Autoimmune Diseases Support Group

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Comment

A friend of mine was just diagnosed with Inclusion Body Myositis. Her symptoms sound very similar...

https://connect.mayoclinic.org/comment/837899/

Discussion: Dramatic small sensory nerve loss -EDS/autoimmune cause? Need ATLrheum

Support Group: Autoimmune Diseases

Posted: Apr 5, 2023

Comment

My wife is doctoring through the Neuropothy Dept. at KU Med. They sent us to Mayo...

https://connect.mayoclinic.org/comment/57732/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Mar 3, 2019

Comment

I have had inclusion body myositis for many years. I am currently wheel chair bound and...

https://connect.mayoclinic.org/comment/1331419/

Discussion: Dealing with inclusion body myositis: Want to connect with others

Support Group: Bones, Joints & Muscles

Posted: Jun 20, 2025

Comment

I am 66 yr man. Diagnosed with AS & IBM- (Inclusion Body Myositis)- both muscle related...

https://connect.mayoclinic.org/comment/1241431/

Discussion: Antisynthetase Syndrome: Anyone else?

Support Group: Autoimmune Diseases

Posted: Feb 20, 2025

Comment

Hi @vivd and welcome. You posted perfectly. I'm tagging fellow members @pinkmk @johnnyv46 @buttons @fuzzybadger @kentyunker...

https://connect.mayoclinic.org/comment/331414/

Discussion: Diagnosed with Myositis: Desperate for answers and help

Support Group: Autoimmune Diseases

Posted: Jan 1, 2021

Comment

Good morning @charlie01 I’m so sorry you were diagnosed with myositis. Autoimmune disease can be so...

https://connect.mayoclinic.org/comment/683708/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Feb 23, 2022

Comment

Hi @dexter651, welcome to Connect. If you feel comfortable, would you mind sharing a bit more...

https://connect.mayoclinic.org/comment/152863/

Discussion: Inclusion Body Myositis: I'd like to talk with others

Support Group: Autoimmune Diseases

Posted: Jun 4, 2017

Comment

@ralphreetz here are some more links that provide information on physical therapy for Myositis: The Role...

https://connect.mayoclinic.org/comment/107468/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Jan 27, 2018

Comment

I see you posted 1 year ago. I’ve gotten a temporary diagnosis of inclusion body myositis...

https://connect.mayoclinic.org/comment/1186319/

Discussion: IMD

Support Group: Autoimmune Diseases

Posted: Dec 7, 2024

Comment

@duckski44 Welcome to Mayo Clinic Connect! I saw that you pasted similar discussions in other places....

https://connect.mayoclinic.org/comment/1344093/

Discussion: Dealing with inclusion body myositis: Want to connect with others

Support Group: Bones, Joints & Muscles

Posted: Jul 8, 2025