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Bladder Cancer Support Group

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Urothelial adenocarcinoma
I have mucin producing urothelial adenocarcinoma of the prostatic urethra with Mets. Preparing for round 3 of FOLFOX. Does anyone have any experience or knowledge...
Support Group: Bladder Cancer
Last active: Nov 23, 2023
Discussion
Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?
Looking for someone who is/has gone through HGUCC of the renal pelvis willing to share your experience, treatments, etc. Basically similar to high-grade bladder cancer...
Support Group: Bladder Cancer
Last active: Feb 24 1:48pm
Discussion
Metastastic urothelial carcinoma: Will further treatment help?
In March of 2023, I was diagnosed with urothelial carcinoma, MICU, with metastasis to both lungs. Since then I have been treated with cis/gem; (chemo)...
Support Group: Bladder Cancer
Last active: Mar 2 8:15pm
Discussion
Any experience with urothelial with squamous kidney cancer
I've been diagnosed with rare kidney cancer. Urothelial carcinoma with predominant (80%) squamous differentiation of my kidney. Kidney was removed last week. Stage is T3....
Support Group: Kidney Cancer
Last active: Apr 9, 2025
Discussion
Anyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?
Diagnosed with non muscle invasive lowgrade UTUC. Have had three tumors ablated over the course of 1 1/2 years. Time to try Jelmyto?
Support Group: Bladder Cancer
Last active: Dec 20, 2025
Discussion
Upper Tract Urothelial Carcinoma: Interested in ureter repair options
I have been diagnosed with a low-grade carcinoma tumor in my right ureter. Rather than a lifetime of ablation and uteroscopy treatments, I have opted...
Support Group: Bladder Cancer
Last active: Sep 1, 2025
Discussion
Positive For High-Grade Urothelial Carcinoma on Urine Test
My husband is 63 yrs old and has had blood in his urine since September….it has been on and off. He told me about it...
Support Group: Bladder Cancer
Last active: Mar 1, 2025
Discussion
Cytology: High-grade urothelial carcinoma to atypical sqamous cells
Hello everyone,My wife had cytology tests, cytoscopies and a CT urogram. Carcinoma cells were found in the urine but not yet the source.In particular, three...
Support Group: Bladder Cancer
Last active: Aug 8, 2025
Discussion
CT scan standard for Papillary urothelial bladder cancer, high grade?
Hi!Im a female early 60's, who is new to this group. Very grateful to have this group. Challenging to find this support for bladder cancer.My...
Support Group: Bladder Cancer
Last active: Sep 16, 2025
Discussion
Bladder cancer spreading and looking for options next steps.
My wife was diagnosed with bladder cancer in early 2025. Due to heart issues and age, surgical procedures were not viable. She completed a full...
Support Group: Bladder Cancer
Last active: Jan 13 3:06pm