Autoimmune Diseases Support Group

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Hello @linda2114, Welcome to Connect, an online community where patients and caregivers share their experiences, find...

https://connect.mayoclinic.org/comment/611185/

Discussion: Can't get a definitive diagnosis

Support Group: Autoimmune Diseases

Posted: Jun 24, 2021

@oldkarl You have certainly been dealt with some difficult diagnoses. Have you developed any coping mechanisms...

https://connect.mayoclinic.org/comment/609393/

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jun 16, 2021

Hello @ellen307 I can imagine that this must have felt like a "rocky road" as you...

https://connect.mayoclinic.org/comment/607516/

Discussion: Myasthenia Gravis with Type 2 Diabetes

Support Group: Autoimmune Diseases

Posted: Jun 7, 2021

POSTED BY SOMEONE IN NEUROPATHY GROUP: I found this not too long ago. It's called the...

https://connect.mayoclinic.org/comment/606638/

Discussion: For anyone who can't find a diagnosis: Undiagnosed Disease Network

Support Group: Autoimmune Diseases

Posted: Jun 3, 2021

Hello @change25, I hope that your doctor does find a diagnostic label to put on all...

https://connect.mayoclinic.org/comment/600367/

Discussion: At a loss, multiple consultations still no answer...any idea?

Support Group: Autoimmune Diseases

Posted: May 8, 2021

I have been dealing with health issues for quite a long time. In November I had...

https://connect.mayoclinic.org/comment/182573/

Discussion: Food for Thought - Why so many Autoimmune Diseases?

Support Group: Autoimmune Diseases

Posted: Mar 27, 2021

Hello @welcome1, Welcome to Mayo Clinic Connect. I know it must be difficult having to wait...

https://connect.mayoclinic.org/comment/167629/

Discussion: Autoimmune hepatitis*

Support Group: Autoimmune Diseases

Posted: Mar 3, 2021

Hello @jamieray6812, I know it must really be difficult trying to find answers when you have...

https://connect.mayoclinic.org/comment/292534/

Discussion: Antisynthetase Syndrome: Anyone else?

Support Group: Autoimmune Diseases

Posted: Feb 18, 2021

Sue, I have several autoimmune diseases that were all difficult to diagnose and treat. And, the...

https://connect.mayoclinic.org/comment/87641/

Discussion: Undiagnosed and frustrated: RA? Lupus?

Support Group: Autoimmune Diseases

Posted: Jan 1, 2021

Hello @modens, Welcome to Mayo Clinic Connect. I know it must be difficult to cope with...

https://connect.mayoclinic.org/comment/317005/

Discussion: Cryoglobulinemia not caused by hepatitis or lymphoma?

Support Group: Autoimmune Diseases

Posted: Jul 23, 2020

@dorrielee In my family, we have a bundle of DNA issues, including Lupus, multiple myeloma, LECT-2,...

https://connect.mayoclinic.org/comment/313233/

Discussion: Lupus diagnosis need help

Support Group: Autoimmune Diseases

Posted: Jun 12, 2020

@learningstudent I agree with @funcountess. If the specialists you have seen do not have an answer...

https://connect.mayoclinic.org/comment/309469/

Discussion: What causes the loss of mucus membrane?

Support Group: Diabetes & Endocrine System

Posted: May 18, 2020

This is the first I’d ever heard of this, but a quick internet search helped me...

https://connect.mayoclinic.org/comment/1281729/

Discussion: My hair is twisted under my scalp…it moves down my body coming out

Support Group: Autoimmune Diseases

Posted: Apr 14 12:41pm

Hi @lindaray. You’ve certainly been through the wringer with little ‘ol tooth #3 with a new...

https://connect.mayoclinic.org/comment/1220753/

Discussion: crown is making saliva thick and dried. Feels like peeling.

Support Group: Autoimmune Diseases

Posted: Jan 24 4:03pm

I feel bad for you...you have it much worse than me (for now). Exercise is recommended,...

https://connect.mayoclinic.org/comment/1219865/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Jan 23 2:29pm

Hi there, I was diagnosed with secondary adrenal insufficiency, ACTH deficiency, at Mayo endocrinology. I do...

https://connect.mayoclinic.org/comment/852333/

Discussion: Adrenaline-like surges all night long

Support Group: Autoimmune Diseases

Posted: May 1, 2023

I was diagnosed with sjogren's and fibromyalgia about 3 years ago but experienced symptoms much longer...

https://connect.mayoclinic.org/comment/1247175/

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 28 8:58am

I also have fibromyalgia and other autoimmune diseases. Severe fatigue is a symptom, and you can...

https://connect.mayoclinic.org/comment/888803/

Discussion: Falling Asleep While Eating Lunch!

Support Group: Autoimmune Diseases

Posted: Jul 2, 2023

I had those as well before I was diagnosed with Hashimoto's Disease. Diagnosing it is often...

https://connect.mayoclinic.org/comment/187907/

Discussion: Thyroid? Or something else? Constant internal shakiness

Support Group: Diabetes & Endocrine System

Posted: Aug 3, 2019

Hi @cinnamon215 -- I found a few links that might be helpful for members with a...

https://connect.mayoclinic.org/comment/210378/

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Apr 22, 2019

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