Blood Cancers & Disorders Support Group

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Comments (307)

Lori, Thank you for your encouraging words. Some days are more difficult than others, but I...

https://connect.mayoclinic.org/comment/724431/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2022

@annie14 thank you. What you’ve described is incredibly valuable and could help many others facing a...

https://connect.mayoclinic.org/comment/1462438/

Discussion: Looking for guidance...possible amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2025

Hi - I had a tele-visit (45 minutes) with Dr. David Dongli at Mayo Clinic. His...

https://connect.mayoclinic.org/comment/754077/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

Prayers For Clarification & Peace….After my diagnosis of amyloidosis & talking with my local doctors &...

https://connect.mayoclinic.org/comment/705230/

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 4, 2022

Hi. I was diagnosed with Al Amyloidosis that is affecting my kidneys. They started me on...

https://connect.mayoclinic.org/comment/1350233/

Discussion: Anyone treated for MGRS? What is your experience with side effects?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

I agree I was diagnosed several years ago also with MGUS and have been under the...

https://connect.mayoclinic.org/comment/1100067/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

I was diagnosed with WM July of this year. After treatments for kidney failure that included...

https://connect.mayoclinic.org/comment/664765/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2021

Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to...

https://connect.mayoclinic.org/comment/1100292/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....

https://connect.mayoclinic.org/comment/879943/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

My bone marrow biopsy was yesterday. Lidocaine did a fairly good job of dulling the drilling...

https://connect.mayoclinic.org/comment/1150116/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024

Thank you, Colleen for your input. Yes, I talked to my Dr last week, and she...

https://connect.mayoclinic.org/comment/1118745/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

Problem with amyloidosis is it is hard to diagnosis because so many other diseases have same...

https://connect.mayoclinic.org/comment/1470411/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

@arti4 Arti4, my spleen has been enlarged for decades. That has caused me to take on...

https://connect.mayoclinic.org/comment/738409/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Ms like2dance2 I can relate with your frustrations in getting someone to take your case. Our...

https://connect.mayoclinic.org/comment/1172561/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Thank you very much I will re read the information The last diagnosis from the oncologist...

https://connect.mayoclinic.org/comment/748997/

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2022

After receiving a chemo treatment last February, he had an infusion reaction that required a 3...

https://connect.mayoclinic.org/comment/645353/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2021

Well Lori, I made contact with my Oncologist like you suggested. It was something she said...

https://connect.mayoclinic.org/comment/738564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Good morning. Hoping this message finds you well. I found your message and wanted to share...

https://connect.mayoclinic.org/comment/874720/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2023

I would like to view the video but receive a message that it is not available....

https://connect.mayoclinic.org/comment/1337037/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

Hey Emily, my name is Jennifer. I am currently being tested for Amyloidosis which can cause...

https://connect.mayoclinic.org/comment/858521/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

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