Blood Cancers & Disorders: Discussions | Page 11

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

I have polycythemia and experienced extreme itching for years, especially around my ankles. I mauled my...

https://connect.mayoclinic.org/comment/750783/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

@donnamae90 Ultimately the choice for transfusions will be your choice. I am trying to avoid transfusions...

https://connect.mayoclinic.org/comment/1190250/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

@nbadry - my side effects are relatively mild: occasional joint pain, initially some itching, and fatigue....

https://connect.mayoclinic.org/comment/1089046/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

@norseman44 Checking in to see how your itchies are doing? Did stopping the dexamethasone help your...

https://connect.mayoclinic.org/comment/1007882/

Discussion: Dexamethasone, anyone prescribed this drug for itchiness?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

My ithing seems to be a bit a quandry from my PCP to my hematologist-oncologist. I'm...

https://connect.mayoclinic.org/comment/916141/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023

Welcome, @yrag. I moved your post about ITP to this active discussion: - Immune Thrombocytopenia Purpura...

https://connect.mayoclinic.org/comment/908362/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Yes, I was diagnosed in May of 2022 but have had symptoms since 2019. I had...

https://connect.mayoclinic.org/comment/738411/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Mom is still feeling great…just had 88th birthday…. I find she’s a little pale some days...

https://connect.mayoclinic.org/comment/1314000/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: May 27 11:01am

I was diagnosed with Cutaneous T Cell Lymphoma back in 2010. It took quiet awhile to...

https://connect.mayoclinic.org/comment/1109989/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2024

Hi @mrducks. Welcome to Connect. Let’s get you over to the right support group where you’ll...

https://connect.mayoclinic.org/comment/1252153/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 6 9:34pm

I have PCV with Jack 2. I struggle with itching and slight headaches and ear aches....

https://connect.mayoclinic.org/comment/1086049/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Great question. My first sign was itching after a soaking bath. I love to soak in...

https://connect.mayoclinic.org/comment/886546/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

It started before I started the hydroxy. They say it’s exama. I do have some pimples...

https://connect.mayoclinic.org/comment/1329198/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 17 12:53pm

Out of sheer dumb luck, I have never had any blood numbers that have been "off"...

https://connect.mayoclinic.org/comment/774637/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2022

I was diagnosed with Polycythemia Vera (PV) a year ago. The pruritus was a symptom before...

https://connect.mayoclinic.org/comment/1236497/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 7:16am

Ginger, thx for the return. After only a few days I have stopped the Dexamethasone because...

https://connect.mayoclinic.org/comment/1005060/

Discussion: Dexamethasone, anyone prescribed this drug for itchiness?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

I have not taken retuximab. I do have Castleman's Disease which use to be treated with...

https://connect.mayoclinic.org/comment/252975/

Discussion: Reaction from Rituximab

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2019

Hello. I asked my hematologist when HU was first prescribed when I should take it and...

https://connect.mayoclinic.org/comment/1302128/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 11 9:02pm

Hi Ismat, There are so many abbreviations for diseases, it’s a challenge to keep them all...

https://connect.mayoclinic.org/comment/1367584/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10 10:08am

Blood Cancers & Disorders Support Group