Blood Cancers & Disorders Support Group

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Comments (759)

Hi Brenda, You need to ask your hematologist if the kind of MDS you have is...

https://connect.mayoclinic.org/comment/961334/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Thankyou for your kind words, I started antibiotics yesterday but still feel very sick. I saw...

https://connect.mayoclinic.org/comment/756073/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

@dstraus @colleenyoung I’m so sorry! I completely missed the MDS reference. Of course, now I understand...

https://connect.mayoclinic.org/comment/597810/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2021

I have had MDS for a year now. On chemo also. Hopefully the chemo will continue...

https://connect.mayoclinic.org/comment/1180377/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

Hi, some positive messages have raised my spirits. My mum who is 72, has just been...

https://connect.mayoclinic.org/comment/1337266/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 28 4:01pm

I take papaya leaf extract to Raise my platelets. It comes in capsules as well From...

https://connect.mayoclinic.org/comment/821155/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Hi @kally38 and welcome to Connect. You’re right, 70 is still young! I just turned 70...

https://connect.mayoclinic.org/comment/1027929/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 5, 2024

Thanks for your note. Motorcycling - wow. I' m considering giving up driving! My hemoglobin was...

https://connect.mayoclinic.org/comment/1193476/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Hi Lori, Thank You for sharing it is very helpful to hear your journey. If you...

https://connect.mayoclinic.org/comment/925852/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Great to hear your progress an success in beating AML I have MDs an possibly moving...

https://connect.mayoclinic.org/comment/841869/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

I've had 6 Biopsy (in pelvic) over 10 months. MDS went to AML with 26% blasts...

https://connect.mayoclinic.org/comment/1172761/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2024

Hello--my last bone-marrow biopsy was very promising--white cells coming back and no blasts. Now I am...

https://connect.mayoclinic.org/comment/856598/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Good morning, Howard. I’ve only been able to find one reply with a member who had...

https://connect.mayoclinic.org/comment/825941/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Have you found any supplements or drugs that improves your level of fatigue? I’m early in...

https://connect.mayoclinic.org/comment/1301247/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: May 10 2:47pm

I did have a bone marrow biopsy that confirmed my mds. My Hematologist suggested chemo (every...

https://connect.mayoclinic.org/comment/1198051/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

I'm on my 8th injection of Aranesp and have had no side effects at all. I...

https://connect.mayoclinic.org/comment/1193500/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Happy Birthday! We turn 70 a few weeks apart. Mine is coming up just before the...

https://connect.mayoclinic.org/comment/986710/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

My original MDS diagnosis indicated a higher level of risk. My local hematologist suggested treatment with...

https://connect.mayoclinic.org/comment/235270/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Hi @emaddox Relentless itching is the worst, isn’t it? I can tolerate pain over itching any...

https://connect.mayoclinic.org/comment/923860/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023