Autoimmune Diseases Support Group

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Comments (505)

@llmartin I can sympathize! I’ve had rheumatoid arthritis for 30 years. Over the last three years,...

https://connect.mayoclinic.org/comment/1516455/

Discussion: Rheumatoid arthritis: How do you cope day to day?

Support Group: Autoimmune Diseases

Posted: Feb 28 10:37am

@findbetter I have heard this song before. I have been fighting a low-grade fever from infection...

https://connect.mayoclinic.org/comment/165087/

Discussion: Frequent unexplained fevers

Support Group: Autoimmune Diseases

Posted: Oct 10, 2017

Hi, I'm new here and grateful for the opportunity to connect with other's like you that...

https://connect.mayoclinic.org/comment/1040301/

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Mar 25, 2024

Hi, I'm Deborah. I have primary sjogrens and degenerative arthritis. I have been on hydroxychloroquine for...

https://connect.mayoclinic.org/comment/1178557/

Discussion: Sjogren's likely - how to prepare for rheumatologist

Support Group: Autoimmune Diseases

Posted: Nov 23, 2024

sorry, computer got hung up. the following is what i have: rheumatoid arthritis, psoriatic arthritis, psjogrens,...

https://connect.mayoclinic.org/comment/108590/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Aug 2, 2017

My son has APS since 2007. He has been on warfarin since 2007 with exception of...

https://connect.mayoclinic.org/comment/1064962/

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: May 9, 2024

I’m sorry you’re suffering. I have hypothyroidism and hashimoto’s disease. My TSH when tested was off...

https://connect.mayoclinic.org/comment/1038193/

Discussion: High levels of TPO Antibodies - Do I definitely have Hashimoto's?

Support Group: Autoimmune Diseases

Posted: Mar 22, 2024

Hello there. Gosh you are struggling aren’t you. Have you been checked for Polymyalgia Rheumatica. I...

https://connect.mayoclinic.org/comment/765171/

Discussion: joint pain / synovitis?

Support Group: Bones, Joints & Muscles

Posted: Oct 25, 2022

Hi, I’m new here too! I’m 58 and over the past 10 years I’ve been diagnosed...

https://connect.mayoclinic.org/comment/1437255/

Discussion: Multiple Auto-immune Diseases ?

Support Group: Autoimmune Diseases

Posted: Nov 12, 2025

You're definitely not alone! I've felt alone as of late but then remembered that Mayo has...

https://connect.mayoclinic.org/comment/1360708/

Discussion: EMG - "MILD AXONAL NEUROPATHY"

Support Group: Autoimmune Diseases

Posted: Jul 31, 2025

@johnwburns Hi, John. I have been diagnosed with a bunch of stuff, including Sjogren's and SICCA,...

https://connect.mayoclinic.org/comment/107498/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: Feb 11, 2018

Hi— I’m new to Mayo! My Neurologist (migraines) was the most helpful to me with my...

https://connect.mayoclinic.org/comment/1227586/

Discussion: Help with Chronic Fatigue Syndrome

Support Group: Just Want to Talk

Posted: Feb 2, 2025

Hello my mom is suffering with rheumatoid arthritis. Her disease was diagnosed in 2012. But there...

https://connect.mayoclinic.org/comment/145414/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 12, 2019

Thanks very much. Yes, I heard about Amyloidosis through Teri Cochrane, CN,CCP (Beyond Nutrition) as this...

https://connect.mayoclinic.org/comment/149852/

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 17, 2017

I have rheumatoid arthritis (and Parkinson's) and eliminated gluten and dairy a few years ago. Although...

https://connect.mayoclinic.org/comment/755845/

Discussion: Anyone else gone gluten and dairy free to help improve symptoms

Support Group: Autoimmune Diseases

Posted: Oct 1, 2022

@suecutuli You are not alone. I have also had positive ANA and many symptoms but dismissed...

https://connect.mayoclinic.org/comment/1311718/

Discussion: I have an ANA of positive speckled at 1:80 .

Support Group: Autoimmune Diseases

Posted: May 24, 2025

Sorry got interrupted. She should be checked for ALL treatable causes of peripheral neuropathy in case...

https://connect.mayoclinic.org/comment/1238795/

Discussion: What are the next steps to take after IVIG has not worked?

Support Group: Autoimmune Diseases

Posted: Feb 17, 2025

I stay freezing since my neuropathy has became worse. Total hysterectomy in 2019 onHRT hormones (...

https://connect.mayoclinic.org/comment/1191191/

Discussion: Can’t regulate body temperature.

Support Group: Autoimmune Diseases

Posted: Dec 15, 2024

You may have something different from me. But, I don’t recall all my tests. I do...

https://connect.mayoclinic.org/comment/1096531/

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jun 29, 2024

All of my symptoms point to sero negative rheumatoid arthritis (or also called palindromic rheumatism). I...

https://connect.mayoclinic.org/comment/145548/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 30, 2019

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