Blood Cancers & Disorders Support Group

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Comments (697)

Thanks for your note. Motorcycling - wow. I' m considering giving up driving! My hemoglobin was...

https://connect.mayoclinic.org/comment/1193476/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Hi Lori, Thank You for sharing it is very helpful to hear your journey. If you...

https://connect.mayoclinic.org/comment/925852/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Great to hear your progress an success in beating AML I have MDs an possibly moving...

https://connect.mayoclinic.org/comment/841869/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

Good morning, Howard. I’ve only been able to find one reply with a member who had...

https://connect.mayoclinic.org/comment/825941/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

I was diagnosed with MDS last year. My fatigue level never improved. I also have shortness...

https://connect.mayoclinic.org/comment/1249785/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 3 6:58pm

I did have a bone marrow biopsy that confirmed my mds. My Hematologist suggested chemo (every...

https://connect.mayoclinic.org/comment/1198051/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

I'm on my 8th injection of Aranesp and have had no side effects at all. I...

https://connect.mayoclinic.org/comment/1193500/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Happy Birthday! We turn 70 a few weeks apart. Mine is coming up just before the...

https://connect.mayoclinic.org/comment/986710/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

I have posted before in both areas of MDS and Parkinson’s. Yes my husband has now...

https://connect.mayoclinic.org/comment/1250651/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 4 9:40pm

My original MDS diagnosis indicated a higher level of risk. My local hematologist suggested treatment with...

https://connect.mayoclinic.org/comment/235270/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

I am a 31 year stage 3 multiple myeloma survivor, 11 years ago I was diagnosed...

https://connect.mayoclinic.org/comment/816656/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

I was diagnosed with low platelets and MDS in 2012 and my local transplant oncologist advised...

https://connect.mayoclinic.org/comment/757096/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Those counts are below 10k correct? Hydroxyurea will improve the count? Diagnosed with MDS about 3...

https://connect.mayoclinic.org/comment/914557/

Discussion: Platelet Count Variance

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

My husband has MDs. His platelets were at 28k. I started him on papaya and it’s...

https://connect.mayoclinic.org/comment/1211666/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Jan 14 9:06pm

Hi @emaddox Relentless itching is the worst, isn’t it? I can tolerate pain over itching any...

https://connect.mayoclinic.org/comment/923860/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Thank you for all your helpful comments and caviats. You are obviously well read and informed....

https://connect.mayoclinic.org/comment/1268891/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 5:34pm

Hello @cybears, welcome to Connect. I moved you discussion and combined it with an existing one...

https://connect.mayoclinic.org/comment/226231/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

Have had MDS for a couple of years with no symptoms. Lately have about a dozen...

https://connect.mayoclinic.org/comment/1205915/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 7 9:44am

Stem cell/bone marrow transplant is very very challenging and not recommended for anyone over 75 (until...

https://connect.mayoclinic.org/comment/1241902/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 21 6:33am

Have MDS … have done bone marrow biopsy with a lidocaine injection … a little uncomfortable...

https://connect.mayoclinic.org/comment/1149990/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024