Why do medical pros insist on leaving voicemails for HOH patients?

Posted by ltecato @ltecato, Aug 16, 2020

Leaving a voice message for a patient who is deaf or hard of hearing makes as much sense as using freeway billboards to convey information for people who are blind.

Why is it so hard for trained medical workers to grasp the concept that text messages or emails would work a great deal better for patients who are hard of hearing?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@ltecato

Thanks for the reply. You recommend doctors’ offices train staff to call out patients’ names differently. That would probably help, but they could easily do more than that by providing some kind of visual cues. It could be simple as writing a name or number on a dry-erase board or chalkboard. Or they could have video screens where they flash text messages. Simple, cheap technology, not labor-intensive.

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@ltecato, I agree with you. Doctor's need to do a better job accommodating people with hearing loss. Most seem to have large TV's in their offices but the captions are rarely on. The sound from the TV make it even more difficult to hear when your name is called. I'd prefer that the TV's were off. It blows my mind that these professionals think they are providing their patients a value added service. Scrolling displays are relatively cheap and simple to control. It would be nice to be able to see our name when its time. As was mentioned previously, we can suggest what could help, but it's up to them to move forward.
Tony in Michigan

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@joyces

The majority of medical providers take HIPA seriously. One of the things HIPA doesn't allow is communicating via e-mail. My primary is a friend and we use e-mail at times, but has told me to never, ever talk about anything medical via e-mail, not even to check on an appt. time that I only "think" I heard as a certain time and day. HIPA is also responsible for it being impossible to find out what's happening with someone close to you if they haven't filled out a form listing you as a person that can know. It's really frustrating when your spouse is being treated by a doc you don't know, a specialist that his regular specialist referred him to...and no one asked him to complete the form that would allow you to be told what's happening. Grrrr! It's all about confidentiality, although, for the life of me, I can't understand what's confidential about the date and time of your next appt.

When I visited a big metro-area hearing clinic that specializes in doing CIs, I quickly learned that no one there takes the trouble to face you while speaking and the nurse that comes out to, as Tony says, blurt out a name, stands in the doorway facing a room full of people who can't hear and mumbles a name. Sheesh! Wouldn't you think that a hearing clinic would be smarter than that?

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Leaving voicemail is not protecting the privacy of a deaf/HOH patient. When I get a voicemail, at least half the time I have to get another person to listen to it and repeat or rephrase it so I can understand.

So that means the message is not just between me and the medical provider — I have to bring a third party into the process. Luckily for me I have a wife who can fill that role, but some of us are widowed or just living alone.

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@barbb

@terryflys4 Aggravating experiences! But...would you consider doing a little advocacy and seeing about conferring with management of the places you were from the point of view of educating them about what is appropriate and exploring whether there is a possibility of better training for whoever?

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I have done one-person picketing in six cities in California, outside DMV offices, a courthouse. I also use my Twitter account sometimes. I posted this yesterday (warning, Tweet includes the F word).

https://twitter.com/ltecato/status/1295457050009284608?s=20
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@tonyinmi

@ltecato, I agree with you. Doctor's need to do a better job accommodating people with hearing loss. Most seem to have large TV's in their offices but the captions are rarely on. The sound from the TV make it even more difficult to hear when your name is called. I'd prefer that the TV's were off. It blows my mind that these professionals think they are providing their patients a value added service. Scrolling displays are relatively cheap and simple to control. It would be nice to be able to see our name when its time. As was mentioned previously, we can suggest what could help, but it's up to them to move forward.
Tony in Michigan

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Absolutely!

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@ltecato

Thanks for the reply. You recommend doctors’ offices train staff to call out patients’ names differently. That would probably help, but they could easily do more than that by providing some kind of visual cues. It could be simple as writing a name or number on a dry-erase board or chalkboard. Or they could have video screens where they flash text messages. Simple, cheap technology, not labor-intensive.

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Some clinics use hand held vibrating pagers to call patients. A transmitter is given to each patient when they register for their appointment. The devices vibrate, and have a flashing light mechanism. That eliminates the need to call a name, and also provides privacy because a person's name is not made public. Since COVID19, I have not had any appointments there, but wonder if they had to change that system due to possibly transmitting the virus via the device.

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@imallears

@ltecato
Hello and wow did you start a conversation about one of my favorite topics! So glad we got this going and I have read al the great posts here and the word for the day is Advocate.

I live in Florida and I'd like to tell you what I do with my medical providers. I get both email and text notifications about my appointments with my eye doctor who belongs to a large Clinic. I get text notifications with my ENT doctor My Audi personally emails me.

