Will anyone explain his/her use of rest when they crash?

Posted by mclelland1958 @mclelland1958, 6 days ago

Will anyone explain their use of rest when they crash?
This weekend I had a very emotional situation. My baseline symptoms are much worst. My fatigue has me housebound and my IBS has me cramping and nauseous. I would really appreciate feedback concerning what you all do to recover from a crash.

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@rinadbq

this November was 4 years of Long Covid and I still have crashes. It took the first 2 years of going to a LC clinic with PT, OT, Speech to figure out how to keep me as good as I can be.
I crash when I do too much or sleep too little-in short, my baseline energy level is way overdrawn. I think of it like a checkbook; I start the day with 4-6 hours of energy, that's assuming I had a solid nights sleep. Everything I do is a withdrawal from my 'energy checkbook': shower-hair-makeup, choosing what to wear, making the bed, cooking, picking up the house, grocery shop, errands. But mental energy costs me as well; working with my finances, legal information, figuring out who gets what for Christmas, how long to cook the turkey, figuring out the 'to-do' list, Dr appointment, socializing, emotional distress (angry, lonely, fear, stress) AND how many days in a row of extending myself.
At first I kept a detailed diary every day when I woke up, what I did and how many total hours for each: activity and rest time, as well as sleep-did I need a nap during the day, when I went to bed, did I wake during the night, when I woke and did I feel rested when I woke. How many hours of mental and physical activity did I have?
The important thing I learned is the first day I felt better after a crash was dangerous- I thought I was recovered and could resume my life full speed ahead and then crash again. It took 5 days to feel better after Christmas but I then had a 'light' day at home using ~2hours of energy, then a 2nd day to do ~4 hours of energy at home, then I could face life again but being really careful out in the world for a few more days.
I really 'pay' for a big event like Thanksgiving at my house, doing Christmas for my 90 year old mother at her house, hosting out of town guests, an evening concert, travel. I budget myself accordingly by being very quiet the day before and scheduling nothing for several days after.
Nothing like my prior Covid life!! My 'energy bank account' is now restored to my baseline level. I have given myself 1-2 days a week of no scheduled activity-brain or body work this month, and no more than 2-3 days in a row.
My best management of the crashes is based on planning, built in rest days, delegate tasks, prioritization and staying within my 'budgeted time' limits.

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To rinadbq —

Thank you for the detailed description of your comprehensive approach to Pacing! I’m comparing it to how I use my one-page-per-day log of Activity periods and Rest periods. I’m going to switch to using a large-dimension appointment book that shows one complete week at a time. Because, as you described, one must schedule Active Days and subsequent Rest Days in advance. I’ll also use a calendar showing a whole month at a time, and when making appointments, limit them to one a week, with days to rest after each one.

You’ve inspired me with your Pacing model !

— friedrich

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@friedrich

To rinadbq —

Thank you for the detailed description of your comprehensive approach to Pacing! I’m comparing it to how I use my one-page-per-day log of Activity periods and Rest periods. I’m going to switch to using a large-dimension appointment book that shows one complete week at a time. Because, as you described, one must schedule Active Days and subsequent Rest Days in advance. I’ll also use a calendar showing a whole month at a time, and when making appointments, limit them to one a week, with days to rest after each one.

You’ve inspired me with your Pacing model !

— friedrich

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Great for you!!!! You are on track 😉
When my Dr asks me 'have your symptoms improved?" my answer is no, but my management has. While profoundly different than running half marathons and working 12 hour shifts as an ER nurse in my before covid life, managing symptoms that persist after 4 years is the best I can do to have my best life moving forward. When I get depressed about this new life I remind myself that the world is full of people who live with dramatic health changes and I can too.
Thanks for your thoughts
Rina

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Mayo Clinic teaches moderation which is going to be different for each of us. You need to find that 'line' to not step over from mental and/or physical exertion. I also have proven to myself over and over that a good nights rest as measured by Apple Watch is key. My Apple Watch tells me bad nights sleep, good nights sleep, great nights sleep, and more. I can attribute my sleep performance to behaviors of eating amount, eating timing, alcohol consumption, other suspicions and adjust accordingly. For a while I was paying attention to Apple Health features called "Active Energy" and "Physical Effort" as a means of finding my 'line'. One thing for sure is I know when I haven't behaved. I experience PEM and Brain Fog for several days until I recover. So my main countermeasures are knowing my 'line' and a daily power nap not to exceed 30 minutes. Apple Watch and Apple Health aren't the only game in town for technology that can help, it just happens to be what I use.

