Blood Cancers & Disorders: Discussions | Page 11

Interesting you mention this. Yes yes and yes. With it radiating to my knee conceded me...

https://connect.mayoclinic.org/comment/1341397/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 5 8:03am

I took my first injection of Besremi last week. My doctor's office is working on setting...

https://connect.mayoclinic.org/comment/1234766/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 11 7:21pm

I see my additional messages may not have reached you. Go to pvreporter . com. There...

https://connect.mayoclinic.org/comment/1259837/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 7:03pm

Hi @dax1million. Try not to be too discouraged after yesterday’s appointment. I know, that’s easier said...

https://connect.mayoclinic.org/comment/1252125/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 6 8:42pm

Hello PV friend ! I have been on JAKAFI FOR 10 months took 20 milligrams a...

https://connect.mayoclinic.org/comment/1310325/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 22 11:53am

@susanvij I'm so sorry to hear of your brother's diagnosis. I understand that this is a...

https://connect.mayoclinic.org/comment/50509/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2017

When I was diagnosed with Myelofibrosis back in 03/2024 my Hematologist placed me on Danazol. I...

https://connect.mayoclinic.org/comment/1132106/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

Hi katgob, I'm certainly not one to diagnose your situation. But, I will tell you that...

https://connect.mayoclinic.org/comment/986132/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 24, 2023

I think steveduke is saying that the people on this forum are not doctors and you...

https://connect.mayoclinic.org/comment/1384972/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 2 11:09am

Essential thrombocythemia is an example of a myeloproliferative neoplasm. These are blood cancers that happen when...

https://connect.mayoclinic.org/comment/918211/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Hi @doreen78 and welcome to Connect. I think I’m as confused as you are about your...

https://connect.mayoclinic.org/comment/1291816/

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28 9:26am

Saw haematologist all good. I still have essential thrombocythemia. Tests show slight scaring of the bone...

https://connect.mayoclinic.org/comment/1206674/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 10:08am

Hi Nancy @1nan, I have not seen these cells referenced in my lab reports but I...

https://connect.mayoclinic.org/comment/313989/

Discussion: Tear Drop Cells and Ovalocytes: Anyone had these in lab reports?

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2020

Hi, I’ve lived a relatively good life after being diagnosed with ET at 20 and I’m...

https://connect.mayoclinic.org/comment/958246/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

Lori, I wanted to update you on my husbands progress of his myelofibrosis. He finished his...

https://connect.mayoclinic.org/comment/1300132/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 8 11:38pm

Just curious if your doc has suggested trying something other than hydroxyurea? Dad also had ET,...

https://connect.mayoclinic.org/comment/1030898/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...

https://connect.mayoclinic.org/comment/901889/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

Hi, I think it is a good idea to have a Bone Marrow Biopsy before treatment...

https://connect.mayoclinic.org/comment/1270976/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 12:53pm

Hello friends! I have PV NOW PROGRESSED TO MF MYELOFIBROSIS ! Hot humid weather is brutal...

https://connect.mayoclinic.org/comment/1336577/

Discussion: Hot weather & Chemo/Treatments

Support Group: Blood Cancers & Disorders

Posted: Jun 27 3:44pm

et1055, I found this comment from Colleen, one of our monitors, on another thread. I myself...

https://connect.mayoclinic.org/comment/1168338/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Blood Cancers & Disorders Support Group