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Bladder Cancer Support Group

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Urothelial adenocarcinoma
I have mucin producing urothelial adenocarcinoma of the prostatic urethra with Mets. Preparing for round 3 of FOLFOX. Does anyone have any experience or knowledge...
Support Group: Bladder Cancer
Last active: Nov 23, 2023
Discussion
Questions about sarcomatoid urothelial carcinoma
I don't know where to start. I want to help my friend Dale who recently got dx'd w this. I'm a critical care nurse. He...
Support Group: Bladder Cancer
Last active: Aug 12 12:40am
Discussion
Treatment experience for urothelial cancer with plasmcytoid variant
I am a 73 year old man that was just diagnosed with a very rare high grade urothelial carinoma of the bladder with plasmacytoid variant....
Support Group: Bladder Cancer
Last active: 4 days ago
Discussion
Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?
Looking for someone who is/has gone through HGUCC of the renal pelvis willing to share your experience, treatments, etc. Basically similar to high-grade bladder cancer...
Support Group: Bladder Cancer
Last active: Feb 24 1:48pm
Discussion
Anyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?
Diagnosed with non muscle invasive lowgrade UTUC. Have had three tumors ablated over the course of 1 1/2 years. Time to try Jelmyto?
Support Group: Bladder Cancer
Last active: Dec 20, 2025
Discussion
Any experience with urothelial with squamous kidney cancer
I've been diagnosed with rare kidney cancer. Urothelial carcinoma with predominant (80%) squamous differentiation of my kidney. Kidney was removed last week. Stage is T3....
Support Group: Kidney Cancer
Last active: Apr 9, 2025
Discussion
Metastastic urothelial carcinoma: Will further treatment help?
In March of 2023, I was diagnosed with urothelial carcinoma, MICU, with metastasis to both lungs. Since then I have been treated with cis/gem; (chemo)...
Support Group: Bladder Cancer
Last active: Mar 2 8:15pm
Discussion
Upper Tract Urothelial Carcinoma: Interested in ureter repair options
I have been diagnosed with a low-grade carcinoma tumor in my right ureter. Rather than a lifetime of ablation and uteroscopy treatments, I have opted...
Support Group: Bladder Cancer
Last active: Sep 1, 2025
Discussion
Positive For High-Grade Urothelial Carcinoma on Urine Test
My husband is 63 yrs old and has had blood in his urine since September….it has been on and off. He told me about it...
Support Group: Bladder Cancer
Last active: Mar 1, 2025
Discussion
CT scan standard for Papillary urothelial bladder cancer, high grade?
Hi!Im a female early 60's, who is new to this group. Very grateful to have this group. Challenging to find this support for bladder cancer.My...
Support Group: Bladder Cancer
Last active: Sep 16, 2025