I have been on Fosamax for about 10 years with no problems. Checked every 2 years or so with some up, some down. Retired and moved and new endocrinologist says I should take a one year holiday which I plan to do shortly if my Parkinson’s doctor thinks I can stabilize enough to be fairly sure I won’t fall.. Stay tuned.
Yo también opte por el alendronato, veremos le respuesta, pensé en muchas otras,pero lo importante es ponerlo ganas y con fiesta o sin ella parar lo osteoporosis
I have been on Fosamax for about 10 years with no problems. Checked every 2 years or so with some up, some down. Retired and moved and new endocrinologist says I should take a one year holiday which I plan to do shortly if my Parkinson’s doctor thinks I can stabilize enough to be fairly sure I won’t fall.. Stay tuned.
@ggopher i’m also on Fosamax but haven’t seen any good results. I’m wondering why you’ve been on it for 10 years. Did your doctor prescribe it for 10 years? Have you seen any positive results via DEXA scan?
@ggopher i’m also on Fosamax but haven’t seen any good results. I’m wondering why you’ve been on it for 10 years. Did your doctor prescribe it for 10 years? Have you seen any positive results via DEXA scan?
I retired and moved thus changing doctors. I generally vet new drugs but Fosamax was grandfathered in. I had been ignoring stories about the problems but I figured I was on a roll and looked into the older drugs and OTC and pulled up a lot of issues one of which was the Fosamax. Found a couple new things to work on. PS the doctors are generally right but I like knowing why.
Steve
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On Aug 25, 2021, at 11:13 AM, Mayo Clinic Connect wrote:
i was on fosamax for 9 years and there wasn't that much improvement so rhematologist took me off it and started me give myself forteo shots every day for 2 years. Had a slight improvement. Didn't bother after my dr retired. Now another 10 years have passed and I am so bad another dr wants me to go on prolia shots. I am worried about it because it stays in system for 6 months and I have mast cell disease. Can't find anything on if it increases the histamine in the body. I am concerned because I get a couple hundred hives and have passed out from this disease when it gets activated. A skin biopsy found it was drug related from blood pressure pills. I had to switch at least 3 times before I found one that was ok. I found out that mast cells also cause osteoporosis.
@ggopher i’m also on Fosamax but haven’t seen any good results. I’m wondering why you’ve been on it for 10 years. Did your doctor prescribe it for 10 years? Have you seen any positive results via DEXA scan?
Missed part of your question. Dexa number goes up and down a few points each scan but the long term seems to be a slow decline. Don’t know what the consequences of taking 1800 calcium for 6+ years was.
Steve
My Outlook is not working, please resume using Hotmail
On Aug 25, 2021, at 11:13 AM, Mayo Clinic Connect wrote:
i was on fosamax for 9 years and there wasn't that much improvement so rhematologist took me off it and started me give myself forteo shots every day for 2 years. Had a slight improvement. Didn't bother after my dr retired. Now another 10 years have passed and I am so bad another dr wants me to go on prolia shots. I am worried about it because it stays in system for 6 months and I have mast cell disease. Can't find anything on if it increases the histamine in the body. I am concerned because I get a couple hundred hives and have passed out from this disease when it gets activated. A skin biopsy found it was drug related from blood pressure pills. I had to switch at least 3 times before I found one that was ok. I found out that mast cells also cause osteoporosis.
@renay110 i found some information for you. Yes, there are some drugs that you should avoid, but Prolia isn’t listed as one of them. Also, mast cell involvement with osteoporosis is very rare. These are some important questions that you want to ask your doctor! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5526622/
With the number of new medicines for osteoporosis, is there a reason your doctor wants you on prolia? Is there a way you can get a skin test by an allergist before taking prolia?
@renay110 i found some information for you. Yes, there are some drugs that you should avoid, but Prolia isn’t listed as one of them. Also, mast cell involvement with osteoporosis is very rare. These are some important questions that you want to ask your doctor! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5526622/
With the number of new medicines for osteoporosis, is there a reason your doctor wants you on prolia? Is there a way you can get a skin test by an allergist before taking prolia?
@renay110 I found another article for you. It seems to say that osteoporosis is more likely to happen in systemic mast disease than cutaneous mast disease. More likely to happen but still exceedingly rare.
Missed part of your question. Dexa number goes up and down a few points each scan but the long term seems to be a slow decline. Don’t know what the consequences of taking 1800 calcium for 6+ years was.
Steve
My Outlook is not working, please resume using Hotmail
On Aug 25, 2021, at 11:13 AM, Mayo Clinic Connect wrote:
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I just started alendronate and my Rheumatologist told me there's a "Drug Holiday" after five years which is consistent with what I've been reading.
Yo también opte por el alendronato, veremos le respuesta, pensé en muchas otras,pero lo importante es ponerlo ganas y con fiesta o sin ella parar lo osteoporosis
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@ggopher i’m also on Fosamax but haven’t seen any good results. I’m wondering why you’ve been on it for 10 years. Did your doctor prescribe it for 10 years? Have you seen any positive results via DEXA scan?
I retired and moved thus changing doctors. I generally vet new drugs but Fosamax was grandfathered in. I had been ignoring stories about the problems but I figured I was on a roll and looked into the older drugs and OTC and pulled up a lot of issues one of which was the Fosamax. Found a couple new things to work on. PS the doctors are generally right but I like knowing why.
Steve
My Outlook is not working, please resume using Hotmail
On Aug 25, 2021, at 11:13 AM, Mayo Clinic Connect wrote:
i was on fosamax for 9 years and there wasn't that much improvement so rhematologist took me off it and started me give myself forteo shots every day for 2 years. Had a slight improvement. Didn't bother after my dr retired. Now another 10 years have passed and I am so bad another dr wants me to go on prolia shots. I am worried about it because it stays in system for 6 months and I have mast cell disease. Can't find anything on if it increases the histamine in the body. I am concerned because I get a couple hundred hives and have passed out from this disease when it gets activated. A skin biopsy found it was drug related from blood pressure pills. I had to switch at least 3 times before I found one that was ok. I found out that mast cells also cause osteoporosis.
Missed part of your question. Dexa number goes up and down a few points each scan but the long term seems to be a slow decline. Don’t know what the consequences of taking 1800 calcium for 6+ years was.
Steve
My Outlook is not working, please resume using Hotmail
On Aug 25, 2021, at 11:13 AM, Mayo Clinic Connect wrote:
@renay110 i found some information for you. Yes, there are some drugs that you should avoid, but Prolia isn’t listed as one of them. Also, mast cell involvement with osteoporosis is very rare. These are some important questions that you want to ask your doctor!
https://emedicine.medscape.com/article/1057932-treatmenthttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC5526622/
With the number of new medicines for osteoporosis, is there a reason your doctor wants you on prolia? Is there a way you can get a skin test by an allergist before taking prolia?
@renay110 I found another article for you. It seems to say that osteoporosis is more likely to happen in systemic mast disease than cutaneous mast disease. More likely to happen but still exceedingly rare.
https://link.springer.com/article/10.1007/s00198-019-04918-7
I hope the article is able to set your mind at ease. What type of MCD do you have?
@ggopher Did you go into your profile to change your email address?
I did not change my password. I don’t even know what it is any more