Blood Cancers & Disorders Support Group

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Comments (304)

Just got back a Positive Amyloid fat pad biopsy Everyone I talked to prior to the...

https://connect.mayoclinic.org/comment/1082452/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024

Lori, Thank you for your encouraging words. Some days are more difficult than others, but I...

https://connect.mayoclinic.org/comment/724431/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2022

I had high protein in my urine back in 1996 with lots of tests & finally...

https://connect.mayoclinic.org/comment/723733/

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2022

I have smouldering myeloma (mcus) they have never said any diet for this but check out...

https://connect.mayoclinic.org/comment/81212/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

Hi - I had a tele-visit (45 minutes) with Dr. David Dongli at Mayo Clinic. His...

https://connect.mayoclinic.org/comment/754077/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

I agree I was diagnosed several years ago also with MGUS and have been under the...

https://connect.mayoclinic.org/comment/1100067/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Hi. I was diagnosed with Al Amyloidosis that is affecting my kidneys. They started me on...

https://connect.mayoclinic.org/comment/1350233/

Discussion: Anyone treated for MGRS? What is your experience with side effects?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

Prayers For Clarification & Peace….After my diagnosis of amyloidosis & talking with my local doctors &...

https://connect.mayoclinic.org/comment/705230/

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 4, 2022

The bone marrow biopsy is used rarely enough that it reveals whatever the hematologist says it...

https://connect.mayoclinic.org/comment/723439/

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

I was diagnosed with WM July of this year. After treatments for kidney failure that included...

https://connect.mayoclinic.org/comment/664765/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2021

Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to...

https://connect.mayoclinic.org/comment/1100292/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

Thank you, Colleen for your input. Yes, I talked to my Dr last week, and she...

https://connect.mayoclinic.org/comment/1118745/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

My bone marrow biopsy was yesterday. Lidocaine did a fairly good job of dulling the drilling...

https://connect.mayoclinic.org/comment/1150116/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024

My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....

https://connect.mayoclinic.org/comment/879943/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

@arti4 Arti4, my spleen has been enlarged for decades. That has caused me to take on...

https://connect.mayoclinic.org/comment/738409/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Thank you very much I will re read the information The last diagnosis from the oncologist...

https://connect.mayoclinic.org/comment/748997/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2022

After receiving a chemo treatment last February, he had an infusion reaction that required a 3...

https://connect.mayoclinic.org/comment/645353/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

Ms like2dance2 I can relate with your frustrations in getting someone to take your case. Our...

https://connect.mayoclinic.org/comment/1172561/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Hey Emily, my name is Jennifer. I am currently being tested for Amyloidosis which can cause...

https://connect.mayoclinic.org/comment/858521/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

@mgm4kc, I'm tagging a few other members like @cemeterygal01 @mkempson42 @naiviv @tlcox49, who also have experience...

https://connect.mayoclinic.org/comment/1107770/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2024