Transplant anti-rejection medications. What's your advice?

Hi any advice on getting better nights sleep for those on prednisone?? Does cellcept and tacrolimus also effect sleep ?? I find I sleep well a few nights following no sleep some nights really annoying. I have been told its the Prednisone that causes sleeplessness
Any suggestions most welcome for those battling the same problem and have over come it ? I take the Prednisone in the morning at 9.30am .

A creatinine of 1.0 is excellent! Mine goes up and down between 1.4 and 1.7. My latest BUN is 31. But my doctor is fine with that. My problem is I don’t always drink enough water. They want 8-10 cups daily. My creatinine was never under 2.0 with my first transplant in 1994. And it lasted almost 25 years. So you never know. Everyone reacts differently to the transplant and the drugs.

Good morning @nimalw,

I’d like to invite you to our Transplant Culinary Arts Webinar Series -
https://connect.mayoclinic.org/discussion/transplant-culinary-arts-zoom-sessions/?pg=1#comment-635131
We discuss diet, health concerns, and cooking. Our next event is January 6. The announcement is posted in the discussion.

Also, here’s a blog I wrote that you might find informative on tips for transplant diet and nutrition - https://connect.mayoclinic.org/blog/transplant/newsfeed-post/whats-on-my-plate-a-transplant-recipient-perspective/

There are other blogs and discussions on nutrition and diet for transplant recipients. You can do a search and you’ll find a list.

Athena

Hi . 25 yrs with your 1st Transplant. That's amazing. Any advice on deit ?

A creatinine of 1.0 is excellent! Mine goes up and down between 1.4 and 1.7. My latest BUN is 31. But my doctor is fine with that. My problem is I don’t always drink enough water. They want 8-10 cups daily. My creatinine was never under 2.0 with my first transplant in 1994. And it lasted almost 25 years. So you never know. Everyone reacts differently to the transplant and the drugs.

Hi . I take cellcept 2mg . And prednisone 10mg and tacrolimus 4mg daily . Prednisone is a bother I get tremors from it and indian doctor said eat a Banana daily . Seems to help my potassium is 4.1 so I love the Banana but I have been always fit I was on the treadmill day before I went into Hospital with a creatnine of 8 .
But doctor's are extra cautious here they stick to the taper schedule as they dont want rejection episodes

@ninalw, Glad to hear that your nephrologist is looking into this. It sounds like you are getting good care. I understand, now why you are concerned about the tacrolimus dosages. I have my hopes up that you will have some answers on your next visit.
It sounds like you are doing very well after the transplant. I am amazed at you playing golf already! As for me, I had a lot of reconditioning to do because I was dependent on a wheelchair and walker prior to my transplant. I was able to go to my son's wedding at 4 months post transplant, and to go on some hiking trails at 9 months.

Is tacrolimus your only immunosuppressive medication?

A creatinine of 1.0 is excellent! Mine goes up and down between 1.4 and 1.7. My latest BUN is 31. But my doctor is fine with that. My problem is I don’t always drink enough water. They want 8-10 cups daily. My creatinine was never under 2.0 with my first transplant in 1994. And it lasted almost 25 years. So you never know. Everyone reacts differently to the transplant and the drugs.