NIH-All of Us Study & Rare Diseases Clinical Research Network

I figure that anything we can participate in that might help our own inquiries about our health while simultaneously helping advance future understanding and healthcare for others is a win/win.

John - I was in the market for a new Fitbit because mine was getting old and skipping a few beats. Santa was watching I guess.... today I got an invitation from All of Us to get a Fibit free from them, if they could use the data for research. Talk about another win/win!

Woo hoo!

Hi, I went to the web site, where do you find the All of US Study? Thanks!

I agree with you about participating in programs like this forum Mayo is making available. I am receiving chemotherapy and immunotherapy for bile duct cancer. If our shared experiences are helpful to each other so be it. I recently entered my name on their email list but have not heard back. Thanks for your post.

I agree and wish to participate in research projects offered by Mayo Clinics at their various locations, especially one at Rochester dealing with Cholangiocarcinoma which I have been diagnosed with. Through this Mayo discussion forum, I have been able to share my experiences with others who have Bile Duct cancer and the various treatments for it.

Anyone participating in the All of US Research program? I haven't been very active but just received an email that told me about a new study collecting health data from a Fitbit. If you join the study, they will give you a free Fitbit Charge or Versa. The program is for 1 year. I have an Apple watch but decided to try the Fitbit Versa for a year since it's free. Sign up was pretty easy and my new Fitbit is on it's way - https://go.joinallofus.org/

I have been part of All of Us for about 6 months now, and got their free Fit Bit to wear as well. I’d been wearing Fitbit watches for 5 years, and mine was needing replacement so the timing was perfect. You just have to give them permission to have access to the data, just like medical records, all very easy. I figure any research that might be able to help others (if not me) is well worth it.

Same here Debbie. I like the All of Us Research project and also want to help. I am a little apprehensive switching to the Fitbit. Early on when they first came out I bought one for my wife and it didn't last long and always had a charging problem. I ended up getting her an Apple watch which she likes much better. There are a few apps on my iWatch that I will probably miss but the battery in the Fitbit lasts longer so that will be a big plus.

I seem to have to charge about every 5 days. I’ve switched from Fitbit to Garmin once, and they all seemed to last about a year early on. Fitbit replaced a couple for free early on when they didn’t seem to last, but I have been glad all data stays in history. I have had much better luck with each one, and this latest has an EKG function free. I know earlier models (I tend to buy least expensive) say they’re not waterproof, and I know it’s easy to forget to take off in showers and the pool sometimes. I never remove when washing dishes. But I think they’re getting better at actually being more water protective. You’d think by now Fitbit would be encouraging swimming, so maybe these lower end models are better now? Garmin only lasted 5 months for me. With this Fitbit, I do find sometimes synching will take extremely long or return an error. That seems to happen after an IPhone update, or maybe a Fitbit update. I now just go ahead and uninstall the Fitbit app on my phone, then reinstall it, and it starts synching things quickly again (and no setup required to reinstall, and no data lost) I have been tempted by the Apple Watch but won’t consider while using this Fitbit for All of Us.