Blood Cancers & Disorders Support Group

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Comments (254)

Not being a medical professional I am pretty much as confused as you. I do know...

https://connect.mayoclinic.org/comment/1267919/

Discussion: Dr wants to add immunoglobulins

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2025

Hi @ranchgal4sure! Ok, this is a really unique name and I’d love to hear the story...

https://connect.mayoclinic.org/comment/1247521/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2025

Any heart issues? They just found leaky valves that maybe caused by Waldenstroms or neds

https://connect.mayoclinic.org/comment/1217722/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

Just received second rituxin infusion for Waldenstroms and non hodgkins.Side effects much worse than first. Been...

https://connect.mayoclinic.org/comment/1208320/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2025

Hi there, I have Waldenstroms, or what is a slow growing form of non Hodgkins B...

https://connect.mayoclinic.org/comment/1365273/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

We have an update, although more diagnostic have to be run to fully confirm things, followed...

https://connect.mayoclinic.org/comment/1268759/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

Me again.Waldenstroms for over a year with Imbruvica and Ruxience. IGM coming down way too slowly...

https://connect.mayoclinic.org/comment/1264059/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

I posted question about.Having Waldenstroms diagnosed a year ago. for a year and getting rutuxin infusions...

https://connect.mayoclinic.org/comment/1256953/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

Waldenströms for over a yearly y. Been on rituxan and Imbruvica entire time. What can I...

https://connect.mayoclinic.org/comment/1256186/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

My diagnosis is still Waldenstrom’s. Going for 4 infusion and still on oral meds.hair falling out...

https://connect.mayoclinic.org/comment/1244500/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

When I was under the diagnosis for Waldenstrom I had similar issues. It was extremely painful...

https://connect.mayoclinic.org/comment/1236293/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

Hi @katytx, if you use the group search function, you will find many discussions and members...

https://connect.mayoclinic.org/comment/1231574/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

Hi newwaldenguy. Yes, I recently found I have Waldenstrom and 2 of the 3 doctors I...

https://connect.mayoclinic.org/comment/1231022/

Discussion: Anyone have zanubrutinib/Brukinsa denied?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

I am sorry to read that your levels indicate the need for plasmapheresis due to hyperviscosity...

https://connect.mayoclinic.org/comment/1201340/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

A year ago he told me that he didn’t think the MGUS would progress to Waldenstrom’s...

https://connect.mayoclinic.org/comment/1179842/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

I have been taking Brukinsa for 3 months as treatment for Waldenstrom's Macroglobulinemia and noticed some...

https://connect.mayoclinic.org/comment/1149136/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hello everyone. I was diagnosed with WM in February of 2023 at the VA Medical Center...

https://connect.mayoclinic.org/comment/1074718/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Welcome, @cpu. I moved your question about Waldenstrom macroglobulinemia (WM) to this existing discussion: - Waldenstrom...

https://connect.mayoclinic.org/comment/1070292/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

Hi there, I was diagnosed with MGUS back in 2017 after decades of dealing with polyneuropathy...

https://connect.mayoclinic.org/comment/1062642/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

I was recently diagnosed with a rare blood cancer called Waldenstrom's Macroglobulinemia (aka: Lymphoplasmacytic Lymphoma). I've...

https://connect.mayoclinic.org/comment/1062621/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024