Autoimmune Diseases Support Group

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Comments (543)

I was diagnosed with a spasmodic dysphonia some 15 years ago. For 9 years I had...

https://connect.mayoclinic.org/comment/932528/

Discussion: Speech Difficulty (dysarthria) - Autoimmune Cerebellar Ataxia

Support Group: Brain & Nervous System

Posted: Sep 19, 2023

@amykcpa Unfortunately, you’re caught in a nebulous place of symptoms but no diagnosis. You may not...

https://connect.mayoclinic.org/comment/906580/

Discussion: Widespread Body Pain and High ANA

Support Group: Autoimmune Diseases

Posted: Aug 2, 2023

Hello..... I am not new to Connect, as I'm a breast cancer survivor and Connect was...

https://connect.mayoclinic.org/comment/905812/

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 1, 2023

Hi @menel. Thanks so much for your reply. I do have a few questions for you:...

https://connect.mayoclinic.org/comment/898623/

Discussion: Lesions on the brain and autoimmune disease

Support Group: Autoimmune Diseases

Posted: Jul 19, 2023

@goldacharma Hello, I would be glad to answer any questions relating to my symptoms, diagnosis and...

https://connect.mayoclinic.org/comment/893395/

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 10, 2023

I also have fibromyalgia and other autoimmune diseases. Severe fatigue is a symptom, and you can...

https://connect.mayoclinic.org/comment/888803/

Discussion: Falling Asleep While Eating Lunch!

Support Group: Autoimmune Diseases

Posted: Jul 2, 2023

I am 76 years old and was diagnosed with mononucleosis in October '22 after my complaints...

https://connect.mayoclinic.org/comment/866094/

Discussion: Falling asleep eating breakfast, lunch and dinner

Support Group: Autoimmune Diseases

Posted: May 24, 2023

It isn't unusual to be misdiagnosed at all. Some people go for years to dr's without...

https://connect.mayoclinic.org/comment/863702/

Discussion: Diagnosed with Chronic Lyme Disease: Anyone else?

Support Group: Infectious Diseases

Posted: May 21, 2023

Have you had a positive ANA? It totally sounds like you are having autoimmune-y symptoms. And...

https://connect.mayoclinic.org/comment/862250/

Discussion: Autoimmune symptoms continuing for 12 months post Covid - no answers

Support Group: Autoimmune Diseases

Posted: May 18, 2023

@SusanEllen66 It must be so difficult and awkward to suddenly fall asleep. I’m so sorry. My...

https://connect.mayoclinic.org/comment/852787/

Discussion: Falling Asleep While Eating Lunch!

Support Group: Autoimmune Diseases

Posted: May 1, 2023

Hi there, I was diagnosed with secondary adrenal insufficiency, ACTH deficiency, at Mayo endocrinology. I do...

https://connect.mayoclinic.org/comment/852333/

Discussion: Adrenaline-like surges all night long

Support Group: Autoimmune Diseases

Posted: May 1, 2023

Diagnosed with R/A about two years ago, it has gone to my lungs causing scar tissue...

https://connect.mayoclinic.org/comment/849779/

Discussion: My wife has autoimmune disease. She has inflammation in legs and arms.

Support Group: Autoimmune Diseases

Posted: Apr 26, 2023

Hi, I am so glad to have found this support group! I was diagnosed with MCTD...

https://connect.mayoclinic.org/comment/839860/

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Apr 8, 2023

LEMS is also related to autoimmune diseases, no cancer involved. I have several autoimmunes and inexplicably...

https://connect.mayoclinic.org/comment/824149/

Discussion: Any LEMS (Lambert-Eaton Myasthenic Syndrome) people out there?

Support Group: Autoimmune Diseases

Posted: Mar 10, 2023

Hi. Kerry here. Just came back today from first visit with what i have to say...

https://connect.mayoclinic.org/comment/809575/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 10, 2023

Good morning.Very sorry to hear about your diagnosis but I have APS five years now.Of course...

https://connect.mayoclinic.org/comment/802172/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Jan 27, 2023

Perhaps you could ask the rheum for further testing, there are so many lab tests they...

https://connect.mayoclinic.org/comment/792273/

Discussion: Trying to find answers and right diagnosis and Dr

Support Group: Autoimmune Diseases

Posted: Jan 4, 2023

I am glad that Lichen Sclerosis is getting some visibility as a result of patients sharing...

https://connect.mayoclinic.org/comment/769673/

Discussion: Lichen Sclerosus: Any other women dealing with this disease?

Support Group: Women's Health

Posted: Nov 5, 2022

I was diagnosed with MG at 21 and am now 69. For decades I had very...

https://connect.mayoclinic.org/comment/744858/

Discussion: Myasthenia gravis - can it come back?

Support Group: Autoimmune Diseases

Posted: Sep 3, 2022

@agirlthing1977, @nedradenise, @aspine, and all...I've had double vision for many years, maybe 20-25...It's no fun and...

https://connect.mayoclinic.org/comment/736559/

Discussion: Double Vision and Autoimmune Diseases like MG: Can anyone relate?

Support Group: Autoimmune Diseases

Posted: Aug 12, 2022

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