What I have done for years especially in a large Medical setting is bring an 8 by 10 sign with me that says patient hard of hearing ..may not hear name called...please bring this with you when you call my name. It's printed on red paper and my name is at the bottom. I ask them to put it on the front of the chart , if there is one, or just bring the notification with them. 90% of the time they do . The fact that it is on red paper is a visual clue that they're calling my name.

I've never had a provider tell me that I could not use my live transcribe app. I have been relying on this app since we are all wearing masks.

I used innocaption on my cell phone so any messages are visible of course. The same with my landline .

I've been told many times how impressed people are when I somewhat aggressively advocate and speak up. As my hearing loss got worse over the years the technology got better so I'm lucky in that respect.

I have come across my share of insensitive people especially in the medical profession. I'll never forget the first time I dressed down the son of a famous doctor who owns a string of eye clinics here in Florida. We were talking about cataract surgery. I initially told him about my hearing loss and to speak slowly. He was so fast I did not get half of what he said. I told him to sit right down and start all over again as I told him I could not understand him unless he spoke slowly. He did and look probably abashed. I was so angry.

Advocating gets easier each time you do it. This is such an invisible disability and I think I have educated a lot of people during the pandemic as I have to whip out my phone with the prelude ...hold on a minute I can't hear you through the mask. Young people especially love it.

Keep pushing people! And shame on the hearing aid advertisers who market their hearing aids as so small and invisible no one will see them.

FL Mary

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I have a friend in Wisconsin who is a nurse at the University of Wisconsin Hospital. She is hard of hearing. She recently completed her doctorate degree in 'nursing practice'. Peggy Troller has received accolades and awards for her work with hard of hearing patients in the hospital. She recently started a consulting/training business on the side. Goal: To educate medical professionals (and others) about hearing loss, etc. She was the presenter for our HLAA chapter program last week. Excellent program with a lot of personal insight. Quote: "The medical world is very ignorant about hearing loss." I look forward to following her, and hope she has more and more opportunities to do the inservice trainings that are so badly needed in the medical field. Her new website is: http://www.hearinglossrn.com

NOTE: I've done a inservice trainings at hospitals on this topic as a volunteer. Typically they are not required of staff, so those who attend do so by choice. In every instance, those who have attended have remarked on how much they did not know, how much they learned, and how all their colleagues should have been there. Reality: They just don't know what they don't know.

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Here is another resource that just came to me. Blog worth reading. https://livingwithhearingloss.com/2020/08/18/how-to-create-a-hearing-loss-hospital-kit/ HOW TO CREATE A HEARING LOSS HOSPITAL KIT

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@ltecato

Leaving voicemail is not protecting the privacy of a deaf/HOH patient. When I get a voicemail, at least half the time I have to get another person to listen to it and repeat or rephrase it so I can understand.

So that means the message is not just between me and the medical provider — I have to bring a third party into the process. Luckily for me I have a wife who can fill that role, but some of us are widowed or just living alone.

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@ltecato
Hi,

There is a privacy law under HIPPA that allows voice mails to communicate with patients. I have not read the entire detailed explanation. But I, for one, very much appreciate voice mail as it is visual. I know we all sign HIPPA forms every time we have a procedure and I have consented to release of information to family. My phone is in my possession and this is for confirming or cancelling appointments. There is nothing detailed about the person’s medical condition being said. I know some people are not okay with that but I am. But, I agree with the basic idea of voicemail for deaf/how people as being ludicrous at times.

FL Mary

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@julieo4

Love what you're doing down there dear friend! Wish you were still in Wisconsin! Fox Valley Chapter of HLAA is working to organize a similar program. Congrats on the success you've had in FL!!

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Thank you very much...I love reading all of your directives and reminders for the folks here. GOOD INFO for everyone to follow since there were many of us who helped charter the path that has been laid before us. However, we have much to do in this new climate and environment. We have HOPE and creativity in trying new things now. If you all have questions, private message me. Thank you and keep up the great work everyone.

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@nurseheadakes

Thank you very much...I love reading all of your directives and reminders for the folks here. GOOD INFO for everyone to follow since there were many of us who helped charter the path that has been laid before us. However, we have much to do in this new climate and environment. We have HOPE and creativity in trying new things now. If you all have questions, private message me. Thank you and keep up the great work everyone.

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@nurseheadakes is back! So good to see you on the forum again.
With irony of ironies in this particular topic about safety of sharing information by email, I have removed your email address from the message above. I recommend not sharing personal contact information in a public online forum. We don't want you to get unwanted spam as a result. Instead I recommend using the secure private message function to exchange contact information if you wish. However, I would like to point out that by sharing on the forum, your messages benefit many and we can all learn from each other.

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