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Looking for any food links regarding Vasculitis - Wegeners disease
Hello - looking for any food links regarding Vasculitis - Wegners disease - it's such a new diagnosis - and also very difficult to research...
Support Group: Autoimmune Diseases
Last active: Feb 6, 2023
Discussion
Amyloidosis. Diagnosis, treatment, frustration. AL, hATTR, etc.
Perhaps the most difficult disorders are those which offer little hope, such as some forms of Amy. The diagnosis is very difficult, slow, frustrating and...
Support Group: Autoimmune Diseases
Last active: Sep 9, 2023
Discussion
Teaching Hospitals
Hi, I know getting diagnosed with AI is difficult. A couple of people suggested going to a teaching hospital as they are more thorough. Any...
Support Group: Autoimmune Diseases
Last active: Jul 12, 2024
Discussion
How did you feel when you were first diagnosed?
When I was first diagnosed with fibromyalgia, I felt strangely relieved. But being diagnosed with Sjögren's syndrome didn't relieve me. I think this time it...
Support Group: Autoimmune Diseases
Last active: Aug 25, 2025
Discussion
CIDP/GBS
I was diagnosed with CIDP in 2001. My neurologist says it is no longer active and the weakness I experience with exertion is from nerve...
Support Group: Autoimmune Diseases
Last active: Feb 24, 2024
Discussion
Currently waiting approval for Rheumatology physician referral
My situation is complicated and frustrating..trying to find answers and a diagnosis is like watching paint dry in the rain. Someone, please, if you have...
Support Group: Autoimmune Diseases
Last active: Feb 9 10:30pm
Discussion
Learn more about Autoimmune Disease
The Autoimmune Organization is holding a free, virtual summit in October. Everyone is invited! The speakers will cover topics such a diagnosis difficulty, fatigue, why...
Support Group: Autoimmune Diseases
Last active: Apr 15, 2025
Discussion
Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis
Male. 63 years old; residing in Karachi. Rheumatoid conditions. Had flair of Rheumatoid Arthritis between 2016 and 2021 which has since subsided / remission; followed...
Support Group: Autoimmune Diseases
Last active: Apr 30, 2025
Discussion
Cardiac Sarcoidosis (Autoimmune Disease) and the use of Prednisone.
Cardiac Sarcoidosis is a rare / uncommon autoimmune disease which affects the heart, causing Heart & Kidney failure and risk of an untimely V Tach...
Support Group: Autoimmune Diseases
Last active: May 15, 2025
Discussion
Tips for Getting a Proper Diagnosis of an Autoimmune Disease
Getting a diagnosis can be a real challenge indeed! It may be one of the most difficult challenges in your health journey. I received some...
Support Group: Autoimmune Diseases
Last active: May 2, 2025