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Public Support Group 269 total results
Comments (260)
Hi @sckf Unfortunately, leg ulcers can be a potential side effect from HU for some longer...
https://connect.mayoclinic.org/comment/1592886/
Good morning, @treeore. I hope you’re able to catch a break with the cost of Besremi....
https://connect.mayoclinic.org/comment/912671/
Thank you Ms. Young, As you may know I am new to this website. My Wife...
https://connect.mayoclinic.org/comment/911895/
Your transition from ET to PV--was that new diagnosis from symptoms, blood tests or bone marrow...
https://connect.mayoclinic.org/comment/1324133/
@vivoconte I was able to raise two kids have a marriage go to nursing school get...
https://connect.mayoclinic.org/comment/1414146/
Yes, I know I should not speak off the cuff about clotting, but as I've had...
https://connect.mayoclinic.org/comment/866191/
Hi @jeanette1954 A diagnosis of Polycythemia Vera (PV) usually indicates that the person has an underlying...
https://connect.mayoclinic.org/comment/1494793/
Been on HU x 6 years. Also ET-CALR x 17 years. I'm 70 now. Highest my...
https://connect.mayoclinic.org/comment/1351495/
Lori, You have a good memory! My medical leash is longer, perhaps because the new doctor...
https://connect.mayoclinic.org/comment/912828/
Scary is as scary does, and, as noted in comments above, the longer a drug is...
https://connect.mayoclinic.org/comment/1243576/
Aloha MW2023.. yes. found you!. I had a trend of increased WBC, HCT and within a...
https://connect.mayoclinic.org/comment/1330240/
Anna, I had year fluctuations of platelet levels, all over normal, for almost 30 years before...
https://connect.mayoclinic.org/comment/826050/
I don't think experts understand or can entirely explain MPN disease progression. Nobody can predict who...
https://connect.mayoclinic.org/comment/1349313/
My health is a bit like that of Lourdene's--65 years old, long time high platelets but...
https://connect.mayoclinic.org/comment/941362/
Hi @treeore Love the idea of your new toy for summer! You’ll have a blast out...
https://connect.mayoclinic.org/comment/866050/
@vivoconte It amazes me far reaching this disease can occur. I am glad you connected with...
https://connect.mayoclinic.org/comment/1414942/
@sdcgcarroll Sadly, you will not find a comprehensive list of symptoms and side effects because they...
https://connect.mayoclinic.org/comment/1538563/
Lots of good comments here. Just remember that everyone had a slightly different journey. I see...
https://connect.mayoclinic.org/comment/1541970/
@dragonflylynda I keep masks in my purse in case I encounter a crowd. I avoid theaters...
https://connect.mayoclinic.org/comment/1470138/
Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...
https://connect.mayoclinic.org/comment/912090/
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