2021, I read about...

https://connect.mayoclinic.org/comment/1106554/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2024

I had a sugery on April 26 2023 and 4 days later i had a DVT...

https://connect.mayoclinic.org/comment/1337805/

Discussion: Lower leg blood clot. Occlusion DVT thrombotic

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

Hi. I have been using a Philips System One CPAP for about 12 years and just...

https://connect.mayoclinic.org/comment/660227/

Discussion: CPAP (Phillips recall) and Cancer

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2021

Are there other cancers associated with the roundup exposure issue? My wife was just diagnosed with...

https://connect.mayoclinic.org/comment/291013/

Discussion: Hodgkin's & non-Hodgkin's Lymphoma: Is it familial?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2020

Hello @carolynaune. Here is a discussion I think you may enjoy looking at, https://connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa/. It has...

https://connect.mayoclinic.org/comment/196640/

Discussion: Support groups for lymphoma patients

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2018

Hello, @colleenyoung invited me to the party. My husband was diagnosed in 2010 with multiple myeloma....

https://connect.mayoclinic.org/comment/707400/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2022

Welcome, @slembo1. You may wish to check out the discussions in this group: - Bone Marrow...

https://connect.mayoclinic.org/comment/1256789/

Discussion: Older than most in the MM group. 79 yrs and recently diagnosed.

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

@ripley If possible, get a referral to a hematologist for full testing. As you might know,...

https://connect.mayoclinic.org/comment/778950/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

cobb8 I was diagnosed with MDS. I had a bone marrow biopsy which showed any signs...

https://connect.mayoclinic.org/comment/1089425/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 18, 2024

@gad1 Welcome to Mayo Clinic Connect. Having a complication of extramedullary multiple myeloma takes special care...

https://connect.mayoclinic.org/comment/1014511/

Discussion: Que nuevas terapias se aplican actualmente? New therapies for myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

I’ve had it for somewhere between 10-15 years. I see a hematologist and oncologist once a...

https://connect.mayoclinic.org/comment/861025/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023