Support Groups

Bladder Cancer Support Group

Lock icon Public Support Group
Clear Search
153 total results
Discussions (13)
PADCEV + KEYTRUDA: results and side effects
My wife was diagnosed with bladder cancer January 2025. Due to age and physical condition she could not undergo bladder removal so underwent BCG and...
Support Group: Bladder Cancer
Last active: May 13 8:19pm
Keytruda working, but Surgery Inevitable
Hello friends, My dad has stage 3 cancer between the bladder and prostate. He's been on Keytruda for about 5 months. His oncologist and urologist...
Support Group: Bladder Cancer
Last active: Sep 21, 2025
Stopping keytruda after 5 years??
5 yr. Bladder cancer patient here. Been getting treated with keytruda every 3 weeks for 5 yrs then my pulse was low and they took...
Support Group: Bladder Cancer
Last active: Sep 22, 2025
Anyone have treatment of BCG with Keytruda?
Had cancer scraped out bladder and 6 BCG treatments and cystoscopy showed cancer back in only 4 mos. Had another scraping out with Blue Light...
Support Group: Bladder Cancer
Last active: Apr 10, 2025
Issue with neuropathy with Padcev/Keytruda combo
Muscle Invasive / High Grade.After initial cisplatin moved to enfortumab vedotin-ejfv with pembrolizumab (Padcev/Keytruda).It worked well with a clear PET scan after 5 months.Everything good...
Support Group: Bladder Cancer
Last active: Jan 30 8:08am
Stopping Keytruda after two years
My oncologist has told me that Keytruda treatment is normally stopped after two years. I am about at the two year point. Has anyone had...
Support Group: Bladder Cancer
Last active: Apr 21, 2024
Anyone been on Keytruda immunotherapy and switched treatments?
Been on keytruda (1 bag every 21 days). Anyone quit Keytruda and on something else?
Support Group: Bladder Cancer
Last active: Dec 8, 2024
Keytruda (urethral cancer): What's your experience?
Friend was diagnosed with mucinous adenocarcinoma primary to the urethra and is being treated through Stanford and UCSF. He was told that this is a...
Support Group: Bladder Cancer
Last active: Apr 12, 2025
Cystectomy for muscle‐invasive bladder cancer (MIBC), now Keytruda
I recently had a RC and one node and a positive margin was found. It is suggested that I take Keytruda for 1 year of...
Support Group: Bladder Cancer
Last active: Feb 6, 2025
Keytruda: How to treat major skin rash over most of body ?
After a series of treatments with Keytruda for bladder cancer, I have had major skin eruptions over most of my body. I am looking for...
Support Group: Bladder Cancer
Last active: Sep 17, 2023
Pink Snow :-)
Thought I would share a photo that never fails to make me happy this time of year. This beautiful cherry tree snows pink petals all...
Support Group: Bladder Cancer
Last active: May 11 1:46pm
Anyone currently taking Balversa (erdafitinib)?
Curious if anyone on this forum has had sequencing done on cancer cells that identified FGFR3 mutation? Luckily during a 2nd opinion review of my...
Support Group: Bladder Cancer
Last active: May 12 9:10am
Recurrence after TMT (Radiation)- Options being reduced and concerned
Hi, History: Muscle Invasive BC, high grade Unfortunately though I live in a city of >200k there is no urology support nearby which has been...
Support Group: Bladder Cancer
Last active: Feb 25, 2025