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Wow! When I've blown a night's sleep, staying up late to write to meet a deadline, I've been able to press through it the following day, or at least get a good day until an afternoon lull and two more cups of coffee, if not the first day after a late-night writing blitz, certainly by the second day - or was.

Now, post-COVID, when I don't bounce back by day two, or certainly by day three, I have fears that I've lost it - permanently. And that's tough to take.

Then, out of nowhere, I have another good day - and ruin it by staying up later than I should to take advantage of it. Then a string of dysfunctional days follow.

Thanks for the new perspective! Now there's hope - I can keep getting to bed when I should, regardless what's left undone, let the tomorrows take care of themselves, and look forward to stringing those good days together.

But a good day, now, post-COVID, means a day that I can approach with less brain fog and some limited semblance of functionality - not what a good day was, pre-COVID.

The popular statement of resignation in today's world, it is what it is, doesn't help.

Comparing my situation to others might help at first (there are others who have it worse, others who are better off) and provides immediate perspective. But doesn't solve anything.

The inner task at hand is to be grateful for life as it was and how I lived it, not lament its passing but treasure those experiences, and to press on for whatever lies ahead. I am not done yet.

I have plenty left to give, plenty left to live for, plenty left to do - although the game is different, now, and the goals have to change.

It's like I'm saying: "OK God, what's next?" It's in your hands - and I know the plans You have for me are with a future and a hope.

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@arichards3

Mayo Clinic teaches moderation which is going to be different for each of us. You need to find that 'line' to not step over from mental and/or physical exertion. I also have proven to myself over and over that a good nights rest as measured by Apple Watch is key. My Apple Watch tells me bad nights sleep, good nights sleep, great nights sleep, and more. I can attribute my sleep performance to behaviors of eating amount, eating timing, alcohol consumption, other suspicions and adjust accordingly. For a while I was paying attention to Apple Health features called "Active Energy" and "Physical Effort" as a means of finding my 'line'. One thing for sure is I know when I haven't behaved. I experience PEM and Brain Fog for several days until I recover. So my main countermeasures are knowing my 'line' and a daily power nap not to exceed 30 minutes. Apple Watch and Apple Health aren't the only game in town for technology that can help, it just happens to be what I use.

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To beachbum —

Thanks for your detailed description of the different sleep performance factors you monitor. And, how you use your Apple Watch to gauge your sleep quality and to measure your Active Energy and Physical Effort.

I do nap on most days, in response to actually feeling sleepy. However, I’ll try to include a nap every day, as a preventive measure.

— friedrich

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@friedrich

To beachbum —

Thanks for your detailed description of the different sleep performance factors you monitor. And, how you use your Apple Watch to gauge your sleep quality and to measure your Active Energy and Physical Effort.

I do nap on most days, in response to actually feeling sleepy. However, I’ll try to include a nap every day, as a preventive measure.

— friedrich

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@friedrich on the napping I would recommend you read a bit (Web MD, Mayo, Cleveland) of some of the many good articles on naps and sleep. I find that intentionally keeping it less than 30 minutes and not going into deep sleep (as measured by Apple Watch) is best for me. Beyond that I wake up with major groggy head that kind of wrecks it all.

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@rinadbq

Great for you!!!! You are on track 😉
When my Dr asks me 'have your symptoms improved?" my answer is no, but my management has. While profoundly different than running half marathons and working 12 hour shifts as an ER nurse in my before covid life, managing symptoms that persist after 4 years is the best I can do to have my best life moving forward. When I get depressed about this new life I remind myself that the world is full of people who live with dramatic health changes and I can too.
Thanks for your thoughts
Rina

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Rina, I am a newbie to accepting the fact that I indeed have Long Covid. I am in the process of accepting my limitations for the last two years .(..because there is apparently nothing I can do about it). I do understand so many tragedies and illnesses change people's lives and with a good attitude and life management skills, life can still be abundant. But my question for you.....do you think we will ever get better? Will I ever go mountain climbing and snow skiing again. I am 54 years old and very into hiking, vacationing with grandchildren, etc. Are you encouraged at all that some people with long covid will improve. This is new to me and I am going to explore more doctors advice....search for anything that doctors approve or suggest. But am I just using my wasting my energy for now and need to "pace" myself. I am struggling with acceptance obviously. Thank you, Jen

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