Blood Cancers & Disorders Support Group

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Comments (841)

Like you my doc has told me stem cell was not an option for my MDs...

https://connect.mayoclinic.org/comment/823332/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

I have MDS and am experiencing cognitive decline. Still working a very stressful job and wish...

https://connect.mayoclinic.org/comment/870090/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

That’s excellent news! There have been so many positive changes in the advancement for treating MDS...

https://connect.mayoclinic.org/comment/1250925/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5 10:32am

I am on my 11th cycle of viadaza and ventoclox with astounding results. Hemoglobin has lingered...

https://connect.mayoclinic.org/comment/1171184/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024

Same thing happened to me. I was diagnosed with low risk MDS in 2017. My platelets...

https://connect.mayoclinic.org/comment/909755/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

I was on Revlimid for MDS and it about did me in. I was so weak...

https://connect.mayoclinic.org/comment/794489/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

Hi @njjwjj Welcome to Connect. It’s very encouraging to hear that the Vidaza (Azacitidine) treatment you’re...

https://connect.mayoclinic.org/comment/952899/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

Thank you so much for taking the time to share your experience with chelation for your...

https://connect.mayoclinic.org/comment/1397986/

Discussion: Chelation therapy

Support Group: Blood Cancers & Disorders

Posted: 4 hours ago

Hi Holly. Yes, there are different types of MDS. The classifications help describe the disease, how...

https://connect.mayoclinic.org/comment/1312385/

Discussion: MDS types: How did you find out what type you have?

Support Group: Blood Cancers & Disorders

Posted: May 25 9:28am

My husband was diagnosed with MDS in Dec 2023. Labs are declining. Just found a donor....

https://connect.mayoclinic.org/comment/1054559/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Hi Brenda, You need to ask your hematologist if the kind of MDS you have is...

https://connect.mayoclinic.org/comment/961334/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

I have MDS, Myelodysplastic syndrome, refractory anemia with ring sideroblast. SF3B1 mutation positive. I receive Epoetin...

https://connect.mayoclinic.org/comment/1255124/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 9:42pm

Hi @kally38 and welcome to Connect. You’re right, 70 is still young! I just turned 70...

https://connect.mayoclinic.org/comment/1027929/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 5, 2024

Intimidation can keep us from taking the next step. Your age is important and how you...

https://connect.mayoclinic.org/comment/1327382/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 14 11:08pm

Thankyou for your kind words, I started antibiotics yesterday but still feel very sick. I saw...

https://connect.mayoclinic.org/comment/756073/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Good morning, Diane! You are literally just a couple days post BMT for MDS! So happy...

https://connect.mayoclinic.org/comment/1380410/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 27 10:20am

I have had MDS for a year now. On chemo also. Hopefully the chemo will continue...

https://connect.mayoclinic.org/comment/1180377/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

I've had 6 Biopsy (in pelvic) over 10 months. MDS went to AML with 26% blasts...

https://connect.mayoclinic.org/comment/1172761/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2024

Hello--my last bone-marrow biopsy was very promising--white cells coming back and no blasts. Now I am...

https://connect.mayoclinic.org/comment/856598/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

I take papaya leaf extract to Raise my platelets. It comes in capsules as well From...

https://connect.mayoclinic.org/comment/821155/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023