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Comments (2,258)

Question along this line. I’m new to this ET thing. (Diagnosed with ET/Jak2…. Are there any...

https://connect.mayoclinic.org/comment/1544709/

Discussion: Is it okay to take B12 with essential thrombocythemia (ET)?

Support Group: Blood Cancers & Disorders

Posted: Apr 7 8:58am

@sarahgault Fatigue and headaches may be symptoms of ET. And having some good days, some less...

https://connect.mayoclinic.org/comment/1554917/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

@princess86, yes, ours says the same. He strongly states that calling ET cancer is a thing...

https://connect.mayoclinic.org/comment/1558386/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: 9 hours ago

@jodyjazz The congestion some of us experience is not from HU but from ET itself. Always...

https://connect.mayoclinic.org/comment/1534972/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 25 9:26am

Yes it is a cancer drug but also treats ET by reducing blood platelets. My doctor...

https://connect.mayoclinic.org/comment/1556577/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Dad had ET with visual distortions with ET, which he described as blurred vision and loss...

https://connect.mayoclinic.org/comment/1556537/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

@kearleyhagey, welcome. How are you doing on hydroxyurea? Are you new to ET?

https://connect.mayoclinic.org/comment/1555642/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

@dewz13 I'd say 98% of us are the first patient with ET our PCPs has ever...

https://connect.mayoclinic.org/comment/1558313/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 10 hours ago

@janemc are there trials ongoing for ET? I have not seen any info on research?

https://connect.mayoclinic.org/comment/1538473/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:08am

Hi @divaterry, Well, dare I say welcome? I’m sure the news of having ET or essential...

https://connect.mayoclinic.org/comment/1548555/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Apr 12 9:24am

@sdcgcarroll, as you navigate the new world of essential thrombocytosis (ET), I recommend using the group...

https://connect.mayoclinic.org/comment/1535115/

Discussion: Newly Diagnosed Essential Thrombocytosis

Support Group: Blood Cancers & Disorders

Posted: Mar 25 12:02pm

@janemc Thanks for the encouragement! Its nice to hear from people with similar diagnoses and/or are...

https://connect.mayoclinic.org/comment/1552000/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 11:52am

@claire1776 Good question. While HU has brought down my platelet count to around 400 -- that's...

https://connect.mayoclinic.org/comment/1550681/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 6:30pm

@tmth That's supersonic progress on your getting your platelets down! Hope your ET symptoms will decrease...

https://connect.mayoclinic.org/comment/1551665/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 5:55am

In my research after receiving an ET diagnosis, I've read that the "average" life expectancy of...

https://connect.mayoclinic.org/comment/1018305/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

Issues with our eyes are scary for sure. To offer a quick (not necessarily final) answer...

https://connect.mayoclinic.org/comment/1556601/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Wondering what the risk factors are for ET patients who get the flu/an effection. I'm in...

https://connect.mayoclinic.org/comment/1539085/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:16pm

I think you might try visiting a periodontist. I don’t have this issue, but I have...

https://connect.mayoclinic.org/comment/1541676/

Discussion: Flossing teeth and MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 3 6:47am

@nohrt4me thank you for sharing your experience with ET. It is helpful and encouraging to learn...

https://connect.mayoclinic.org/comment/1555930/

Discussion: Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

essential thrombocythemia (ET) can sometimes be diagnosed without a bone marrow biopsy if a driver mutation...

https://connect.mayoclinic.org/comment/1507899/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 8:14am