Blood Cancers & Disorders Support Group

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Comments (272)

I researched and found out the purpose. My hemo/onc had my gastroenterologist do a biopsy for...

https://connect.mayoclinic.org/comment/754121/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

I'm so sorry you're having to deal with all of this, it is indeed a big...

https://connect.mayoclinic.org/comment/1216639/

Discussion: Lymphocytes on CBC

Support Group: Blood Cancers & Disorders

Posted: Jan 19 1:47pm

I had neuropathy in my left foot/toes and terrible nerve pain. The mm and amyloidosis were...

https://connect.mayoclinic.org/comment/104687/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2016

@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...

https://connect.mayoclinic.org/comment/217290/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2018

Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...

https://connect.mayoclinic.org/comment/883525/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

Peggyjean- Thank you so much for sharing your hard ordeals with me. All the information you...

https://connect.mayoclinic.org/comment/1120375/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Hi @jebcyn. That’s a really inspirational story! It’s amazing how just the change in chemo regimens...

https://connect.mayoclinic.org/comment/782599/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

I understand every feeling you're having and relate to the fact hat it's difficult to find...

https://connect.mayoclinic.org/comment/104705/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering...

https://connect.mayoclinic.org/comment/81213/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

Hello @bob100, I’m truly sorry to hear about your wife’s diagnosis, but I also quickly want...

https://connect.mayoclinic.org/comment/88315/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

I was quite healthy until I suddenly started getting short of breath when I exercised 12...

https://connect.mayoclinic.org/comment/1062971/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

Hello @soonerfan, How did your appointment on the 29th of March turn out? Were you able...

https://connect.mayoclinic.org/comment/1048610/

Discussion: Does any one have HOCM & Systemic Amyloidosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 10, 2024

This is interesting, and potentially very helpful. The real point is that if you feel the...

https://connect.mayoclinic.org/comment/900332/

Discussion: Possible Al Amylodiois

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

Oh, thank you! I'll check that out. I'm scheduled for Dec. 1. Am sick with COVID...

https://connect.mayoclinic.org/comment/969673/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

To follow up on my post 3 days ago. I am the 70-year-old that was diagnosed...

https://connect.mayoclinic.org/comment/1250436/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 3:06pm

Hi there ChefT, thank you kindly for your reply :) I have been concerned about amyloidosis,...

https://connect.mayoclinic.org/comment/883702/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

I have MGUS (BMB 15% but oncologist says still MGUS) was tested last summer for amyloidosis...

https://connect.mayoclinic.org/comment/1279867/

Discussion: Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 8:23am

Colleen, thanks for the link. I did a lot of reading and realized one sad fact....

https://connect.mayoclinic.org/comment/738604/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

@jwillits8 Looks to me like a good case for some autoimmune sleuthing. There are many good...

https://connect.mayoclinic.org/comment/629541/

Discussion: Antiphospholipid: Weird symptoms, don't understand what’s going on

Support Group: Autoimmune Diseases

Posted: Aug 24, 2021

@mary612 Mary, I really feel for you and your husband and all of these difficult decisions!!...

https://connect.mayoclinic.org/comment/1042733/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 30, 2024