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Would like to know your experience with Evenity
Osteoporosis & Bone Health | Last Active: May 4 7:24am | Replies (32)Comment receiving replies
@samantha88 Thank you for responding and including the study link. I didn't get through it all. I am also concerned about the possibility of a bad income. This ordeal has been so stressful. How are you doing with the Teriparatide? Any side effects. That's the 2 year daily injection drug right? My Dexa showed -4.7 in spine and -3.6 R Femur, -2.7 L I've seen 3 endos due to change of insurance. They all said I should take Evenity which is 2 injections every month for one year. I have one more test to take to see if I will be ok on that drug. The only risk factor I have is high cholesterol. My dr. just put me on a very low dose statin which we will monitor. Other than that I don't have any comorbidities that I am aware of. And both my knees are in the Advanced stage (bone-onbone). Just recently got Genvisc 3 shot series for my knees. Not sure if it's helping yet.
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@davi1
I am someone who ends up with side effects from all medications, so you can’t go by me - that being said, the first 5 months of Teriparatide were very hard to tolerate. The Worst side effect was 24/7 nausea. After 5 months, side effects lessened a bit. I am still having side effects but a more tolerable level. No matter what (assuming it doesn’t raise my calcium level too high) I’m going to power through whatever side effects are coming.
My spine is -4 and hip 3.6.
Most of the cartilage is gone in my knee but I also have osteonecrosis in that knee, further complicating things.
I was hoping to wait for another year before knee replacement thinking my outcome might be better after I made some new bone, but I am not sure I can make it that long. I’m taking things one day at a time.
I think I would be less concerned if my bone density was better than -3.0. It’s really a crapshoot I think with bone density as bad as ours. I just don’t want to get myself into a situation where it’s nonstop problems after the knee replacement and have a lot of regrets. There’s no turning back at that point. All the surgeries I’ve had over the years always ended up with issues, such as long healing times. I just don’t react the way most people do to medications and surgery, which gives me further caution in my case.