604 total results
Discussions (61)
Dealing with brain fog: What helps you?
I’m 51 years old and new to the psoriatic arthritis auto immune world, having been diagnosed two years ago. My symptoms kicked into high gear...
Extreme fatigue and pain
I currently have stenosis in cervical, thoracic, and lumbar regions of my back with a pinched nerve root at L2. I have had 4 surgeries...
Difficulty processing too many words
Hi everyone. I’m still in the process of trying to figure out a diagnosis, though based on lab results and symptoms, they are leaning toward...
Struggling to find answers.
Hello I am an 18 year old female and I need answers. For background, i have juvenile myoclonic epilepsy, and i am on lamictal for...
Zero appetite, not getting adequate nutrition
I have been "diagnosed" with a mystery AI polyneuropathy. It was thought primarily some kind of motor neuron disease, but then came awful sensory involvement,...
Worsening diplopia with no explanation
Hi! I’m new here. My name is Beka. I’m 43 years old, and I live near Atlanta Georgia. I’ve cross-posted this since we’re still not...
Liver and Pancreatic Duct Dilation
I have been struggling with this condition for 2 years, and currently waiting to get an appointment with a GI specialist at UCDAVIS. In the...
Has anyone experienced repeated infections while taking SKYRIZI
Has anyone experienced repeated infections while on SKYRIZI? I started taking SKYRIZI in April of this year. My rheumatologist diagnosed me with psoriatic arthritis, but...
Facing my first rheumatology appointment tomorrow
Hi everyone, this is my first time writing on the internet, so I hope it’s okay if this is a little long, it’s my first...
Myopathy with Celiac Disease?
I am wondering about other people's experience of myopathy with Celiac Disease. How long does it take to heal and regain full movement of limbs?...
Cannot Regulate Body Temperature
I am at the end of my rope. I am having issues regulating my body temperature and no one can seem to tell me what...
Autoimmune illness and small fiber neuropathy
Greetings, I was diagnosed over a long period of searching for reasons for a wide range of symptoms with Lupus/Sjogren’s Syndrome, and Small Fiber Neuropahy....
Autoimmune Diagnosis after Iron Infusion?
I had a one time 1020 mg Iron Infusion after being diagnosed with anemia after 3 years of severe periods.I had a reaction days later...
amyloidosis and ATTR-CM
I saw the commercials on TV for ATTR-CM and got interested due to the combination of symptoms. I realize the drug companies advertise to sell...
Severe brain fog with possible MCTD
I finally found a rheumatologist after 4 years of issues who ask the right questions and took the time to go through my test history....
Frustrated and continuing to look for diagnosis
Hello, I am a 29 year old female that has been struggling to get answers for why my health is declining. I was initially diagnosed...
Currently being worked up to rule out Myasthenia Graves vs. SPS.
What if I’m seronegative. That would put me back at square one. But she did prescribe me Baclofen. I’m waiting for labs to come in...
Autoimmune - Advice?
So my therapist recently suggested that I (23f) attempt to connect with fellow people dealing with chronic illness (particularly in the realm of autoimmune diseases/disorders)...
Complex Patient seeking answers
Hi! I’m new to the group so thought I’d introduce myself and my story. I tried to do the short version but it is a...
Feeling down but hopeful
Im desperate and looking for advice on doctors and what tests should I have my doctor add to the normal list. I’m 44 female I...
Connect