Blood Cancers & Disorders Support Group

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Comments (697)

Hello @jeremy88. I would like to invite @chattykathy to this discussion as she has used neupogen...

https://connect.mayoclinic.org/comment/235266/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2018

Hi Steve, it’s not surprising your mom’s red blood counts continue to drop if her bone...

https://connect.mayoclinic.org/comment/1173360/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2024

I have low risk MDS and have been receiving treatments of Reblozyl These treatments have been...

https://connect.mayoclinic.org/comment/1080366/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Hello I was diagnosed with MDS today after a week in hospital with a hemoglobin count...

https://connect.mayoclinic.org/comment/1172503/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Hi @katgob! You were in my notes to check in with you soon because I knew...

https://connect.mayoclinic.org/comment/1015879/

Discussion: Bone marrow transplants for CMML

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 14, 2024

In the past 8 years I have been on watchful waiting for MDS. I had low...

https://connect.mayoclinic.org/comment/750641/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

I am very interested in your answer as I also have MDS and my monocyte count...

https://connect.mayoclinic.org/comment/976667/

Discussion: Anyone else diagnosed with CML after breast cancer radiation?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2023

Hello @nbadry. Welcome to Mayo Connect. While you’re waiting for other members to reply, have you...

https://connect.mayoclinic.org/comment/888671/

Discussion: MDS and thyroidectomy

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2023

I have MDS with low WBC. I like many also take iron supplement. If I take...

https://connect.mayoclinic.org/comment/1001159/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2024

Thank you. Your comments are reassuring. He was diagnosed with MDS Leukemia. On Christmas Eve 2019....

https://connect.mayoclinic.org/comment/633714/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 8, 2021

I was diagnosed in 9/2024 with MDS low risk. BMB with 5%blasts . Anemia and just...

https://connect.mayoclinic.org/comment/1176757/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

Welcome to Connect @sjjs You popped into the perfect support group with members like @suetex who...

https://connect.mayoclinic.org/comment/1070030/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

Interesting. I got my annual flu shot yesterday. From my pcp. I have MDS and he...

https://connect.mayoclinic.org/comment/934217/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2023

Hello @dchavian, welcome to Connect. I invite you to look at the following discussion in addition...

https://connect.mayoclinic.org/comment/251917/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2019

I was diagnosed about 3 months ago with MDS 5Q as well. Tried shots, didn't work,...

https://connect.mayoclinic.org/comment/1259703/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 4:10pm

Hi just wondering if anyone with MDS has experienced rash on face and neck. I have...

https://connect.mayoclinic.org/comment/948726/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

Yes, i'm dealing with JAK 2 mutation, had a biopsy which confirmed MDS/MPN syndrome. I take...

https://connect.mayoclinic.org/comment/777367/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

With your MDS you aren’t able to produce enough red blood cells. Aransep, developed for patients...

https://connect.mayoclinic.org/comment/1071684/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

I am feeling well. A little tired, but that seems to be a common side effect...

https://connect.mayoclinic.org/comment/1180958/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

I have had 4 bone marrow biopsies as i have had MDS. I am one who...

https://connect.mayoclinic.org/comment/1231146/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 6 10:05pm