Zero appetite, not getting adequate nutrition
I have been "diagnosed" with a mystery AI polyneuropathy. It was thought primarily some kind of motor neuron disease, but then came awful sensory involvement, and what appears to be autonomic involvement as well, based on GI issues. The pain, bloating, nausea are bad enough, but I have not eaten normally for years now. I have less than no appetite. It is dead. Eating is always forced, never enjoyable, and difficult to undertake.(I used to love cooking and everything around healthful eating) I have been trying to eat an AI paleo diet per Terry Wahls, but it calls for massive amounts of veggies and animal protein, which I just can't get into me. I've tried to contact her directly but of course, no money, no information. I carry 30 pounds less than my pre-illness healthy, fit, muscular self. Now I'm skin draped over shrinking muscle. I don't know what to do or where to turn. My doc has offered nothing though I always mention my sinking weight. Obesity, that gets their attention. But overt malnutrition, not so much. Of course, I figure my disabling fatigue would be improved if I could eat. Has anyone ever had and/or resolved this struggle?