Autoimmune Diseases Support Group

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Comments (544)

Do you know if you have had an HLA B27 blood test? Many of your symptoms...

https://connect.mayoclinic.org/comment/225263/

Discussion: Autoimmune? Undiagnosed and don’t know where to go next

Support Group: Autoimmune Diseases

Posted: Jun 28, 2019

wholly cow, this discussion was awhile ago. I have officially been diagnosed with ocular MG, but...

https://connect.mayoclinic.org/comment/102455/

Discussion: Myasthenia Gravis: Share your treatment journey

Support Group: Autoimmune Diseases

Posted: Feb 12, 2019

Hi John and thanks for your recent reply. I was waiting to get the results of...

https://connect.mayoclinic.org/comment/102454/

Discussion: Myasthenia Gravis: Share your treatment journey

Support Group: Autoimmune Diseases

Posted: Feb 9, 2019

@sundance6 you are right, It is very difficult to get a correct diagnosis for an autoimmune...

https://connect.mayoclinic.org/comment/239832/

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Feb 5, 2019

How nice that you posted a photo. It looks like SD when we have snow although...

https://connect.mayoclinic.org/comment/234718/

Discussion: It's been a year and a half, still undiagnosed. Need some help.

Support Group: Autoimmune Diseases

Posted: Dec 13, 2018

@moxie928 I'm gluten free. I had to diagnose that problem 18 years ago when my doctor...

https://connect.mayoclinic.org/comment/108693/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Dec 4, 2018

Hello @toomanyoars, welcome to Connect. I love your profile picture! I'm sorry you're having to go...

https://connect.mayoclinic.org/comment/221438/

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Oct 25, 2018

I was having my normal problems with my ammonia levels high and the doctor gave me...

https://connect.mayoclinic.org/comment/218689/

Discussion: Doctors mistake watch out.

Support Group: Autoimmune Diseases

Posted: Oct 19, 2018

May 8th, 2018 Thank you for your information. Hopefully it will bear fruit so my life...

https://connect.mayoclinic.org/comment/107628/

Discussion: Autoimmune Diseases and Fatigue

Support Group: Autoimmune Diseases

Posted: May 8, 2018

Hello @carpe_bean. I have never used this site before & just joined. I just wanted to...

https://connect.mayoclinic.org/comment/167783/

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Mar 27, 2018

Hello @lisamarie81, Welcome to Mayo Connect. I'm glad you found us. Thank you for sharing your...

https://connect.mayoclinic.org/comment/186218/

Discussion: Help appreciated - multiple symptoms, auto-immune always high

Support Group: Autoimmune Diseases

Posted: Feb 21, 2018

Hello @techi, It sounds like you are having such a frustrating experience, and I completely understand...

https://connect.mayoclinic.org/comment/182564/

Discussion: Food for Thought - Why so many Autoimmune Diseases?

Support Group: Autoimmune Diseases

Posted: Feb 20, 2018

Dear @fox940, I am so so sorry you are going through this long excursion of pain...

https://connect.mayoclinic.org/comment/175706/

Discussion: Surgery caused autoimmune disease or Drug Induced Lupus

Support Group: Autoimmune Diseases

Posted: Nov 28, 2017

Hi @aathins, I'd like to add my welcome, and thank you for joining us here on...

https://connect.mayoclinic.org/comment/173908/

Discussion: Devic's Disease/Neuromyelitis Optica (NMO)

Support Group: Autoimmune Diseases

Posted: Nov 6, 2017

Hi Amy, I think you are absolutely correct when you say the gut controls 80% of...

https://connect.mayoclinic.org/comment/137312/

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: May 17, 2017

@brie87144 @brie87144 As a non-physician, I shall give you my opinion, but keep in mind that...

https://connect.mayoclinic.org/comment/108533/

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Aug 7, 2016

Hi @earljohnson5030 - in 2007 I was diagnosed with polymygelia rheumatica and put on 20 mg...

https://connect.mayoclinic.org/comment/102051/

Discussion: Looking for info on medications for Bullous pemphigoid

Support Group: Autoimmune Diseases

Posted: May 10, 2016

I have extreme sensitivity in one of my hands so bad that I have to wear...

https://connect.mayoclinic.org/comment/1456216/

Discussion: skin is extremely sensitive to touch. it. started after Covid

Support Group: Autoimmune Diseases

Posted: Dec 8, 2025

@bbmayo The socialization part…it IS a struggle, you are so right. It’s hard for women to...

https://connect.mayoclinic.org/comment/1452749/

Discussion: Has anyone experienced repeated infections while taking SKYRIZI

Support Group: Autoimmune Diseases

Posted: Dec 4, 2025

@mark1952 Prednisone 15 mg daily is too low a dose for suspected GCA. The recommended starting...

https://connect.mayoclinic.org/comment/1445116/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 22, 2025

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