Rare Diseases Clinical Research Network (RDCRN)

Posted by MGMolly @Erinmfs, Apr 15 7:55am

@Erinmfs – I'm participating in the All of Us medical research which is NIH funded research (I think) – https://www.joinallofus.org/

REPLY

I'm guessing that's how I became hooked up to this research consortium, it's through the NIH. I'n reading all of their information on their website, it's quite extensive. I participated in the surveys last year during the quarantine, the results of that survey are very interesting

REPLY

@johnbishop as an AllofUs Research Study participant, I responded to this survey during the pandemic, here are the results:
https://www.rarediseasesnetwork.org/news/2021-02-10-COVID19-survey-preliminary-results

REPLY
@Erinmfs

@johnbishop as an AllofUs Research Study participant, I responded to this survey during the pandemic, here are the results:
https://www.rarediseasesnetwork.org/news/2021-02-10-COVID19-survey-preliminary-results

Jump to this post

I've taken quite a few of the surveys but was most interested in the DNA part where they take a blood sample and exam you at a health facility. Unfortunately the only ones they offer are further away that I care to drive so I just take part in the other stuff when I can. I was surprised that Mayo Clinic does not participate which is where I go for my primary health care.

REPLY

I went to Bethesda and did the DNA part originally, several years ago. I haven’t answered too many surveys. I have a blood sample for the Covid antibody study. If you ever get a chance to goto Bethesda, go! It’s amazing

REPLY
Please sign in or register to post a reply.
  Request Appointment