WOW!!

@irenea8 The bacteria cultured out showing only 2 drugs would be effective. So I had a PICC and Meropenem. My infectious disease doctor selected that.
I won’t use Toby because it’s ototoxic. I have so little left, so I don’t want to lose my hearing.

@htolan
Apparently there are studies going on that show bacteria resistance outside of the body and inside the body can make a difference. In other words even if the sputum from the lab shows resistance, they have found the antibiotic may still work for the person. So that gives some hope in your case. But Meropenem is a good choice. Hope it works to knock things back for you. Toby can also be toxic to your kidneys even though it is inhaled.

I'm happy for you! What was your treatment regimen? Maybe I missed it.

Mokie

@clynnford, got my sputum results back: no pseudomonas a., no NTM. I had not gotten a sputum analysis for a year, just caught something from one of my grandkids, was feeling sick, so I went and got tested. Just a virus (no flu, no covid, just another nasty bug). I was convinced the pseudo was acting up fiercely, nope. Wow! I was incredibly pleasantly surprised. My Infectious disease doctor was speechless at first, then he said "well it shows that it was the right move not to pursue antibiotics for you". He said the only bacteria they found are bacteria commonly found in the mouth. Just 7% saline and Advair. I understand that it takes more than one great sputum results to confirm the bugs are tamed, but for now I am enjoying this step in the right direction. Nebbing 7% saline does a lot of good.
Best wishes of great health to all of us!

❤️

@mokie only nebbing 7% saline for 3 years now.

@irenea8 I was treated really early. At the time I was getting monthly cultures done at NJH and Dr Haas put me on a mega dose of 1500 mg/day Cipro for 10 days as soon as it showed up.

@clynnford, you nebbed 3 years, that's very good. However, I have been nebbing 7% for less than a year (will be 1 year mid-April), before that 14 months on 3%. That seems really short to me. It probably means that if I were to give more samples in the months to come, they might show Pseudos and NTMs. So, I am in no rush of doing so. My pulmo had told me in October my lungs sounded really good and that I could stop nebbing 7%. I told him no, absolutely not and he smiled. Anyway, I feel empowered that I had that sample free of beasties, but I am not naive and I am fully aware it will always be an ongoing battle.To be completely honest, it's probably not only the 7%, most likely the Airocide (NASA technology) air filters and the 2mm water filters play a big part in reducing my exposure. And my commitment to exercise most likely plays a part. A lot of work goes into it. I also do red light therapy, maybe it helps, maybe not. But I will continue with all of the above. My goal is to one day have stem cell therapy on my lungs to reverse bronchiectasis (I firmly believe it will be available and effective at some point), to quality for that I will probably need to have zero pseudo and zero NTM, so thatmotivates me to keep on fighting the good fight.
Best wishes of great health to all of us!

@gigiv Do you have any info on the possible availability of stem cell treatment? I am in the process of being diagnosed with fibrotic ILD, and also have Bronchiectasis and Asthma. Only heard of the stem cell treatment recently.

@narelled23, no I do not. But when I see my pulmo next month, I am going to ask him very pointedly. Hekeeps up with research. I know scientists are working on it, I am just not sure how reliable it is right now. I can be patient. I want something that works well and that has been established as safe.
Best wishes of great health to all of us!