Support Groups

Bladder Cancer Support Group

Public Support Group
570 total results
Discussions (44)
Anyone treated with Adstiladrin for BCG-unresponsive bladder cancer?
Does anyone have experience with adstiladrin for treatment of BCG refractive NMIBC?
Support Group: Bladder Cancer
Last active: Jun 28 9:40am
Anyone have pain after BCG Treatments, especially with urination?
I’m receiving BCG treatment for a bladder cancer. I’m on my fourth week. Has anyone had pain after the treatment I have and it’s severe...
Support Group: Bladder Cancer
Last active: Jul 6 5:51pm
BCG and UTIs: Anyone else get urinary tract infections?
I had one BGG treatment and have been unable to continue because of persistent UTIs. It's one antibiotic after another and none help. Anyone else...
Support Group: Bladder Cancer
Last active: Apr 12 9:00am
Urinary pain after having prostate seeds and radiation after BCG
Unfortunately 16 years ago I had radiation and seed implants for prostate surgery. Now with bladder cancer and getting BCG treatment I have continual urinary...
Support Group: Bladder Cancer
Last active: Jan 19 6:58am
Bladder shrunk to 25% capacity after after BCG treatment
Bladder contracture after BCG Immunotherapy. After ten months my bladder is at 25% capacity. Capacity testing indicates 100ml to 125ml maximum capacity. My urologist nor...
Support Group: Bladder Cancer
Last active: Jun 18 3:26pm
After 6 BCG treatments, biopsy is good: What is chance of recurrence?
Have papillarry uothelial carcinoma , high grade, had 6 treatmentsof BCG over 6 weeks, two month later had biopsy, result looks "good", chance of cancer...
Support Group: Bladder Cancer
Last active: Mar 28 6:38pm
Which treatment path to choose? Wait & monitor vs chemo or BCG?
I just had my first tumor removed. Non invasive low grade. Intermediate risk. My doctor wanted to play it safe and scrapped the muscle wall...
Support Group: Bladder Cancer
Last active: Jan 26 10:08am
What activities can I do after Bacillus Calmette-Guerin (BCG)?
I want to know if i can mow my lawn with a self propelled lawn mower? I just feel worthless with nothing much to do.
Support Group: Bladder Cancer
Last active: Jun 6, 2023
BCG Side Effects: my toughest side effect is lower back pain
I’m currently in my 5th week of BCG treatment. I’m experiencing numerous side effects, which I was expecting, and a few that I wasn’t.Presently my...
Support Group: Bladder Cancer
Last active: Jun 14 11:19am
Anyone had treatment with Mitomycin?
Has anyone had treatment using Mitomycin? Is it similar to BCG? I have non-invasive low grade bladder cancer that hasn't responded to BCG or GemDose.Thank...
Support Group: Bladder Cancer
Last active: Mar 30 10:50am
Looking to connect with people who had Cystectomy & Neobladder
Hi, I am a 63 year old physically fit male. I would like to talk with similar patients who have has cystectomy and neo bladder...
Support Group: Bladder Cancer
Last active: Jul 30, 2024
Newly diagnosed and TURBT in December 2022.
My urologist did two TURBT surgeries. My follow up appointment was 1-25-23. I was diagnosed with Ta HG non muscle invasive. He did a chemo...
Support Group: Bladder Cancer
Last active: Feb 8, 2023
Tumor back after 2 months
Amu45sin here. Had TURBT 2 months ago with gemocide, and 6 weekly instillations of BCG. Tumor is back. Anyone else with similar situation! Thanks for...
Support Group: Bladder Cancer
Last active: Jul 13 8:30pm
Stage 1 Bladder Cancer: Anyone had treatment with Gemcitabine?
My 78 year old husband has been living with non-invasive bladder cancer for about 14 years. He had a recurrence in December, (had TURB surgery)and...
Support Group: Bladder Cancer
Last active: Jan 11 5:23pm
Any other females here with bladder cancer in their 50s?
Saying hello as a new member. Sometimes it's difficult to find info for females with bladder cancer, and sometimes it would be nice to have...
Support Group: Bladder Cancer
Last active: May 25 7:00pm
Curious about experiences/results from Adstiladrin treatments
I failed the BCG treatments after TURBT. 2nd TURBT shows aggressive high grade T1 with LP invasion. Plan is for 3rd TURBT followed by Adstlidrin...
Support Group: Bladder Cancer
Last active: Jun 4 4:34pm
Bladder cancer treatment in immunocompromised transplant patient
My high risk non muscle invasive bladder cancer has been non responsive to BCG. Has anyone else been in this situation and what course of...
Support Group: Bladder Cancer
Last active: Feb 8 3:49pm
Bladder cancer treated with gemcitabine 3 dose
My father 80 years old with bladder cancer and is on treatment, started with anti bcg and now with gemcitabine three doses done with some...
Support Group: Bladder Cancer
Last active: Jan 2, 2024
Anyone had gemcitabine and docetaxel for Bladder Cancer?
Just had second of six weekly doses Gem/Doc chemo infusion for my bladder cancer. Had six doses BCG but cancer came right back. Mine is...
Support Group: Bladder Cancer
Last active: Jul 19 11:03am
CT scan standard for Papillary urothelial bladder cancer, high grade?
Hi!Im a female early 60's, who is new to this group. Very grateful to have this group. Challenging to find this support for bladder cancer.My...
Support Group: Bladder Cancer
Last active: Jul 27, 2024