Blood Cancers & Disorders Support Group

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Comments (236)

I can definitely relate to your current predicament… I wanted to learn as much as possible...

https://connect.mayoclinic.org/comment/1385908/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2025

@loribmt hi , I hope you are doing well ! Firstly, I am sorry for late...

https://connect.mayoclinic.org/comment/1418619/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

I also was diagnosed with AML About 6 months ago. I had MDS for 9’yesrs ago...

https://connect.mayoclinic.org/comment/1494565/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 30 10:03pm

Your mom sounds like a force, LOL! I chuckled out loud when you said ‘you’ve seen...

https://connect.mayoclinic.org/comment/1185754/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

Hi @dax1million. Try not to be too discouraged after yesterday’s appointment. I know, that’s easier said...

https://connect.mayoclinic.org/comment/1252125/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

I was diagnosed with MDS in Feb, 2024 with an IPSS-R (International prognostic scoring system) risk...

https://connect.mayoclinic.org/comment/1083625/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Hi. Yes, there are other potential medications than Vidaz used to treat MDS. Though Azacitidine (Vidaza)...

https://connect.mayoclinic.org/comment/1283544/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Colleen, you had asked me to let you know how my husbands appt went with specialist...

https://connect.mayoclinic.org/comment/1252024/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

My husband was diagnosed with MDS in October, 2023. It is high risk; close to AML....

https://connect.mayoclinic.org/comment/1264743/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

I don't actually know what my markers are. I saw a pathology report 3 years ago,...

https://connect.mayoclinic.org/comment/943909/

Discussion: Relapsed AML: Anyone choosing no treatment?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Welcome, @terdor! MDS treatments aren’t “one size fits all” because there are variables with each person....

https://connect.mayoclinic.org/comment/1286328/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

We have several members in the forum who are receiving Vidaza treatments for their MDS or...

https://connect.mayoclinic.org/comment/1418774/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

@dancouclanel4 I’m seriously moved to tears reading these 3 replies from you of your life and...

https://connect.mayoclinic.org/comment/1240977/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2025

Does anyone have this blood disorder? Vidaza is the only treatment I know of. I take...

https://connect.mayoclinic.org/comment/226235/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

Hi @twitt1949 This discussion about treatment options for your MDS is one you should be having...

https://connect.mayoclinic.org/comment/1524178/

Discussion: Anyone experienced constipation or acid reflux taking Hydrea?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 5:32pm

Hi Lori, I am new here and thankful for all you do. My husband who was...

https://connect.mayoclinic.org/comment/1286105/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Does anyone here have experience with 5q deletion? A little background: My age 77 husband was...

https://connect.mayoclinic.org/comment/226237/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

Hi Lori: it’s been awhile since I wrote to you. I just finished cycle one of...

https://connect.mayoclinic.org/comment/1419680/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

This message is in response to the Revlimid (Lenalidomide) rash discussion. After two years on Procrit/Retacrit...

https://connect.mayoclinic.org/comment/1244719/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

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