Anyone currently taking Balversa (erdafitinib)?

Posted by Sheila @shester, Apr 28 9:48am

Curious if anyone on this forum has had sequencing done on cancer cells that identified FGFR3 mutation?

Luckily during a 2nd opinion review of my medical records, a doctor found the test results (that had been overlooked by my team) and suggested a change to Erdafitinib for treatment because Padcev/Keytruda was not working for me. that combo kept me in the hospital for much of summer 2025 from severe side effects!

I have been on the new treatment (Balversa/Erdafitinib) since Oct 2025, with very good results, but several side effects. I'm wondering if you are taking this drug what your side effects are and how are you managing them?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

jaxfl | @jaxfl | May 4 9:45am

There was a video on YouTube I found in 2024 where a man in TX lived very long on it with SD. I cannot find it so maybe it is gone. The challenge with YouTube is that the search algorithms have changed.

This is a generic video: https://www.youtube.com/watch. BCAN Inspire used to have some reports but the search and AI are dreadful nowadays.

The side effects can range from limited to severe. Like with EV. Which in your case, failed.

Update: found it: https://cancerprogressreport.aacr.org/report/survivor-journeys/cpr19-survivors-price. He sadly passed away.

Sheila | @shester | 2 days ago

In reply to @jaxfl "There was a video on YouTube I found in 2024 where a man in TX lived..." + (show)

@jaxfl thanks so much for finding those videos for me. Similar to that gentleman I have hand/foot issues that I am dealing with. I appreciate you taking the time to research and respond.