Transplant anti-rejection medications. What's your advice?

Dear Estrada,
Talk to your docs , Tacrolimus
Had the same effects on my kidneys and creatinine #’s
They agreed to switch me to
Everolimus which is prescribed for kidney Transplants…… good news, my GFR # held steady, my kidney numbers were/are fine’. &
Creatinine #’s are steady.

Ps , I was told to never do gardening due to the possible
Fungal Diseases | Fungal | CDC
Valley Fever (Coccidioidomycosis) Valley fever, also called coccidioidomycosis, is an infection caused by the fungus Coccidioides. The fungus is known to live in the soil in the different areas in the USA
There are tests for it

Beracha, thank you for the info. I am a year post transplant and still dealing with tacro med ups and downs. And it greatly increased my anxiety. I am now at 2.25mg with levels at 5.6 and I do not want to go any higher in dose. I am also asking to talk with the CPMC psychiatrist to find a med that is ok for my kidney and good to reduce anxiety and depression that have come on since the surgery. Anyone else on anti-anxiety or anti-depressants since the surgery? Which meds are recommended? Hope you feel better and stabilize soon. I have lost hair too and it remains thin. I think my life is just different since the surgery and God is taking care of it all for my new life. I trust God and have deepened my faith to get me through and be grateful. Take care, BB

Hi. I see ur post is older, are u doing ok with meds? I started on tacrolimus and have been as high as level was 13. I felt terrible. It was raised and lowered according to my numbers. Yes. Same side effects. I take imitrex for migraines, Zofran for nausea, med for vertigo,etc. Unfortunately we cannot be non compliant with our meds. I do have meds for my side effects. Hair loss is just about driving me crazy. I am starting a hair clinic at my dermatologist. Feel free to ask me anything. Good luck.

@janni1, Overnight surgery... that is interesting (and probably confusing). So, which date is in your transplant records? I never thought about overnight procedure. Mine was complete before midnight. Janni1, I like to suggest that patients honor their transplant anniversary date and I do hope that you will be feeling well enough to take a moment to relax and enjoy a peaceful moment.
I had a simultaneous liver and kidney transplant 1n 2009 at mayo Rochester, and i was very 'sick' and on dialysis before my transplant. I honestly don't know which symptoms were related to liver failure, and which were related to acute kidney failure. I hope that yoy feel better than I did.❤️
How are you feeling as you wait for your kidney transplant? Are you needing dialysis?

Hi how much do u take of your myfortic Prograf. after 11 years😊

Hi u had a LTP and now need kidney is that what I am understanding?

I am 2yrs post liver transplant on 13/14th January...overnight surgery.
Am now waiting for a kidney transplant.

@myfablife Im on Prograf - and have been since my kidney transplant - and had been on Imuran until this switch to Myfortic. At the time that they changed me to Myfortic, I also doubled my dose of amalodipine for blood pressure. Turns out the amalodipine was causing the swelling, etc. I have gone back to my old dosage and am hoping this will get me back to normal - whatever that is!

Did you have a kidney or LTP? Also interested after 11 yrs. How much meds do u have to take. I am on celcept Prograf.

I had been on Imuran since my transplant - 11 years ago - but switched to Myfortic 7 weeks ago. I also take Prograf. The reason for the switch was I was having so many skin cancers and Mohs procedures every year, get worse as the years went on. I think I’m having weird side effects: I’m feeling very spacey, having trouble finding words; my feet and ankles are swelling by mid afternoon; overall lethargy. Has anyone else experienced anything like this? I have sent a message to my team. Thanks and happy holidays!