Blood Cancers & Disorders Support Group

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208 total results

Comments (192)

Hi Maverick, Welcome to Connect. Here’s the beauty of this amazing forum. There are many of...

https://connect.mayoclinic.org/comment/1258078/

Discussion: Newly diagnosed with AML (FTL3 TKD)

Support Group: Blood Cancers & Disorders

Posted: Mar 14 6:10pm

Not sure if this is the place to write a follow up note. I have written...

https://connect.mayoclinic.org/comment/194314/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2019

Welcome to Connect, @oldestmisstee. I know this is a challenging time for your mom, you and...

https://connect.mayoclinic.org/comment/1250973/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Mar 5 11:13am

Hi, Lori: My story began one year ago on Jan. 25th, a year to the day...

https://connect.mayoclinic.org/comment/335080/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 15, 2021

Welcome to Connect, @justjoan11. You’ve joined an amazing support team members who have been diagnosed with...

https://connect.mayoclinic.org/comment/1398087/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Sep 21 12:46pm

I am on my 11th cycle of viadaza and ventoclox with astounding results. Hemoglobin has lingered...

https://connect.mayoclinic.org/comment/1171184/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024

My original MDS diagnosis indicated a higher level of risk. My local hematologist suggested treatment with...

https://connect.mayoclinic.org/comment/235270/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Thanks, Lori. Some time has passed… with platelets ranging from 120s to 140s since December 2024;...

https://connect.mayoclinic.org/comment/1300967/

Discussion: What's the danger in longterm use of filgrastim (Neupogen)?

Support Group: Cancer

Posted: May 10 8:59am

I agree with this prognosis....my MDS is in remission of AML with no blasts. After 8...

https://connect.mayoclinic.org/comment/1171862/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Hi @encb27. It’s been a several months so I thought it was time to check in...

https://connect.mayoclinic.org/comment/932505/

Discussion: Side effects of Vidaza injections

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

my wife has been diagnosed with mds and has two rounds of Vidazia. What is the...

https://connect.mayoclinic.org/comment/924396/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

At 79 I to am on vidza and Vento since December 2023 due principally to blasts...

https://connect.mayoclinic.org/comment/1181285/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2024