Blood Cancers & Disorders Support Group

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Comments (254)

I have Waldenstrom's Macroglobulinemia. The 1st biopsy was for diagnosing, 2nd was to see what progression...

https://connect.mayoclinic.org/comment/1139604/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2024

Good morning @bigbob5461, so nice to meet you! I am like you in that my mind...

https://connect.mayoclinic.org/comment/1120447/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

I am new here and recently diagnosed with Waldenstrom Macroglobulinamia. I would like to correspond with...

https://connect.mayoclinic.org/comment/70607/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia....

https://connect.mayoclinic.org/comment/70600/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2017

Hi there, I have Waldenstroms, or what is a slow growing form of non Hodgkins B...

https://connect.mayoclinic.org/comment/1365273/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

We have an update, although more diagnostic have to be run to fully confirm things, followed...

https://connect.mayoclinic.org/comment/1268759/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

Me again.Waldenstroms for over a year with Imbruvica and Ruxience. IGM coming down way too slowly...

https://connect.mayoclinic.org/comment/1264059/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

I posted question about.Having Waldenstroms diagnosed a year ago. for a year and getting rutuxin infusions...

https://connect.mayoclinic.org/comment/1256953/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

Waldenströms for over a yearly y. Been on rituxan and Imbruvica entire time. What can I...

https://connect.mayoclinic.org/comment/1256186/

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

My diagnosis is still Waldenstrom’s. Going for 4 infusion and still on oral meds.hair falling out...

https://connect.mayoclinic.org/comment/1244500/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

When I was under the diagnosis for Waldenstrom I had similar issues. It was extremely painful...

https://connect.mayoclinic.org/comment/1236293/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2025

Hi @katytx, if you use the group search function, you will find many discussions and members...

https://connect.mayoclinic.org/comment/1231574/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

Hi newwaldenguy. Yes, I recently found I have Waldenstrom and 2 of the 3 doctors I...

https://connect.mayoclinic.org/comment/1231022/

Discussion: Anyone have zanubrutinib/Brukinsa denied?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

I am sorry to read that your levels indicate the need for plasmapheresis due to hyperviscosity...

https://connect.mayoclinic.org/comment/1201340/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

A year ago he told me that he didn’t think the MGUS would progress to Waldenstrom’s...

https://connect.mayoclinic.org/comment/1179842/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

I have been taking Brukinsa for 3 months as treatment for Waldenstrom's Macroglobulinemia and noticed some...

https://connect.mayoclinic.org/comment/1149136/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hello everyone. I was diagnosed with WM in February of 2023 at the VA Medical Center...

https://connect.mayoclinic.org/comment/1074718/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Welcome, @cpu. I moved your question about Waldenstrom macroglobulinemia (WM) to this existing discussion: - Waldenstrom...

https://connect.mayoclinic.org/comment/1070292/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

Hi there, I was diagnosed with MGUS back in 2017 after decades of dealing with polyneuropathy...

https://connect.mayoclinic.org/comment/1062642/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

I was recently diagnosed with a rare blood cancer called Waldenstrom's Macroglobulinemia (aka: Lymphoplasmacytic Lymphoma). I've...

https://connect.mayoclinic.org/comment/1062621/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024