Blood Cancers & Disorders Support Group

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Comments (233)

Linda, I was diagnosed with WM in 2014. I posted recently and included my connection with...

https://connect.mayoclinic.org/comment/663061/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's...

https://connect.mayoclinic.org/comment/284527/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2019

I have been taking Brukinsa for 3 months as treatment for Waldenstrom's Macroglobulinemia and noticed some...

https://connect.mayoclinic.org/comment/1149136/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hello everyone. I was diagnosed with WM in February of 2023 at the VA Medical Center...

https://connect.mayoclinic.org/comment/1074718/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Welcome, @cpu. I moved your question about Waldenstrom macroglobulinemia (WM) to this existing discussion: - Waldenstrom...

https://connect.mayoclinic.org/comment/1070292/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

Hi there, I was diagnosed with MGUS back in 2017 after decades of dealing with polyneuropathy...

https://connect.mayoclinic.org/comment/1062642/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

I was diagnosed with Waldenström's while a neurologist at a university teaching hospital who was looking...

https://connect.mayoclinic.org/comment/1026664/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Welcome to Connect, @jessabell I see you’re newly diagnosed with WM. We have quite a few...

https://connect.mayoclinic.org/comment/994283/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Hi my name is William Kelly I don’t have any answers but I can tell you...

https://connect.mayoclinic.org/comment/988380/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2023

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

I am sorry to hear about your husband's diagnosis and wish him the best. If you...

https://connect.mayoclinic.org/comment/975036/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

dazlin, I have had MGUS for two years now (also have Waldenström's non-Hodgkin's lymphoma) but my...

https://connect.mayoclinic.org/comment/974476/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

Hi @fyrizonly, I can understand the unsettling feeling of not knowing what to expect, especially when...

https://connect.mayoclinic.org/comment/970011/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

I was diagnosed with Waldenstrom’s in 2010. I have not had any disabilities from it that...

https://connect.mayoclinic.org/comment/963614/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Welcome to the club, @badnewsforme We just had another new member join the WM group yesterday....

https://connect.mayoclinic.org/comment/912217/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Hi Patrick, (@drwill) Please accept my delayed welcome to Connect. I see you were recently diagnosed...

https://connect.mayoclinic.org/comment/890524/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Hi @psue4, welcome. I moved your post to this existing discussion: - Waldenstrom Macroglobulinemia with MYD88-wild...

https://connect.mayoclinic.org/comment/851526/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Has anyone been diagnosed with Myd88/ Waldenstrom Macroglobulinemia? (Sp x) If so, could you offer how...

https://connect.mayoclinic.org/comment/850802/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023

I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering...

https://connect.mayoclinic.org/comment/847350/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

Thank you for the link. I was diagnosed in early 2014 with Stage IVA lymphoplasmacytic lymphoma/Waldenstrom's...

https://connect.mayoclinic.org/comment/70601/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2017