Blood Cancers & Disorders Support Group

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Comments (1,035)

Hi @callahan I provided a link for you in my previous reply for one of many...

https://connect.mayoclinic.org/comment/1219949/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Until MDS, my body produced my blood. Relying on someone else to produce my blood for...

https://connect.mayoclinic.org/comment/1374898/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

Well had bone marrow biopsy today so waitin for results in few days will be lookin...

https://connect.mayoclinic.org/comment/815158/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2023

Ftom a MDS/AML patient...What a text. I just read comments from several warriors about other warriors....

https://connect.mayoclinic.org/comment/1183083/

Discussion: Saying Goodbye

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

I came across an article that stated MDS can come from having stomach or intestinal surgery....

https://connect.mayoclinic.org/comment/1054259/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

I don’t know anything about MDS but my hubby (who has multiple myeloma) has taken revlomid...

https://connect.mayoclinic.org/comment/1397869/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

I have had MDS/AML IN December 2023 with 26% blasts, admitted to hospital for month leaving...

https://connect.mayoclinic.org/comment/1250749/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

I have discussed this with my hematologist/oncologist. The problem is that I'm concerned about his comment...

https://connect.mayoclinic.org/comment/622086/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2021

Yes have results it’s MDS now lookin into treatments they feel I need at this juncture...

https://connect.mayoclinic.org/comment/819391/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I don’t want to throw a red herring out there but when I had active Lyme...

https://connect.mayoclinic.org/comment/1549251/

Discussion: Just noticed this today: MDS and bruising?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 5:28am

I’m so sorry to hear about your friend and the seriousness of his late stage MDS....

https://connect.mayoclinic.org/comment/1120623/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

@sonieaml I was diagnosed with MDS/MPN/sMF in 2017. The molecular panel indicated I have the JAK2,...

https://connect.mayoclinic.org/comment/1551139/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 15 10:51am

Hi @desertjulie. There are other drugs used to treat MDS, but your husband's physician probably recommended...

https://connect.mayoclinic.org/comment/88394/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2017

I have been diagnosed for 2 years and have had concerns for 3. I started injections...

https://connect.mayoclinic.org/comment/1551511/

Discussion: MDS and thin skin: What else to watch out for as time goes on?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 7:45pm

Good morning @jelilien. Myelodysplastic syndromes (MDS) are a group of disorders caused by blood cells that...

https://connect.mayoclinic.org/comment/886413/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

cobb8 I was diagnosed with MDS. I had a bone marrow biopsy which showed any signs...

https://connect.mayoclinic.org/comment/1089425/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 18, 2024

Welcome to Connect @mick4sb You’re already getting some great information from @janetlen and @scy As mentor...

https://connect.mayoclinic.org/comment/1276361/

Discussion: I have recently been diagnosed with MDS, and have so many questions.

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

Thank you for the wonderful introduction and explanation for the End Game. As best I understand...

https://connect.mayoclinic.org/comment/1085092/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

I have MDS/MPN with Thrombocytosis which means I have very high platelets (over 1.2 million). I...

https://connect.mayoclinic.org/comment/918100/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023