It’s an extremely rare complication of autoimmune disease, most commonly with LUPUS, but also can be seen with Sjogren’s, RA, and others… Just diagnosed this past January and exploring what potential treatments are out there. I was put on oxygen for sleeping when the diaphragm weakness/paralysis causes the most problems. High dose steroids during the attacks seems to be the standard treatment, but not much is known about how to prevent worsening. I’ve seen case studies where rituximab was used too, but there are too few cases out there to be able to define a real treatment protocol. Anyone out there with any knowledge of this rare area?
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