Blood Cancers & Disorders Support Group

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Comments (1,109)

I just saw the pathology report from the 2nd hospital. They noted DDX41 (R525H) (3% vax)...

https://connect.mayoclinic.org/comment/1388935/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2025

No , my team of hematologists think it might be MDS disease but want a third...

https://connect.mayoclinic.org/comment/1322993/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2025

I was recently diagnosed with MDS/MPN-RS-T with Jak2 mutation also. My doctor recommended this site. It...

https://connect.mayoclinic.org/comment/328593/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

Until MDS, my body produced my blood. Relying on someone else to produce my blood for...

https://connect.mayoclinic.org/comment/1374898/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

@sonieaml So, do you have AML? I thought MDS was a precursor to MDS. I figured...

https://connect.mayoclinic.org/comment/1549629/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 13 11:22am

So I will be on Inqovi either injectable or pill just like to hear how this...

https://connect.mayoclinic.org/comment/821492/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

@janetlen Interesting. I too had heart & lungs tested to no avail. I don’t understand why...

https://connect.mayoclinic.org/comment/1463300/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

Hi yes she said some results are consistent to those in MDS. I’m 53 and just...

https://connect.mayoclinic.org/comment/1566876/

Discussion: B12 deficiency mimicking MDS

Support Group: Blood Cancers & Disorders

Posted: May 5 2:16am

Hi @callahan I provided a link for you in my previous reply for one of many...

https://connect.mayoclinic.org/comment/1219949/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

I have discussed this with my hematologist/oncologist. The problem is that I'm concerned about his comment...

https://connect.mayoclinic.org/comment/622086/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2021

Blessings for you and your wife. I was diagnosed in 2021 with MDS and it progressed...

https://connect.mayoclinic.org/comment/1521594/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 7 9:28am

I came across an article that stated MDS can come from having stomach or intestinal surgery....

https://connect.mayoclinic.org/comment/1054259/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

I don’t know anything about MDS but my hubby (who has multiple myeloma) has taken revlomid...

https://connect.mayoclinic.org/comment/1397869/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

I have had MDS/AML IN December 2023 with 26% blasts, admitted to hospital for month leaving...

https://connect.mayoclinic.org/comment/1250749/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Well had bone marrow biopsy today so waitin for results in few days will be lookin...

https://connect.mayoclinic.org/comment/815158/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2023

Ftom a MDS/AML patient...What a text. I just read comments from several warriors about other warriors....

https://connect.mayoclinic.org/comment/1183083/

Discussion: Saying Goodbye

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

I was diagnosed with MDS/MPN in 2017. On the MPN component I originally had ET. Last...

https://connect.mayoclinic.org/comment/1559898/

Discussion: Myelodysplastic Syndromes (MDS), leg weakness & walking

Support Group: Blood Cancers & Disorders

Posted: Apr 26 9:33am

My husband was Facility Manager at our church for 25 years, and I think it was...

https://connect.mayoclinic.org/comment/1607567/

Discussion: If you have MDS, do you think you got it?

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

My husband is 65 years old and was diagnosed with MDS over lapping Mylofibrosis. His been...

https://connect.mayoclinic.org/comment/1605308/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 24 11:43am

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