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Autoimmune Diseases Support Group

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Discussions (150)
Shrinking Lung Syndrome and Autoimmune Disease like Lupus
It's an extremely rare complication of autoimmune disease, most commonly with LUPUS, but also can be seen with Sjogren's, RA, and others... Just diagnosed this...
Support Group: Lung Health
Last active: Oct 29, 2022
How did you feel when you were first diagnosed?
When I was first diagnosed with fibromyalgia, I felt strangely relieved. But being diagnosed with Sjögren's syndrome didn't relieve me. I think this time it...
Support Group: Autoimmune Diseases
Last active: Aug 25, 2025
Is this an autoimmune rash?
Hi everyone,Does anyone recognize this rash? I have several autoimmune diseases (Hashimoto's, Rheumatoid arthritis, Sjogren's, lymphocytic colitis) and this rash has persisted on both arms...
Support Group: Autoimmune Diseases
Last active: Jul 30, 2023
Lung Nodule, D-Dimer elevation and ANA +VE
Lung Nodule, D-Dimer elevation and ANA +VE: Do I have LUPUS? In June during my India trip left side Ribs pain started when breathing.I returned...
Support Group: Autoimmune Diseases
Last active: Mar 17, 2025
Does anyone have a solution for blistering around the lips bc of sjog
The area around my lips get very blistered because of Sjogrens. My lips themselves are fine, but the skin around them is blistered. has anyone...
Support Group: Autoimmune Diseases
Last active: May 17, 2024
Cardio PET Scan for Potential Autoimmune problem(s)
Hello,I have been diagnosed with Sjogren's syndrome and I have most of the classic symptoms- extreme dry eye, dry nasal passages and joint pain. etc....
Support Group: Autoimmune Diseases
Last active: Oct 20, 2023
Any of you have migraines with your autoimmune disease?
I’m just curious. I have RA and migraines so did my mother. I’m not making a huge deal out of this but do any of...
Support Group: Autoimmune Diseases
Last active: Mar 25, 2022
Myasthenia Gravis: A debilitating MONSTER
Beverly here & I'm an 80 yr old Grandma who's suffered from MG & Sjögren's for 47 years. It's incidious, rare & no cure. I...
Support Group: Autoimmune Diseases
Last active: Jan 13 7:27am
Dizziness and Methotrexate
Hi All! I was recently put on oral methotrexate, for AntiSynthetase and Sjogrens syndrome, and I am having significant dizziness. It actually feels like I’ve...
Support Group: Autoimmune Diseases
Last active: Apr 9, 2023
Neuropathy and autoimmune diagnosis
So for those that have been following me my blood work after 20 plus years of autoimmune neuropathy came back as Hashmitos, Sjogrens and Lupus....
Support Group: Neuropathy
Last active: May 20, 2025
Too much tomanage
Retired woman with exponentially increasing autoimmune symptoms for which I have received IVig infusions which made in place symptoms worse and added new ones. Following...
Support Group: Autoimmune Diseases
Last active: May 29 6:26pm
Mouth irritation and sensitivity with autoimmune diseases
I'm wondering if anyone else has a sensitivity to anything like fruit or even potatoes. I have Sjögren's syndrome and RA and scleroderma. The inside...
Support Group: Autoimmune Diseases
Last active: Aug 23, 2021
Thymectomy and autoimmune diseases
I had a thymectomy in 1985 when I was 17 years old to treat myasthenia Gravis. I went into remission about 4 years later. After...
Support Group: Autoimmune Diseases
Last active: Nov 9, 2018
Fasting and autoimmune diseases, does it help?
I have Sjogerns as well as pre hypertension and pre diabetes. Has anyone tried fasting, if so, what kind and did it help any?
Support Group: Autoimmune Diseases
Last active: Aug 29, 2023
Advice! Civemeline only works once a day. Pilocarpine not work
Has anyone else been a non responder to this important medication for salivation in Sjogrens? If so did you find a solutions?.Pretty miserable between that...
Support Group: Autoimmune Diseases
Last active: Dec 23, 2023
Actual diagnosis: multiple autoimmune conditions
I have always been pretty healthy until Oct 2020, I started having some swallowing issues and all of my testing comes back with markers/partial positive...
Support Group: Autoimmune Diseases
Last active: Jul 1, 2021
Long Story--Sorry What Questions Should I Ask the Rheumatologist?
I'm sorry for the long story--I'm going to try to sum it up quickly. I only go to the doctor once a year for prescription...
Support Group: Autoimmune Diseases
Last active: May 16 6:11pm
Anyone else gone gluten and dairy free to help improve symptoms
Hi, It has been suggested to me and i have talked to people who havegone gluten and dairy free that has helped their symptoms. justlooking...
Support Group: Autoimmune Diseases
Last active: 10 minutes ago
Anyone with APS also have joint pain and severe fatigue?
I was diagnosed with APS after a DVT and PE 26 years ago. In the last 5 years have been developing severe joint pain and...
Support Group: Autoimmune Diseases
Last active: Dec 16, 2025
Please let me know if someone is using LDN
I really need to find a specialist in New York who treat Sjögren’s disease with Low Dose Naltrexone. In United Kingdom that is the treatment...
Support Group: Autoimmune Diseases
Last active: Apr 11, 2025