Blood Cancers & Disorders Support Group

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Comments (1,035)

@barbwsm I too have MDS. You should ask your doc to check your ferritin level before...

https://connect.mayoclinic.org/comment/1475928/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 6 2:09pm

Hi @raetp. Oh golly, this isn’t news anyone expected to see, especially your brother on his...

https://connect.mayoclinic.org/comment/1117815/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

I have been dealing with the neuroendocrine for a year and a half...stable Just found out...

https://connect.mayoclinic.org/comment/1056257/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I took Revlimid for my MDS. It brought my hemoglobin up to where it's suppose to...

https://connect.mayoclinic.org/comment/815745/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I'm right there with you. Seeing my hematologist on the 8th. I've had low platelets, and...

https://connect.mayoclinic.org/comment/1381943/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2025

@dstraus, did I read correctly that you have myelodysplasia or a myelodysplastic syndrome (MDS)? What concerns...

https://connect.mayoclinic.org/comment/597782/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2021

jschellhaas. I had MDS. Mu diagnosis last October 2023. The first thing my hematologist did was...

https://connect.mayoclinic.org/comment/1198034/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I...

https://connect.mayoclinic.org/comment/888221/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Two years. The factors in my MDS are probably very different than yours, so do not...

https://connect.mayoclinic.org/comment/1365591/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

usmcmom- Every other week for injections? You are on watch and wait with the MDS? Is...

https://connect.mayoclinic.org/comment/1244141/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

@loribmt I’m a 84 year old male. High grade MDS/low grade AML. I’ve selected supportive care...

https://connect.mayoclinic.org/comment/1518735/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Mar 3 2:01pm

I do not know what a CT guided Bone Marrow Biopsy is. I have had 5...

https://connect.mayoclinic.org/comment/1281088/

Discussion: CT guided Bone Marrow Biopsy: Your experiences?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

I agree with fortunaeoldguy, as I was reminded that my bone marrow is the key to...

https://connect.mayoclinic.org/comment/1085790/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

Mornin’ @twitt1949 I’m still mystified that your doctor has told you there are no medications for...

https://connect.mayoclinic.org/comment/1555093/

Discussion: MDS and walking.

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

Lori, did you see the report on Robin Roberts GMA on MDS. I didn’t realize she...

https://connect.mayoclinic.org/comment/815302/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

my wife has been diagnosed with mds and has two rounds of Vidazia. What is the...

https://connect.mayoclinic.org/comment/924396/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

So I have MDs now on chemo drugs to prepare me for SCT hopefully it will...

https://connect.mayoclinic.org/comment/879865/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Have minor mds but getting tranfusions every 2weeks now have high fertin which dr wants me...

https://connect.mayoclinic.org/comment/597339/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2021

Lori, Thanks for responding. I was diagnosed with Parkinson's in 2011. My platelets have dropped from...

https://connect.mayoclinic.org/comment/1248303/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 1, 2025

Hi @cindyborch and welcome. To help you connect easily with other members who have experience with...

https://connect.mayoclinic.org/comment/1283451/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025