Blood Cancers & Disorders Support Group

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Comments (228)

My husband was diagnosed with MDS in October, 2023. It is high risk; close to AML....

https://connect.mayoclinic.org/comment/1264743/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Hi. Yes, there are other potential medications than Vidaz used to treat MDS. Though Azacitidine (Vidaza)...

https://connect.mayoclinic.org/comment/1283544/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Colleen, you had asked me to let you know how my husbands appt went with specialist...

https://connect.mayoclinic.org/comment/1252024/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

I don't actually know what my markers are. I saw a pathology report 3 years ago,...

https://connect.mayoclinic.org/comment/943909/

Discussion: Relapsed AML: Anyone choosing no treatment?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Welcome, @terdor! MDS treatments aren’t “one size fits all” because there are variables with each person....

https://connect.mayoclinic.org/comment/1286328/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

We have several members in the forum who are receiving Vidaza treatments for their MDS or...

https://connect.mayoclinic.org/comment/1418774/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

@dancouclanel4 I’m seriously moved to tears reading these 3 replies from you of your life and...

https://connect.mayoclinic.org/comment/1240977/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

Does anyone have this blood disorder? Vidaza is the only treatment I know of. I take...

https://connect.mayoclinic.org/comment/226235/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

Hi Lori, I am new here and thankful for all you do. My husband who was...

https://connect.mayoclinic.org/comment/1286105/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Does anyone here have experience with 5q deletion? A little background: My age 77 husband was...

https://connect.mayoclinic.org/comment/226237/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

Hi Lori: it’s been awhile since I wrote to you. I just finished cycle one of...

https://connect.mayoclinic.org/comment/1419680/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

This message is in response to the Revlimid (Lenalidomide) rash discussion. After two years on Procrit/Retacrit...

https://connect.mayoclinic.org/comment/1244719/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

Good morning, @vng I know what it’s like to plunge into the world of blood cancer...

https://connect.mayoclinic.org/comment/1524541/

Discussion: What disorders cause low red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 9:59am

Welcome to Connect, @camacho. I’m sure with your wife’s recent diagnosis of MDS (myelodyplastic syndrome) you...

https://connect.mayoclinic.org/comment/924707/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

Thanks so much for your wisdom and experience. I start outpatient chemo this week. 14 days...

https://connect.mayoclinic.org/comment/1302930/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: May 12, 2025

Good morning, Elizabeth. The results your husband is having with the Vidaza is pretty encouraging in...

https://connect.mayoclinic.org/comment/1300358/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 9, 2025

A week ago I had to have a transfusion. 2 units. My red blood count fell...

https://connect.mayoclinic.org/comment/226229/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2018

Hi, @statmatics and husband! You are a united team in your wife’s diagnosis of MDS. I...

https://connect.mayoclinic.org/comment/1327606/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2025

Hi Jacklyn, Oh, I understand now! I think you’re getting Venectoclax and Vidaza! They weren’t options...

https://connect.mayoclinic.org/comment/1346755/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2025

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