Autoimmune Diseases Support Group

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Comments (313)

Just an idea - I have post exercise malaise and tremendous amounts of painful inflammation from...

https://connect.mayoclinic.org/comment/1409602/

Discussion: Fatigue , and exercise.

Support Group: Autoimmune Diseases

Posted: Oct 6, 2025

Welcome, @regeanna. Thank you for re-initiating this discussion. Let me introduce you to a few active...

https://connect.mayoclinic.org/comment/56449/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Mar 25, 2017

My daughter has been diagnosed with Mctd and ILD. She also has Reynolds and is now...

https://connect.mayoclinic.org/comment/795584/

Discussion: MCTD, Fibromyalgia, Reynauds

Support Group: Autoimmune Diseases

Posted: Jan 12, 2023

I was diagnosed with MCTD in Feb 2021. It started with me feeling like my hands...

https://connect.mayoclinic.org/comment/701070/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Apr 21, 2022

I've tested negative once for RA even though my grandmother had it. I think I probably...

https://connect.mayoclinic.org/comment/1263480/

Discussion: New Rheumatologist- How do I make the most of this visit?

Support Group: Autoimmune Diseases

Posted: Mar 21, 2025

Hi all! Thanks for all the great info shared here! While awaiting diagnosis on what I...

https://connect.mayoclinic.org/comment/1494791/

Discussion: AIP diet for autoimmune illnesses

Support Group: Autoimmune Diseases

Posted: Jan 31 9:30am

It started many years ago with an enlarged parotid gland. Then aching in my hands and...

https://connect.mayoclinic.org/comment/658074/

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Nov 28, 2021

I have had fibromyaglia and questionable Lupus or MCTD. The summers are brutal with the high...

https://connect.mayoclinic.org/comment/931765/

Discussion: MCTD, Fibromyalgia, and Hot Weather - Oh My!

Support Group: Autoimmune Diseases

Posted: Sep 18, 2023

Hi @charlottet, I don't have any experience with Mixed Connective Tissue Disease but there are quite...

https://connect.mayoclinic.org/comment/1133508/

Discussion: Tips for Getting a Proper Diagnosis of an Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Aug 30, 2024

I was only able to find a Scleraderma group when I started with this and learned...

https://connect.mayoclinic.org/comment/840543/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Apr 9, 2023

I presented with Raynauds (Hands and feet), swollen hands/feet, general malaise in addition to being very...

https://connect.mayoclinic.org/comment/963744/

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Nov 12, 2023

@loross You are right- most doctors don’t understand brain fog. The last few years I have...

https://connect.mayoclinic.org/comment/807302/

Discussion: Severe brain fog with possible MCTD

Support Group: Autoimmune Diseases

Posted: Feb 6, 2023

@elisabeth007 Thanks for your continued support. I believe you are correct about the "red tape" and...

https://connect.mayoclinic.org/comment/1092573/

Discussion: Help with understanding test results

Support Group: Autoimmune Diseases

Posted: Jun 23, 2024

I had a positive ANA, and followup ENA showed Mixed Connective Tissue Disease which contains Lupus...

https://connect.mayoclinic.org/comment/959244/

Discussion: Undifferentiated Connective Tissue Disease turning into Lupus?

Support Group: Autoimmune Diseases

Posted: Nov 5, 2023

@dkelban Good afternoon and welcome to Mayo Clinic Connect! We’re glad you found us. I, too,...

https://connect.mayoclinic.org/comment/1125028/

Discussion: Fatigue , and exercise.

Support Group: Autoimmune Diseases

Posted: Aug 16, 2024

When I was first diagnosed with MCTD the Raynaud’s was severe in my hands, feet and...

https://connect.mayoclinic.org/comment/715269/

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jun 7, 2022

Just because you have MCTD doesn’t mean you can’t get sick, actually you are more likely...

https://connect.mayoclinic.org/comment/1229614/

Discussion: Anyone become ill with a cold or flu when you already have MCTD?

Support Group: Autoimmune Diseases

Posted: Feb 4, 2025

@reagan1mc It must have been really frightening to find yourself paralyzed. How fortunate that you have...

https://connect.mayoclinic.org/comment/170422/

Discussion: Connective tissue auto immune

Support Group: Autoimmune Diseases

Posted: Dec 29, 2017

Hello @krcc I’m so sorry that you’re still having a difficult time. Are you seeing specialists...

https://connect.mayoclinic.org/comment/737117/

Discussion: Recently diagnosed with autoimmune disease - looking for support

Support Group: Autoimmune Diseases

Posted: Aug 13, 2022

I have mctd my Rhumatologist put me on Simponi Aria It seems to be working most...

https://connect.mayoclinic.org/comment/56496/

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Jan 24, 2018

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