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Shrinking Lung Syndrome and Autoimmune Disease like Lupus
It's an extremely rare complication of autoimmune disease, most commonly with LUPUS, but also can be seen with Sjogren's, RA, and others... Just diagnosed this...
How did you feel when you were first diagnosed?
When I was first diagnosed with fibromyalgia, I felt strangely relieved. But being diagnosed with Sjögren's syndrome didn't relieve me. I think this time it...
Is this an autoimmune rash?
Hi everyone,Does anyone recognize this rash? I have several autoimmune diseases (Hashimoto's, Rheumatoid arthritis, Sjogren's, lymphocytic colitis) and this rash has persisted on both arms...
Lung Nodule, D-Dimer elevation and ANA +VE
Lung Nodule, D-Dimer elevation and ANA +VE: Do I have LUPUS? In June during my India trip left side Ribs pain started when breathing.I returned...
Does anyone have a solution for blistering around the lips bc of sjog
The area around my lips get very blistered because of Sjogrens. My lips themselves are fine, but the skin around them is blistered. has anyone...
Cardio PET Scan for Potential Autoimmune problem(s)
Hello,I have been diagnosed with Sjogren's syndrome and I have most of the classic symptoms- extreme dry eye, dry nasal passages and joint pain. etc....
Any of you have migraines with your autoimmune disease?
I’m just curious. I have RA and migraines so did my mother. I’m not making a huge deal out of this but do any of...
Myasthenia Gravis: A debilitating MONSTER
Beverly here & I'm an 80 yr old Grandma who's suffered from MG & Sjögren's for 47 years. It's incidious, rare & no cure. I...
Dizziness and Methotrexate
Hi All! I was recently put on oral methotrexate, for AntiSynthetase and Sjogrens syndrome, and I am having significant dizziness. It actually feels like I’ve...
Neuropathy and autoimmune diagnosis
So for those that have been following me my blood work after 20 plus years of autoimmune neuropathy came back as Hashmitos, Sjogrens and Lupus....
Too much tomanage
Retired woman with exponentially increasing autoimmune symptoms for which I have received IVig infusions which made in place symptoms worse and added new ones. Following...
Mouth irritation and sensitivity with autoimmune diseases
I'm wondering if anyone else has a sensitivity to anything like fruit or even potatoes. I have Sjögren's syndrome and RA and scleroderma. The inside...
Thymectomy and autoimmune diseases
I had a thymectomy in 1985 when I was 17 years old to treat myasthenia Gravis. I went into remission about 4 years later. After...
Fasting and autoimmune diseases, does it help?
I have Sjogerns as well as pre hypertension and pre diabetes. Has anyone tried fasting, if so, what kind and did it help any?
Advice! Civemeline only works once a day. Pilocarpine not work
Has anyone else been a non responder to this important medication for salivation in Sjogrens? If so did you find a solutions?.Pretty miserable between that...
Actual diagnosis: multiple autoimmune conditions
I have always been pretty healthy until Oct 2020, I started having some swallowing issues and all of my testing comes back with markers/partial positive...
Long Story--Sorry What Questions Should I Ask the Rheumatologist?
I'm sorry for the long story--I'm going to try to sum it up quickly. I only go to the doctor once a year for prescription...
Anyone else gone gluten and dairy free to help improve symptoms
Hi, It has been suggested to me and i have talked to people who havegone gluten and dairy free that has helped their symptoms. justlooking...
Anyone with APS also have joint pain and severe fatigue?
I was diagnosed with APS after a DVT and PE 26 years ago. In the last 5 years have been developing severe joint pain and...
Please let me know if someone is using LDN
I really need to find a specialist in New York who treat Sjögren’s disease with Low Dose Naltrexone. In United Kingdom that is the treatment...
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