Bladder Cancer Support Group | Mayo Clinic Connect

Support Group: Bladder Cancer

Posted: Apr 28 5:56am

@nolaughingmatter, I can imagine you are nervous. If the biopsy confirms urothelial cancer, you might be...

https://connect.mayoclinic.org/comment/1217605/

Discussion: Bladder Cancer Group: Introduce yourself and connect with others

Support Group: Bladder Cancer

Posted: Jan 20, 2025

I did 4 instillations of BCG so far and my doctor did a cytology urine test...

https://connect.mayoclinic.org/comment/953331/

Discussion: BCG vaccine and non invasive papillary cancer

Support Group: Bladder Cancer

Posted: Oct 24, 2023

Newly dx, surgeon says no CA, pathology says highly suspicious of Urothelial Ca .

https://connect.mayoclinic.org/comment/1455582/

Discussion: Anyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?

Support Group: Bladder Cancer

Posted: Dec 7, 2025

This is the first time I read about urothelial mixed with glandular carcinoma. Scary stuff.

https://connect.mayoclinic.org/comment/1303833/

Discussion: Bladder Surgery to remove and determine stage, type, etc..

Support Group: Bladder Cancer

Posted: May 14, 2025

Hi @vars57 Steve, you might also be interested in this related discussion: - CT scan standard...

https://connect.mayoclinic.org/comment/1195305/

Discussion: Bladder Cancer Group: Introduce yourself and connect with others

Support Group: Bladder Cancer

Posted: Dec 22, 2024

EV is a targeted treatment (NECTIN4 is the target: often expressed abundantly by urothelial malignancy) that...

https://connect.mayoclinic.org/comment/1524573/

Discussion: Blue light cystoscopy & standard cystoscopy

Support Group: Bladder Cancer

Posted: Mar 11 10:38am

I was just diagnosed with LOW GRADE PAPILLARY UROTHELIAL CARCINOMA. Hopefullly it was caught early enough.

https://connect.mayoclinic.org/comment/1316642/

Discussion: Bladder Cancer Group: Introduce yourself and connect with others

Support Group: Bladder Cancer

Posted: May 30, 2025

High Grade Urothelial Carcinoma Stage 4. Just starting out. 83 years old with CKD

https://connect.mayoclinic.org/comment/1491721/

Discussion: Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?

Support Group: Bladder Cancer

Posted: Jan 27 10:02am

@judyhigbee, sorry to hear about the new diagnosis. Was it confirmed to be urothelial cancer? What...

https://connect.mayoclinic.org/comment/1464556/

Discussion: Anyone dealing with UTUC (Upper Tract Urothelial Carcinoma)?

Support Group: Bladder Cancer

Posted: Dec 20, 2025

@so1frustrated, I just read more information that you provided about your diagnosis in this post https://connect.mayoclinic.org/comment/602308/...

https://connect.mayoclinic.org/comment/602570/

Discussion: Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?

Support Group: Bladder Cancer

Posted: May 17, 2021

@kfontaine1002 Has anyone in this group heard about this ctDNA blood test that is specific for...

https://connect.mayoclinic.org/comment/1501158/

Discussion: First appt for bladder cancer this coming week at Mayo Phoenix

Support Group: Bladder Cancer

Posted: Feb 8 4:58pm

I’m an 85 year old with a high grade T1 urothelial tumor post 2 TURBT’s. Rather...

https://connect.mayoclinic.org/comment/1539996/

Discussion: Followup for Noninvasive High-Grade: Anyone chosen no more treatment?

Support Group: Bladder Cancer

Posted: Mar 31 9:09pm

@jaxfl Yes, but I was told urothelial cancer so maybe they didn't post that test online....

https://connect.mayoclinic.org/comment/1424419/

Discussion: Is anyone familiar with the BK Virus?

Support Group: Bladder Cancer

Posted: Oct 27, 2025

@jsa236, welcome. I'm tagging @sil839 @sil839 @lrwants2know @amyb5 to connect with other members who have experience...

https://connect.mayoclinic.org/comment/1456513/

Discussion: Post-nephroureterectomy for UTUC - now abnormal bladder cells

Support Group: Bladder Cancer

Posted: Dec 8, 2025

Did they do cytology (looking for urothelial cells) and/or signatera or another ctdna tracker? I would...

https://connect.mayoclinic.org/comment/1475955/

Discussion: Bladder Cancer Group: Introduce yourself and connect with others

Support Group: Bladder Cancer

Posted: Jan 6 2:51pm

Interestingly there is now research that indicates neuropathy in EV confirms efficacy. Plus there are mitigating...

https://connect.mayoclinic.org/comment/1457873/

Discussion: Diagnosed with High-Grade Urothelial Cell Carcinoma - ANYONE?

Support Group: Bladder Cancer

Posted: Dec 10, 2025

I received a negative urine cytology report and then had a cystoscope which revealed high grade...

https://connect.mayoclinic.org/comment/1264991/

Discussion: What were your symptoms before getting diagnosed with bladder cancer?

Support Group: Bladder Cancer

Posted: Mar 23, 2025

Hi @swh, I can imagine that you are worried and nervous. Papillary urothelial carcinoma is usually...

https://connect.mayoclinic.org/comment/1074677/

Discussion: Bladder Cancer Group: Introduce yourself and connect with others

Support Group: Bladder Cancer

Posted: May 25, 2024

Greetings Hector, I am dealing with the same issue. My cytology reports said High grade Urothelial...

https://connect.mayoclinic.org/comment/1365831/

Discussion: Cytology: High-grade urothelial carcinoma to atypical sqamous cells

Support Group: Bladder Cancer

Posted: Aug 7, 2025