Blood Cancers & Disorders Support Group

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Comments (1,023)

I'm right there with you. Seeing my hematologist on the 8th. I've had low platelets, and...

https://connect.mayoclinic.org/comment/1381943/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2025

jschellhaas. I had MDS. Mu diagnosis last October 2023. The first thing my hematologist did was...

https://connect.mayoclinic.org/comment/1198034/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

@loribmt I’m a 84 year old male. High grade MDS/low grade AML. I’ve selected supportive care...

https://connect.mayoclinic.org/comment/1518735/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 3 2:01pm

Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I...

https://connect.mayoclinic.org/comment/888221/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Two years. The factors in my MDS are probably very different than yours, so do not...

https://connect.mayoclinic.org/comment/1365591/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

usmcmom- Every other week for injections? You are on watch and wait with the MDS? Is...

https://connect.mayoclinic.org/comment/1244141/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

I agree with fortunaeoldguy, as I was reminded that my bone marrow is the key to...

https://connect.mayoclinic.org/comment/1085790/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

my wife has been diagnosed with mds and has two rounds of Vidazia. What is the...

https://connect.mayoclinic.org/comment/924396/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

So I have MDs now on chemo drugs to prepare me for SCT hopefully it will...

https://connect.mayoclinic.org/comment/879865/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Have minor mds but getting tranfusions every 2weeks now have high fertin which dr wants me...

https://connect.mayoclinic.org/comment/597339/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2021

Lori, did you see the report on Robin Roberts GMA on MDS. I didn’t realize she...

https://connect.mayoclinic.org/comment/815302/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Lori, Thanks for responding. I was diagnosed with Parkinson's in 2011. My platelets have dropped from...

https://connect.mayoclinic.org/comment/1248303/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 1, 2025

Hi @cindyborch and welcome. To help you connect easily with other members who have experience with...

https://connect.mayoclinic.org/comment/1283451/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

I'm interested in this topic, because I have MDS. I have been receiving weekly injections of...

https://connect.mayoclinic.org/comment/871577/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2023

Yes. MDS. I have transfusions every 6 weeks. I noticed my RBC count went down when...

https://connect.mayoclinic.org/comment/683647/

Discussion: Does estrogen therapy increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2022

Hi Howard, I’m going to answer this question about SCT in your similar post with the...

https://connect.mayoclinic.org/comment/879911/

Discussion: How does someone “feel” with untreated AML?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

@loribmt I wasn't aware that there are several different types of MDS. She may have told...

https://connect.mayoclinic.org/comment/1524508/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 9:27am

I have MDS/MPN-RS-T which is an extremely rare overlap disease. I have multiple gene mutations on...

https://connect.mayoclinic.org/comment/855780/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Good morning. I just wanted to check in with you to see how your husband is...

https://connect.mayoclinic.org/comment/1067700/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2024

Awaiting bone marrow biopsy for low cbc an low platelets so diagnosis appears to be mds...

https://connect.mayoclinic.org/comment/806870/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023