Blood Cancers & Disorders Support Group

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Comments (486)

I have been doing very well with Procrit shots every 4-5 months, in a series of...

https://connect.mayoclinic.org/comment/226233/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

I can only share my experiences with rashes, and tormenting itching. My cause is unknown, but...

https://connect.mayoclinic.org/comment/744319/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Sep 1, 2022

PV JAK2 positive. I have tingling/stinging in my Hands and feet and at times I feel...

https://connect.mayoclinic.org/comment/1441560/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

I have been on HU for about five years. 500mg 4x week for Polycythemia Vera. I...

https://connect.mayoclinic.org/comment/1307330/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Hi @saucy, In this case PV is Polycythemia Vera. It’s A type of blood cancer where...

https://connect.mayoclinic.org/comment/818232/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...

https://connect.mayoclinic.org/comment/869702/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

I’m 72, on 500mh/day for 1.5 years. I’ve had some intermittent inside elbow itching for which...

https://connect.mayoclinic.org/comment/1173254/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2024

I also was diagnosed with PCV just this May. I had the horrible itching 2 years...

https://connect.mayoclinic.org/comment/749773/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2022

Thank you Lori. I will do my blood work next week to see if the white...

https://connect.mayoclinic.org/comment/1330041/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

Hi I have suffered with itching now for a number of years caused by my CLL....

https://connect.mayoclinic.org/comment/906166/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Hello @pendlebear. The good news is that the HU is working to lower your platelet levels…but...

https://connect.mayoclinic.org/comment/1306720/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Diagnosed with ITP 5 months ago, age 80, was physically active prior to finding platelet count...

https://connect.mayoclinic.org/comment/908223/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2023

I am in the process of determining if I have Chronic Eosinophilic Leukemia. My eosinophil count...

https://connect.mayoclinic.org/comment/882023/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

I’m so happy for you. I’m 4 years in, 74 hrs old and seem to keep...

https://connect.mayoclinic.org/comment/895607/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Is that your daily dosage? I was wondering how often you need phlebotomies? I’m taking 500mg...

https://connect.mayoclinic.org/comment/833870/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Been on 500mg hydroxyurea since 2018. I am 79. Years old Only side effect I ever...

https://connect.mayoclinic.org/comment/1369613/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

Gina: Severe pain under your left rib cage sounds like potential spleen involvement and itching could...

https://connect.mayoclinic.org/comment/1085077/

Discussion: High Eosinophils with pain in left side under ribs and very itchy

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

@jerrlin Diagnosed with PV 10 years ago. I am now 75 yrs old. Its been a...

https://connect.mayoclinic.org/comment/1521164/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Mar 6 3:51pm

Diagnosed with MF 3+/3 in January 2026. This after a frustrating 3 year journey of symptoms,...

https://connect.mayoclinic.org/comment/1537181/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

My sister has CTCL and I’m looking for ways to help her. She has been having...

https://connect.mayoclinic.org/comment/1340602/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2025