Blood Cancers & Disorders Support Group

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Comments (909)

@sandramgus Well, one of the things that my hematologist/oncologist says to me every time I see...

https://connect.mayoclinic.org/comment/1114061/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

I was diagnosed with stage 3 myeloma and had high paraprotein and much bone involvement. That...

https://connect.mayoclinic.org/comment/641078/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021

Put these results in chatGPT. I have smoldering multiple myeloma & it is a wonderful tool...

https://connect.mayoclinic.org/comment/1434530/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

My red blood cell count is 3.75. I have MGUS- precursor multiple myeloma. I do not...

https://connect.mayoclinic.org/comment/74539/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2012

Hi Mitten, you're asking good questions and have great experts on your team to help monitor...

https://connect.mayoclinic.org/comment/752913/

Discussion: Hypocellular bone marrow: What do I need to know?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2022

When filling out a health questionnaire, you will now need to check Yes. Multiple myeloma is...

https://connect.mayoclinic.org/comment/746801/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Hi @claydavis, I moved you question to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy...

https://connect.mayoclinic.org/comment/1449735/

Discussion: Anyone have experience with CAR-T therapy for multiple myeloma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 29, 2025

@mehz4802 - welcome to Connect. In addition to @johnwburns @caretothepeople and @jan52241, I'd like to bring...

https://connect.mayoclinic.org/comment/109626/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2016

Mgus itself is benign condition. There is no treatment for it. Viruses stop gap are vaccines...

https://connect.mayoclinic.org/comment/1245094/

Discussion: How can I support my immune system with MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

Hi @gerald22, Thank you for sharing your positive account with successful cataract surgery after having treatments...

https://connect.mayoclinic.org/comment/1456772/

Discussion: Anyone had cataract surgery living with MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2025

@palepa Well, I deal with multiple health conditions, one of them being multiple myeloma. I go...

https://connect.mayoclinic.org/comment/1198168/

Discussion: Multiple Myeloma: Could fatigue and breathlessness be ME/CFS?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Howard, reply to your questions are too long to post here. Months of waiting and close...

https://connect.mayoclinic.org/comment/817049/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

@janetlen I realize the post you are referring to is 7 years old. Thank you for...

https://connect.mayoclinic.org/comment/1289597/

Discussion: Tests for blood cancer ...the bills!!

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

My father-in-law diagonsis is IgG kappa diagnosed in April 2018, On account of disease progression, change...

https://connect.mayoclinic.org/comment/917561/

Discussion: Relapsing myeloma when did your oncologist change your meds?

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

I was diagnosed with Sjogren’s over 15 years ago. Two and a half years ago I...

https://connect.mayoclinic.org/comment/1337283/

Discussion: Sjogren’s and MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

@sheryl71 I did find this from Sloan Ketterling. I'm not sure all the MGUS experts agree...

https://connect.mayoclinic.org/comment/1304569/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2025

Hello @packgb19. I'd like to add my welcome to @jcather's. You may also notice I moved...

https://connect.mayoclinic.org/comment/109742/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2019

MGUS " Monoclonal Gammopathy of Undetermined Significance, abnomal protein in blood.. My Oncologists tells me a...

https://connect.mayoclinic.org/comment/74535/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2012

I am sorry your father died of multiple myeloma. One of my friends died recently of...

https://connect.mayoclinic.org/comment/1149341/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

@carlabaz I have been under treatment for multiple myeloma since August 2021. I am not a...

https://connect.mayoclinic.org/comment/1515935/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 27 2:28pm