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Bladder Cancer Group: Introduce yourself and connect with others
Welcome to the Bladder Cancer support group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.
Pull up a chair. Let’s start with introductions.
What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?
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HugInterested in more discussions like this? Go to the Bladder Cancer Support Group.
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@colleenyoung yes, of course. But we are also interested in gaining an understanding of the opinions and experiences of patients as well.
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1 ReactionThis week's member spotlight features a member of the Bladder Cancer group who many of you have crossed paths with. Learn more about @jaxfl, his bladder cancer journey, as well as some behind the scenes things you may not know like his hobby of tinkering on vintage computers, and why he eats his fries with mayonaise. 🙂
– French fries with mayonnaise: Meet @jaxfl https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/french-fries-with-mayonnaise-meet-jaxfl/
Check out all the Member Spotlights here and follow the About Connect blog for future update: https://connect.mayoclinic.org/page/about-connect/
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2 ReactionsThank you! Well done!
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1 ReactionMy mother 88 year-old was just diagnosed with pathologic T1 high grade urothelial carcinoma of the bladder.
Any tips?
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3 ReactionsHello @believe11, I am sorry that you and your mother are facing this diagnosis. My husband was diagnosed at age 65 with this similar and muscle invasive cancer. After surgery to remove the bladder diverticulum where the primary tumor was, as well as many lymph nodes, all but one were clear, he had chemo then BCG and monitoring with cystoscopy every 3 months. The frequent recurrence after two years pushed him to undergo radical cystectomy with neobladder looking for the cure. There are more medical options for treatment now than when he was initially treated. He tolerated the chemotherapy and bladder infusions well with minimal side effects. The surgeries were tough and recovery slow and difficult. If I were addressing this issue at a more advanced age such as your mother is, I would be considering her level of health and mobility and whether she could tolerate regular anesthesia for TURBTS as needed, or a big surgery like bladder removal. I might lean toward more conservative measures with medical treatment aimed at control. Many people live many years with regular TURBTS to control their bladder cancer, but they may have a less aggressive type of cancer. Your medical team should help with determining what her current health will tolerate in treatments. Always consider a second opinion at a large referral center if at all possible.
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