Blood Cancers & Disorders Support Group

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Comments (491)

For me itch is always worse when anything rubs against my skin, after I dress or...

https://connect.mayoclinic.org/comment/1378234/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2025

Hi, I had itchy widespread rashes with hives and welts on my torso, legs, arms, feet--basically...

https://connect.mayoclinic.org/comment/1543142/

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Apr 5 8:31am

For me it was the hemoglobin always within range (17-19) , I also feel tired most...

https://connect.mayoclinic.org/comment/1022926/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Good evening @trillium. I just follow itching because I have now been suffering from the "itch"...

https://connect.mayoclinic.org/comment/337171/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

I get Procrit shots for my myelodysplastic syndrome which help a lot, BUT I'm also having...

https://connect.mayoclinic.org/comment/240723/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2019

Doing very well, thanks for asking, and the info. If I had to guess, itching ranks...

https://connect.mayoclinic.org/comment/769693/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2022

Were you started on that dose oh HU or was it increased gradually? I was started...

https://connect.mayoclinic.org/comment/1177357/

Discussion: palmar-plantar erythrodysesthesia and ET

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

Thank you for sharing this info I too have PV and am on hydroxy and blood...

https://connect.mayoclinic.org/comment/1086170/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Hi. I have ET and I have been taking Hydroxyuria for almost two years. It is...

https://connect.mayoclinic.org/comment/805626/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2023

@swhitman410 It is really nice that you are trying to help your Mom deal with her...

https://connect.mayoclinic.org/comment/744189/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Sep 1, 2022

Welcome to Connect, @kkrok. Thank you for sharing your mom’s story with us. You’re very compassionate...

https://connect.mayoclinic.org/comment/1361981/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2025

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

OMG! Yes, that is exactly what the oncologist said. "CLL won't kill you something else will."...

https://connect.mayoclinic.org/comment/996585/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Hi @lithuanian, I would like to invite a few members who have talked about a myelodysplastic...

https://connect.mayoclinic.org/comment/240720/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2019

Hello @niki101 I did encounter a bout of itching after treatment, (Non Hodgkin's) I was taking...

https://connect.mayoclinic.org/comment/312757/

Discussion: Hodgkin's lymphoma and itching and other side effects

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2020

Hi Arti4, I was experiencing allot of bad itching before my Et/Jak2 diagnosis and my dermatologist...

https://connect.mayoclinic.org/comment/874288/

Discussion: MGUS and restless leg syndrome

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

Always check with your own oncologist, because we are all different. Speaking for myself: Generic Claritin...

https://connect.mayoclinic.org/comment/1389367/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2025

Good morning all.....to anyone having a rash and scalp itchiness I have Essential Thrombocytosis which causes...

https://connect.mayoclinic.org/comment/744043/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

Good Morning, When I had breast cancer the doctor told me to use Aquaphor and it...

https://connect.mayoclinic.org/comment/1298858/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: May 7, 2025

The tipping point for me to try Jackifi would be if/when my hematologist decides my platelet...

https://connect.mayoclinic.org/comment/764327/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022