1. < Osteoporosis & Bone Health
Profile picture for davi1

Would like to know your experience with Evenity

Posted by davi1 @davi1, Apr 12 5:44pm

Hi I have severe osteoporosis. I am thinking of going on Evenity and need to build up my bones before a much need knee replacement. I would appreciate it if anyone out there who has been on Evenity can tell me what your experience has been. The black box warning scares me but I don't feel like I have a choice as there are only 2 anabolic bone building drugs at this time and that's what my dr. said I need before the knee replacement. They both recommended Evenity. I don't have any heart issues other than having high cholesterol. My dr. wants me to consider going on a statin.

Thank you

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for davi1
davi1 | @davi1 | Apr 15 7:08pm
In reply to @broken13 "@davi1 Your situation seems to warrant the big guns. I think you need to listen to..." + (show)
Profile picture for broken13 @broken13

@davi1 Your situation seems to warrant the big guns. I think you need to listen to your experts on this one. I've now been on Forteo and recently just doing full round of Teriparatide. Both times I have gained weight but also bone density. Both times it has been 8-10 pounds and I lost it after the first time with Forteo and I expect I will loose it again this time when I am done. Wishing you all the very best in your treatment and recovery.

Jump to this post

@broken13 Thank you. I appreciate your thoughts. Wishing you the best also.

REPLY
Profile picture for pt109
pt109 | @pt109 | Apr 16 4:30am
In reply to @sstopalian "@cndstegle No drug is 100% safe. need to weigh the pros and cons and one's health..." + (show)
Profile picture for sstopalian @sstopalian

@cndstegle No drug is 100% safe. need to weigh the pros and cons and one's health issues. No cardiac issues, kidney issues, etc. My infusion center has a nurse practitioner who is excellent and available. So far the only issue I had is a raised rash and itchiness helped with cold compresses, lightheadedness ( might be from coffee?), an spasms in my back which were helped with a warm shower and stretching. I learned from my NP that evenity absorbs best when injected in the abdomen.

Jump to this post

Evenity caused me to start losing my memory, etc. i couldn't even remember the name of one of my best friends o was dining with and who was seated across the table. My osteoporosis specialist confirmed that Evenity the cause and took me off it. After a few weeks that and other side effects went away

REPLY
Profile picture for davi1
davi1 | @davi1 | Apr 16 8:40am

I'm so sorry to hear that. Glad your dr. took you off of it. Did you have any other conditions besides osteoporosis before starting the drug? What other side effects did you have?

REPLY
View MoreView Less
Please sign in or register to post a reply.