Blood Cancers & Disorders Support Group

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Comments (418)

Hi I have suffered with itching now for a number of years caused by my CLL....

https://connect.mayoclinic.org/comment/906166/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Hello @pendlebear. The good news is that the HU is working to lower your platelet levels…but...

https://connect.mayoclinic.org/comment/1306720/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18 9:10am

Diagnosed with ITP 5 months ago, age 80, was physically active prior to finding platelet count...

https://connect.mayoclinic.org/comment/908223/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2023

I am in the process of determining if I have Chronic Eosinophilic Leukemia. My eosinophil count...

https://connect.mayoclinic.org/comment/882023/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

Gina: Severe pain under your left rib cage sounds like potential spleen involvement and itching could...

https://connect.mayoclinic.org/comment/1085077/

Discussion: High Eosinophils with pain in left side under ribs and very itchy

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

I’m so happy for you. I’m 4 years in, 74 hrs old and seem to keep...

https://connect.mayoclinic.org/comment/895607/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Is that your daily dosage? I was wondering how often you need phlebotomies? I’m taking 500mg...

https://connect.mayoclinic.org/comment/833870/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Thanks, Justin. As I understand, greater in number, and interfering with life more than many others....

https://connect.mayoclinic.org/comment/195549/

Discussion: Darzalex Treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2018

I’m a 71 yo female in good health. My count was initially in the 900s by...

https://connect.mayoclinic.org/comment/929492/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Thanks so much for putting some common sense to our diagnosis. Sometimes when I read other...

https://connect.mayoclinic.org/comment/838615/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2023

I have had extreme itching for quite awhile, my doctor recommended applying coconut oil once or...

https://connect.mayoclinic.org/comment/1253703/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Mar 9 8:19am

Re itchy bumps: ET jacks up histamine levels. I have more skin irritation, asthma, and rosacea...

https://connect.mayoclinic.org/comment/928129/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

My HES affected my heart. Nucala has been approved by the FDA to treat HES and...

https://connect.mayoclinic.org/comment/939455/

Discussion: Hypereosinophilic syndrome (HES)

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

Could it be related to anything you might be eating which could be interacting with your...

https://connect.mayoclinic.org/comment/906136/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

I take Desloratadine, an antihistamine for the itching and it works great. For dry skin on...

https://connect.mayoclinic.org/comment/1205154/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 9:14am

I started a little over a year ago w/500 mg/day 6 days/week. I have hot flashes...

https://connect.mayoclinic.org/comment/1105077/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

About 6 months ago I was diagnosed with Sezary Syndrome, a rare form of T-Cell Lymphoma....

https://connect.mayoclinic.org/comment/871156/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Hey Jacklyn, If my doctor told me that she’s thinking of delaying treatment because my numbers...

https://connect.mayoclinic.org/comment/1353520/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 21 6:06pm

I’m sorry to hear about your mom’s problems with itching. I’ve had some issues with itching...

https://connect.mayoclinic.org/comment/744293/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Sep 1, 2022

Yes, that’s exactly what I did. For two years, I had uncontrollable itching and no other...

https://connect.mayoclinic.org/comment/876352/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023