Mayo Clinic Connect
My husband had his transplant July 7. We are doing a weekend getaway next weekend and I'm just wondering what things I need to remember besides not eating the hotel free hot breakfast and bring the sunscreen.
Liked by Rosemary, Volunteer Mentor
@jodeej I would take alot of water and safe drinks . The phone in case someone wants to just say thanks for the inspiration. God bless jerrydrennan
Liked by Rosemary, Volunteer Mentor, Colleen Young, Connect Director, jodeej, Ginger, Volunteer Mentor
Always carry hand cleaner! Slippers or flip flops, don't go barefoot.
Liked by jodeej, Ginger, Volunteer Mentor
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@rosemarya I keep hand sanitizer in my purse! I didn't think about slippers or flip flops. I'm thinking about taking sanitizing wipes to wipe down the remote and bathroom counter. Is that excessive? Lol
Liked by Rosemary, Volunteer Mentor, Ginger, Volunteer Mentor
@jerrydrennan good ideas! I always have my phone Incase someone wants to chat!
At your stage in post transplant, I say , "Go for it!"
I have a small travel size Lysol spray that I take in my suitcase. It comes in handy when I feel the need for extra safety.
Depending on the situation (an extended stay), I have been known to take a hand sanitizer with the pump dispenser, and kept it in a convenient place in the our motel room.
I encourage your husband to also carry his own sanitizer. Men are so lucky to have pockets in their pants!!!
And of course, take the meds on schedule – a pocket pill box and a bottle of water if you are on the road!
Jodee, Did you get a packet of information from the transplant dept when you were discharged? I think that there is a section about travel in it. I will hunt for mine after while and see what I find. In the meantime, I look forward to hearing from our other members:-)
Liked by Colleen Young, Connect Director, jodeej, jolinda, Ginger, Volunteer Mentor
Here are a few suggested items:
1. List of phone numbers transplant clinic, etc. in case of emergency. If going far out of town the location of a near by transplant clinic where you will be located.
2. Masks for any crowded situations or when someone is coughing or sneezing near by and you can't relocate;
3. List of over the counter medications allowed if you should start feeling like your coming down with something;
4. Letter from your transplant clinic explaining your a heart transplant patient and traveling with medications (especially if some are liquids);
5. Portable urine container and a few depends, just in case. 🙂
6. Be mindful of eating out concerns: Try to not eat from the buffet, no lettuce or no undercooked eggs, seafood or meat.
Good luck on the trip!
Liked by Rosemary, Volunteer Mentor, Colleen Young, Connect Director, JK, alumni mentor, jodeej ... see all
I believe our donors helped us regain our health so we can live our best lives! My husband and I travel a lot (even to less than developed countries) and I have always been fine. Here are a few tips…
You can eat breakfast at most "make your own" buffets just choose wisely like toast or a waffle you cooked or anything sealed when you are in this country (yogurt, syrup, butter pats, a banana).
I agree with @rosemarya those little Lysols from the travel section go with us everytime. I hit the doorknobs, remote, the bathroom, pretty much the whole thing.
I travel with my own pillow – but I'm just a baby about it. 🙂
In resturant follow the transplant teams advice on well cooked food etc. Remember the dirtiest thing is THE MENU. yuck!
Handsanitizers are with with us constantly. Nothing beats hot soapy water.
If you are even going out of the country call the transplant nurses to find out what shots you should have, the transplant nurses know EVERYTHING or they'll dig untill they find you an answer. Love my nurses at Mayo.
We started traveling internationally when I was 5 months post transplant (kidney) with the blessing of the transplant team. We both wore masks in the airports and on the plane,
I always drink water bottles that were packed in the United States or Canada.
That's what I can think of for now. Go live your beautiful new life!
Liked by Rosemary, Volunteer Mentor, Scott, JK, alumni mentor, jodeej ... see all
@rosemarya I'm sure we did, I'll have to look for it. I need to get some masks for just Incase purposes, but I don't know if I'll be able to get my husband to wear one. We've got pill boxes and our water bottles go with us everywhere!
Hey @jasgto welcome to Connect. I see that this was your first post. Nice entry into the community with such great information.
We look forward to getting to know more about your. Are you a heart transplant recipient? I invite you to tell us your story in this thread:
– This and That and Talk – My Transplant https://connect.mayoclinic.org/discussion/this-and-that-and-talk-my-transpant/
Liked by Rosemary, Volunteer Mentor, jodeej
Hi Colleen, Not much to tell except that I got my heart transplant later in life and have been very fortunate with great support. When I hear what others have gone through (and are going through) I know I have been blessed with just the usually problems from immunosuppressants and old age. 🙂 John
You must be a real fighter to have gotten through heart transplant, not to mention an incredible care team. If others join our group who have gone through the same battle can we ask you to join in the conversation? Wow a heart transplant that's so amazing, what a blessing.
Liked by Rosemary, Volunteer Mentor, Colleen Young, Connect Director, jodeej
Hi John. I want to welcome you to Connect. I am happy to hear that you are doing well after your heart transplant. I invite you to be a part of our transplant discussions as we share our experiences and support each other.
Thanks for posting your list of travel suggestions. Have you been able to do much traveling since your transplant?
If you are traveling to another time zone, and will be there for an extended period (couple of weeks), remember that your meds are taken 12 hrs apart. Keep your watch to home local time and take them based on that. In addition to the others' suggestions, take along some latex gloves, and basic first aid kit that includes allowed pain relievers and upset tummy relievers. Yes to the medication list, contact numbers for Dr's. And most of all, enjoy yourself! You've earned It!
I will nudge my medicine time by intervals before my trip if it is in another time zone so that is works out to be on my regular time of day sequence. (8AM; 8PM). I discussed this with my transplant dept. and it works for me. But one time I nudged it in the wrong direction! Boy was that ever a mess to figure out – won't do that again!
Of course, I have to readjust when I return home.
FYI – I just returned home from our annual trip and when we collected our "Hold" mail, there was a Prograf kit waiting for me!
Happy and Safe Travels to all!
We have been traveling some but all by car. I finally got the courage to make plane reservations to see my daughter across country only to have the fires out west result in air advisories and had to cancel the trip. Hopefully in the spring we will try it again.
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