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Autoimmune Diseases Support Group

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Discussions (150)
Behcets & Sjogrens and COVID
I took first Pfizer vaccine, 24 hours later problems. Pain in side, moved under breast & sternum area. Now, on right side of waist. Doctors...
Support Group: Autoimmune Diseases
Last active: May 21, 2022
Sjogrens and poor sleep
Any suggestions for my extremely dry mouth. Manage ok during the day, but sleep is hard to come by, when I have to get a...
Support Group: Autoimmune Diseases
Last active: Sep 26, 2025
Sjogrens in my brain!
I am wondering if anyone else has Chronic Sjogrens that has entered the Central nervous system and the brain. I am getting more and more...
Support Group: Autoimmune Diseases
Last active: May 21, 2025
Sjogrens/Inflammation/Uvulitis
DOES ANYONE GET INFLAMMED UVULA AND ATTRIBUTE IT TO SJOGRENS? I have had Sjogren's since 1994, one thing that has occurred that I cannot convince...
Support Group: Autoimmune Diseases
Last active: Mar 18, 2024
Sjorgrens and RA
I was diagnosed with Sjorgrens and RA 3 years ago. Over the past year it has gotten worse. I ache like the flu daily and...
Support Group: Autoimmune Diseases
Last active: Jun 25, 2025
Sjogerns and gastroparesis
Which comes first, Sjogerns or gastroparesis? I’ve had symptoms of both all my life (looking back). I was diagnosed with gastroparesis in 2014 but basically...
Support Group: Autoimmune Diseases
Last active: Apr 7, 2025
Trigeminal neuralgia with Sjogrens disease
What is the best treatment for trigeminal neuralgia in an older lady with Sjogrens? My mom is 74 and in excruciating pain. She can’t eat...
Support Group: Autoimmune Diseases
Last active: May 20, 2025
Rheumatoid arthritis and Sjogrens neuropathy
Does anyone else have polyneuropathy as a complication from these 2 autoimmune diagnosis? I’ve had this since 2020. The neuropathy is a beast for me.
Support Group: Autoimmune Diseases
Last active: Jul 4, 2022
Sjogrens Syndrome and sinus drainage
I’ve had Sjögren’s for years. Dry eyes, nose, mouth! I’m trying to find out if anyone else has had issues with non stop drainage in...
Support Group: Autoimmune Diseases
Last active: Dec 19, 2025
Dry eyes from Sjogrens
I have had dry eyes (not mouth) for many years. From 2013-2018 I was treated for polymyalgia rheumatica and giant cell arteritis (now in remission)...
Support Group: Autoimmune Diseases
Last active: Mar 5, 2023
Questions to ask a rheumatologist regarding sjogrens knowledge
I want to interview several rheumatologists in my area to discuss their experiences with Sjogrens disease. What questions should I ask to determine their knowledge...
Support Group: Autoimmune Diseases
Last active: May 10 6:59pm
Sjogrens and dysautononia and mast cell activation
Hi Does anyone have the three conditions I have. The only place i have seen these grouped together is by the Neurologist at Mayo clinic...
Support Group: Autoimmune Diseases
Last active: Feb 14, 2024
Anybody heard of Sjogrens caused by TBI?
Another cyclist unexpectedly broadsided me, and I went down hard. Arm, hip, and leg injuries healed, but brain didn’t. Completed 3 months with brain injury...
Last active: Nov 6, 2025
Sjogrens patients, saliva issues, flares?
I posted earlier and got some hugs . Thanks. But I posting to see if any other Sjogrens patients had trouble with saliva.i am hoping...
Support Group: Autoimmune Diseases
Last active: Mar 12, 2024
Undiagnosed - sjrogrens, lupus?
HELLO, I AM A 57 YEAR OLD FEMALE THAT HAS DRY EYES, BODY ACHES, DEPRESSION, INSOMNIA, FATIQUE, SHORTNESS OF BREATH, DRY MOUTH.I HAVE BEEN TO...
Support Group: Autoimmune Diseases
Last active: Jul 7, 2022
Pain from sarcodosis, lupus and sjogrens
Hi. I have sarcodosis, lupus and sjogrens. I have noticed I’ve been getting Granulomas all over the place now and they are very painful. I...
Support Group: Autoimmune Diseases
Last active: Feb 11 9:13pm
Sjogrens, SFN, unbalanced walking, nystagmus
After seeing a slew of doctors, ENT, Opthamologist , Neurologists, neuro Opthamologist and a neuoro otorhyngologist I am at a loss. I have double vision...
Support Group: Autoimmune Diseases
Last active: Jul 7, 2024
Swollen Parotid Glands - I may have Sjögren’s
I’ve been on prednisone for Giant Cell Arteritis (GCA) and Polymylagia Rheumatica (PMR) since October 2024. I also started taking Actemra last year. Recently, I...
Support Group: Autoimmune Diseases
Last active: May 10 8:58am
Would like to hear from people with Sjogrens
I was diagnosed with Sjogrens at age 23. I am now 38 and my main symptoms (aside from the dry eyes and mouth), were fatigue...
Support Group: Autoimmune Diseases
Last active: Nov 14, 2023
White peony extract for Sjogerns
Does anyone take white peony extract to help with Sjogerns dry eyes and mouth? I would love to hear your experiences. Thanks
Support Group: Autoimmune Diseases
Last active: Mar 14, 2023