Blood Cancers & Disorders Support Group

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Comments (303)

I have had essential thrombocythemia since 2022. My oncologist put me on hydroxyurea 1000 mg a...

https://connect.mayoclinic.org/comment/1498573/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 9:07am

Hi Justin. Unfortunately, there are few responses regarding my questions about JAK2, Essential Thrombocythemia and Waldromstrom's...

https://connect.mayoclinic.org/comment/284527/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2019

Hi @divaterry, Well, dare I say welcome? I’m sure the news of having ET or essential...

https://connect.mayoclinic.org/comment/1548555/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 12 9:24am

Welcome, Lisa! Everyone’s story will be slightly different with a few similarities. We all have a...

https://connect.mayoclinic.org/comment/1162559/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Hi. I have Essential Thrombocythemia (high platelet count) without the JAK2 mutation. I've been under the...

https://connect.mayoclinic.org/comment/1569271/

Discussion: Lowering platelet level with food

Support Group: Blood Cancers & Disorders

Posted: May 7 6:07pm

Hi @cmercer50 So glad you jumped into the ET discussion. Being able to connect with other...

https://connect.mayoclinic.org/comment/1448719/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

Hi Jean, hope you had a fabulous christmas. Saw my Thyroid specialist, who has recommended that...

https://connect.mayoclinic.org/comment/1467731/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2025

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

I am not a farmer but I have ET (essential thrombocythemia). I have had it for...

https://connect.mayoclinic.org/comment/913030/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Yes, and Yes I am doing the 500 mg twice daily (one in AM one in...

https://connect.mayoclinic.org/comment/792898/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Hi Wiggins32, I have had slightly low iron and now take iron supplements...Many of the symptoms...

https://connect.mayoclinic.org/comment/826011/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

Hi @dewz13 It’s not unusual for blood numbers to fluctuate when we receive vaccines. Most people...

https://connect.mayoclinic.org/comment/1549508/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 13 9:42am

Hi @marthajones. Having Essential Thrombocythemia and being on on Hydroxyurea, your immune system won’t be as...

https://connect.mayoclinic.org/comment/782048/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

I've had essential thrombocythemia symptoms for 15 years now. I'm 70. To the best of my...

https://connect.mayoclinic.org/comment/929592/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

It is a big decision to start on hydroxyurea and all of us have a different...

https://connect.mayoclinic.org/comment/780799/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022

@loribmt thank you so much for your kind words! Made me tear up....because you are so...

https://connect.mayoclinic.org/comment/757007/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Hi everyone. I am a 68 year old woman, physically active with controlled asthma. I just...

https://connect.mayoclinic.org/comment/887042/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

"At 82 yes I would like to keep other parts of me as healthy as possible....

https://connect.mayoclinic.org/comment/783143/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

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