Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,395 total results

Comments (2,258)

ET, cancer or not? I realize doctors disagree. But be aware that if you are applying...

https://connect.mayoclinic.org/comment/1048393/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2024

@kat260 Hello, I am 60 years as well and diagnosed with Et Jak 2 in November...

https://connect.mayoclinic.org/comment/1522171/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 8 7:19am

Yeah, let this guy do his tests and diagnoses, and then ask your wife if she...

https://connect.mayoclinic.org/comment/1396453/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2025

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Bonjour, j'ai un syndrome de poems depuis 2004, hélas 2 poems ne sont pas identiques, nous...

https://connect.mayoclinic.org/comment/598363/

Discussion: Husband with POEMS Syndrome

Support Group: Caregivers

Posted: Apr 30, 2021

JAK2 is the mutation that causes myeloproliferative neoplasms (cancers) like ET, PV, and MF. A small...

https://connect.mayoclinic.org/comment/989167/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2023

How does life's stress/situations affect our JAK2 and ET?

https://connect.mayoclinic.org/comment/982853/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

I would call your doc asap and report it, to get it on the record if...

https://connect.mayoclinic.org/comment/1168349/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

@janemc I am told that many take not only HU but also a baby aspirin as...

https://connect.mayoclinic.org/comment/1460085/

Discussion: Essential Thrombocytosis (ET): What are options with aspirin allergy?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2025

Thank you so much for proving this link, sdduan. It's really interesting to hear high-level MPN...

https://connect.mayoclinic.org/comment/1166064/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024

Philadelphia This site is wonderful! It’s comforting knowing you’re not the only person with ET.

https://connect.mayoclinic.org/comment/1011219/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

@janemc What's driving the high LDH and alkaline phosphatase is still a mystery, but prob unrelated...

https://connect.mayoclinic.org/comment/1465710/

Discussion: High LDH with ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2025

Hi I have ET with Jak 2 and take hydroxycarbamide and low dose aspirin. Had joint...

https://connect.mayoclinic.org/comment/1541326/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 2:43pm

I have also wondered if Covid has played a part in my diagnosis of ET.

https://connect.mayoclinic.org/comment/1354550/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2025

Lynnvb, did you ever figure out what mutation was driving your ET?

https://connect.mayoclinic.org/comment/1286075/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Hemo oncologists in the US have differing opinions about what ET is and how to treat...

https://connect.mayoclinic.org/comment/1279971/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2025

Hi tamlyn74. I'm 84 and have had ET and have been on hydroxyurea for 3 1/2...

https://connect.mayoclinic.org/comment/1554428/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Does anybody else experience this? Is this “normal”? Not sure if it’s the ET JAK2 or...

https://connect.mayoclinic.org/comment/1554410/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Also the Leukemia/Lymphoma have wonderful in-person conferences, so if you get on the email list, you...

https://connect.mayoclinic.org/comment/1061295/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

Thanks, Colleen! I wish every ET patient got a dietary and physical therapy consult! Diet and...

https://connect.mayoclinic.org/comment/969370/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2023