Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

239 total results

Comments (208)

Hi Wiggins32....My nurse practitioner was the person who found the causative factor of my high platelet...

https://connect.mayoclinic.org/comment/782402/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Hello Colleen, Thank you for your reply. Looking forward to msg someone who has used this...

https://connect.mayoclinic.org/comment/969263/

Discussion: VonJo (pacritinib) effects

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2023

Welcome to Connect, Jean! As you’ve discovered, there are a number of members in the forum...

https://connect.mayoclinic.org/comment/1039680/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 24 8:51pm

@misty45, Thank you for replying and telling me your story. Having a positive JAK2 result, I'm...

https://connect.mayoclinic.org/comment/194261/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Hi @bohobruja Welcome to Mayo Connect. The National Institute of Health defines chronic myeloproliferative disorders as...

https://connect.mayoclinic.org/comment/786594/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Dear PinkFlamingo, Wow!! Sorry for what you are going through. I had the JAK2 blood work...

https://connect.mayoclinic.org/comment/836159/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Good morning, @onthejoedock. These are lovely photos of your handsome husband…so active and vital. But the...

https://connect.mayoclinic.org/comment/1082921/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8 9:40am

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12 9:41am

In response to earlier posts I was asked to post bone marrow biopsy results, hope this...

https://connect.mayoclinic.org/comment/57951/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2020

Hi @monarenae Welcome to Mayo Clinic Connect! In this community based forum, we’re not medical professionals...

https://connect.mayoclinic.org/comment/609161/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2021

I was diagnosed with Essential Thrombocythemia Hemorrhage in 01/2009 during my yearly physical. My doctor prescribed...

https://connect.mayoclinic.org/comment/802144/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2023

Good morning everyone! I am a 50 year old female and went to get my annual...

https://connect.mayoclinic.org/comment/756950/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Thanks for your reply. My shortness of breath is a complication from my cardiac microvascular disease...

https://connect.mayoclinic.org/comment/822913/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

does anyone have the following rare blood cancer essential thrombocythaemia - Ive just been diagnosed

https://connect.mayoclinic.org/comment/876064/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Hi I was just diagnosed with Primary Thrombocythmia. I actually think I have had this for...

https://connect.mayoclinic.org/comment/820477/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2023

Hi, Karen here. I was diagnosed about a month ago with Essential Thrombocytosemia, the rate type....

https://connect.mayoclinic.org/comment/783499/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Hello @tresman10 and welcome to Mayo Connect, It sounds as if you and your husband have...

https://connect.mayoclinic.org/comment/310846/

Discussion: Husband has Essential Thrombocythemia (ET) & MCI

Support Group: Caregivers: Dementia

Posted: May 14, 2020

Thanks for posting your experience. I need all the help I can find to deal with...

https://connect.mayoclinic.org/comment/607494/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2021