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Wildly fluctuating O2 levels

Posted by Phoenix @kudzu, Jul 16, 2022

I’m experiencing wildly fluctuating o2 levels on finger oximeter. This morning already I’ve been everywhere from 71 to 99, especially while standing still.
I went to the ER June 3 with this and they couldn’t find anything. My pft of June 3 indicated restrictive lung disease. May or may not be due to Amiodarone.
I’m going to Mayo July 27 to see a pulmonologist.
Very scary and depressing.
I know if I go back to the ER they probably won’t find anything, and I read in my medical records that my pcp has diagnosed hypochondriasis(not the case, this is really happening).
Anyone else have this?

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nmac | @nmac | 4 hours ago
In reply to @gigipigi "Thank you for sharing. I’m making a list now of possibilities." + (show)
@gigipigi

Thank you for sharing. I’m making a list now of possibilities.

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It took a muscle biopsy to find the mitochondrial dysfunction and myopathy. Hopefully you don't have to go that route!

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vic83 | @vic83 | 3 hours ago
In reply to @gigipigi "I have the O2 ring. Tried wearing it the other night without supplemental oxygen hoping to..." + (show)
@gigipigi

I have the O2 ring. Tried wearing it the other night without supplemental oxygen hoping to see different results and was woken up every hour with readings below 88. I still wear it,but with supplemental oxygen to show the drs the difference.

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Mine woke me up too! I changed settings to not be woken up. Mine uploads to my computer and I have the reports to show what happens

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