Blood Cancers & Disorders Support Group

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Comments (941)

@jadams4197 Welcome to Mayo Clinic Connect! @auntieoakley is right about there being so many things to...

https://connect.mayoclinic.org/comment/1408228/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

Hi Debra @oldladydebra1 , welcome to the forum. There are many people living with MGUS here...

https://connect.mayoclinic.org/comment/992118/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

@genedoms I would add a couple that are specific to MGUS. Remember, MGUS is not cancer....

https://connect.mayoclinic.org/comment/1309315/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2025

Seeing hematologist in October 2025 with 2nd blood test since diagnosis for Smoldering Multiple Myeloma (6...

https://connect.mayoclinic.org/comment/1301671/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Hi Ginger, Unfortunately the various clinical tests eventually confirmed the criteria for multiple myeloma, not one...

https://connect.mayoclinic.org/comment/1017645/

Discussion: Has anyone been diagnosed with both AML and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

You are young for the diagnosis. I was 55 when diagnosed with IgA. I am being...

https://connect.mayoclinic.org/comment/1164614/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

Hello @auntieoakley, I'd like to add my welcome to @gingerw's. I also second her comment that...

https://connect.mayoclinic.org/comment/109717/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2019

Hello, Rosemary 73, I am so sorry for the loss of your son. All kindness to...

https://connect.mayoclinic.org/comment/1062432/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

@sandramgus Well, one of the things that my hematologist/oncologist says to me every time I see...

https://connect.mayoclinic.org/comment/1114061/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

Hi Jeff, Since this is a specific clinical trial for patients with relapsed multiple myeloma, it...

https://connect.mayoclinic.org/comment/1565588/

Discussion: Is there anyone else in the Clinical Trial Sim0500 “Trispecific”

Support Group: Blood Cancers & Disorders

Posted: May 3 12:42pm

I was diagnosed with stage 3 myeloma and had high paraprotein and much bone involvement. That...

https://connect.mayoclinic.org/comment/641078/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021

Put these results in chatGPT. I have smoldering multiple myeloma & it is a wonderful tool...

https://connect.mayoclinic.org/comment/1434530/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

My red blood cell count is 3.75. I have MGUS- precursor multiple myeloma. I do not...

https://connect.mayoclinic.org/comment/74539/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2012

Hi Mitten, you're asking good questions and have great experts on your team to help monitor...

https://connect.mayoclinic.org/comment/752913/

Discussion: Hypocellular bone marrow: What do I need to know?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2022

@kayabbott UAMS is my “locus of control” for almost all my medical specialties. Sadly, I could...

https://connect.mayoclinic.org/comment/1570632/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 9 12:47pm

Hi @claydavis, I moved you question to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy...

https://connect.mayoclinic.org/comment/1449735/

Discussion: Anyone have experience with CAR-T therapy for multiple myeloma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 29, 2025

When filling out a health questionnaire, you will now need to check Yes. Multiple myeloma is...

https://connect.mayoclinic.org/comment/746801/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

@mehz4802 - welcome to Connect. In addition to @johnwburns @caretothepeople and @jan52241, I'd like to bring...

https://connect.mayoclinic.org/comment/109626/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2016

Mgus itself is benign condition. There is no treatment for it. Viruses stop gap are vaccines...

https://connect.mayoclinic.org/comment/1245094/

Discussion: How can I support my immune system with MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

Hi @gerald22, Thank you for sharing your positive account with successful cataract surgery after having treatments...

https://connect.mayoclinic.org/comment/1456772/

Discussion: Anyone had cataract surgery living with MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2025

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