Blood Cancers & Disorders: Discussions | Page 1

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...

https://connect.mayoclinic.org/comment/929302/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

What do you mean they can't do much? That doesn't sound good at all! You need...

https://connect.mayoclinic.org/comment/1102499/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9 5:54pm

Has anyone been prescribed a pill DONOZOL to be taken twice per day for Mylofibrosis? If...

https://connect.mayoclinic.org/comment/1131840/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 27 3:31pm

What dietary changes did you make to help with myleofibrosis?

https://connect.mayoclinic.org/comment/854017/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Wow, I am glad I kept checking till I saw all these reports on mylefibrosis. I...

https://connect.mayoclinic.org/comment/894079/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2023

Hi @wellness3070, Unfortunately, research shows that muscle weakness can be one of the side effects; however,...

https://connect.mayoclinic.org/comment/132605/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Oh thank you so much🙏. Wow 13 biopsies,What a great fierce fighter you are !❤️ Yeah...

https://connect.mayoclinic.org/comment/1022596/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25 5:42pm

I was recently diagnosed with Mylofibrosis also. My hematologist has recommended that I have a Stem...

https://connect.mayoclinic.org/comment/1103286/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 10 9:28pm

I was treated for high platelets for years,About three years I was diagnosed with myelofibroma by...

https://connect.mayoclinic.org/comment/132601/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2017

Some symptoms have included fatigue, suseptability to infections, minor bruising , anemia, and frequent pre cancer...

https://connect.mayoclinic.org/comment/50534/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were...

https://connect.mayoclinic.org/comment/795740/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

I just went from blood work monthly to every three months. I think either God is...

https://connect.mayoclinic.org/comment/986088/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

I worked for 40 + years in Cytogenetics. In our field chromosomes are listed as “normal”...

https://connect.mayoclinic.org/comment/1074264/

Discussion: Chromosomes positive

Support Group: Blood Cancers & Disorders

Posted: May 25 8:31am

I took Vonjo for my enlarged spleen which was seconday to my myelodysplasia with myeloftbrosis. Really...

https://connect.mayoclinic.org/comment/1082842/

Discussion: My mother diagnosed with Myelofibrosis: Episodes of abdominal pain

Support Group: Blood Cancers & Disorders

Posted: Jun 8 7:05am

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Jul 4 8:07am

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30 2:47pm

And complaining? Lol. Seriously, it Could be an enlarged spleen which sits above your stomach making...

https://connect.mayoclinic.org/comment/132651/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2020

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

When was his last blood test? Red platlet count ? White cell count? Where is pain...

https://connect.mayoclinic.org/comment/50521/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017

Blood Cancers & Disorders Support Group