Blood Cancers & Disorders Support Group

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Comments (1,109)

My husband is 65 years old and was diagnosed with MDS over lapping Mylofibrosis. His been...

https://connect.mayoclinic.org/comment/1605308/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 24 11:43am

Yes have results it’s MDS now lookin into treatments they feel I need at this juncture...

https://connect.mayoclinic.org/comment/819391/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I’m so sorry to hear about your friend and the seriousness of his late stage MDS....

https://connect.mayoclinic.org/comment/1120623/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Hi @raetp. Oh golly, this isn’t news anyone expected to see, especially your brother on his...

https://connect.mayoclinic.org/comment/1117815/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

Good morning @jelilien. Myelodysplastic syndromes (MDS) are a group of disorders caused by blood cells that...

https://connect.mayoclinic.org/comment/886413/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Welcome to Connect @mick4sb You’re already getting some great information from @janetlen and @scy As mentor...

https://connect.mayoclinic.org/comment/1276361/

Discussion: I have recently been diagnosed with MDS, and have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

Thank you for the wonderful introduction and explanation for the End Game. As best I understand...

https://connect.mayoclinic.org/comment/1085092/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

I have MDS/MPN with Thrombocytosis which means I have very high platelets (over 1.2 million). I...

https://connect.mayoclinic.org/comment/918100/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

@barbwsm I too have MDS. You should ask your doc to check your ferritin level before...

https://connect.mayoclinic.org/comment/1475928/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 6 2:09pm

cobb8 I was diagnosed with MDS. I had a bone marrow biopsy which showed any signs...

https://connect.mayoclinic.org/comment/1089425/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 18, 2024

As mentioned I'm 77 and all my life my body has recovered/healed for many different mishaps...

https://connect.mayoclinic.org/comment/1549258/

Discussion: Just noticed this today: MDS and bruising?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 5:42am

I have been dealing with the neuroendocrine for a year and a half...stable Just found out...

https://connect.mayoclinic.org/comment/1056257/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I took Revlimid for my MDS. It brought my hemoglobin up to where it's suppose to...

https://connect.mayoclinic.org/comment/815745/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I'm right there with you. Seeing my hematologist on the 8th. I've had low platelets, and...

https://connect.mayoclinic.org/comment/1381943/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2025

Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I...

https://connect.mayoclinic.org/comment/888221/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Two years. The factors in my MDS are probably very different than yours, so do not...

https://connect.mayoclinic.org/comment/1365591/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

usmcmom- Every other week for injections? You are on watch and wait with the MDS? Is...

https://connect.mayoclinic.org/comment/1244141/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

jschellhaas. I had MDS. Mu diagnosis last October 2023. The first thing my hematologist did was...

https://connect.mayoclinic.org/comment/1198034/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

@dstraus, did I read correctly that you have myelodysplasia or a myelodysplastic syndrome (MDS)? What concerns...

https://connect.mayoclinic.org/comment/597782/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2021

@loribmt Lori. Can I ask what you do for a living? Are you a doctor, nurse,...

https://connect.mayoclinic.org/comment/1525591/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 8:29pm

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