601 total results
Discussion
Looking for any food links regarding Vasculitis - Wegeners disease
Hello - looking for any food links regarding Vasculitis - Wegners disease - it's such a new diagnosis - and also very difficult to research...
Discussion
Amyloidosis. Diagnosis, treatment, frustration. AL, hATTR, etc.
Perhaps the most difficult disorders are those which offer little hope, such as some forms of Amy. The diagnosis is very difficult, slow, frustrating and...
Discussion
Teaching Hospitals
Hi, I know getting diagnosed with AI is difficult. A couple of people suggested going to a teaching hospital as they are more thorough. Any...
Discussion
How did you feel when you were first diagnosed?
When I was first diagnosed with fibromyalgia, I felt strangely relieved. But being diagnosed with Sjögren's syndrome didn't relieve me. I think this time it...
Discussion
CIDP/GBS
I was diagnosed with CIDP in 2001. My neurologist says it is no longer active and the weakness I experience with exertion is from nerve...
Discussion
Currently waiting approval for Rheumatology physician referral
My situation is complicated and frustrating..trying to find answers and a diagnosis is like watching paint dry in the rain. Someone, please, if you have...
Discussion
Learn more about Autoimmune Disease
The Autoimmune Organization is holding a free, virtual summit in October. Everyone is invited! The speakers will cover topics such a diagnosis difficulty, fatigue, why...
Discussion
Autoimmune Muscle Atrophy Myositis coupled with Rheumatoid Arthiritis
Male. 63 years old; residing in Karachi. Rheumatoid conditions. Had flair of Rheumatoid Arthritis between 2016 and 2021 which has since subsided / remission; followed...
Discussion
Cardiac Sarcoidosis (Autoimmune Disease) and the use of Prednisone.
Cardiac Sarcoidosis is a rare / uncommon autoimmune disease which affects the heart, causing Heart & Kidney failure and risk of an untimely V Tach...
Discussion
Tips for Getting a Proper Diagnosis of an Autoimmune Disease
Getting a diagnosis can be a real challenge indeed! It may be one of the most difficult challenges in your health journey. I received some...
Comment
@rbear Very interesting. I can relate to the difficulty in ensuring the specialists get the information...
https://connect.mayoclinic.org/comment/1514802/
Comment
You have seen a dermatologist and that is good. Yet, if scabies treatment doesn't give relief...
Connect