Transplant anti-rejection medications. What's your advice?
Weight gain? Hair loss? Headaches? Never missed a beat? What has your experience with transplant medications been? Have you developed a methods to deal with a side-effect? Have your meds changed at all over time? What advice do you have for others in our community that may make their experience better?
Interested in more discussions like this? Go to the Transplants Support Group.
Hi,
First of all Thank you for the “welcome”. Yes I’m new here.
I had these bruises before and I was told could be because low platelets (it was around 90) After my liver transplante it went up to normal (250) but I’m still having it mainly in my arms. I heard that could be from the prednisone (steroids) but I stop taking it a month ago.
And now I was told could be a skin problem, perhaps because the anti-rejection meds (low immune system)?!?
it was the first time that I read an explanation for the problem - púrpura.
It was very helpful!
@desouza, Congratulations an your 5 month old liver transplant. I don't know if our paths have crossed, but I want to be sure to extend a welcome to Mayo Connect.
I have a liver and a kidney transplant and have not experienced purpura, and wonder of it might be related to medications as your seems to suspect with the medication change. Did you have this before transplant?
I had a liver transplant 5 months ago, so the beginning I was on Tacrolimus which I had a really bad reaction on my Kidneys(Creatinine, bicarbonate etc..) after a month my doctor switch it to everolimus , I had “ mild side effect” and I didn’t want to change again for 2 reasons:
-1) it’s better for who had cancer and 2) I was scare to run out of options.
I guess all give you some side effects and we have to see which ones you can live with
Thank you for your information. I also have the “púrpura” and I didn’t know what it was. My doctor told me it could be low platelets , but now after liver transplant my platelets are normal and I’m still having my arms with these bruises . I already order the DerMend!
That is Terrific, You a have good match !
I am at 1.5mg (1 am, .5mg pm) my wife was the donor.
Thanks JK
Hi all transplant members. Many of you have had the pleasure of crossing virtual paths with @athenalee. Today Athena is our featured Member Spotlight. I think you'll enjoy @rosemarya's interview with Athena and getting to know more about how she finds balance, enjoys small town living and dancing, cooking and life-long learning. Also note the cameo appearances of @loribmt @hello1234 @estrada53 and others.
– "Learning never exhausts the mind”: Meet @athenalee https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/learning-never-exhausts-the-mind-meet-athenalee/
@nimalw I was on prednisone for about 4.5 years and everything was very stable. Plus, it was a very small dose so the risk of taking me off it was minimal. The dose had been higher initially but over time it was reduced.
JK
Thank you Rosemary. Sickness is a lonely journey no matter how much family around you .
Thanks Anthea.