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Who are the best pulmonologists for MAC/bronchiectasis in Texas?
I have been searching this forum for the best pulmonologists in Texas for MAC/bronchiectasis (I am in Austin) and I keep seeing Tyler, Tx and Dr. McShane's name. Is that the best place to go in Texas? Are all the docs there good or should I try to get in with Dr. McShane? My bronchoscopy results have not come back yet but since the doc saw pus in my lungs I am expecting a MAC diagnosis. I am also trying to get in at NJH since we visit Denver a lot. Any recommendations for a specific doc there? Thanks!
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Since this older thread popped up, I'll add this piece of info on CT's being read as "suggestive of MAC."
I asked my pulmonologist at Penn last month how many people have CT's that radiologists say looks like MAC (my CT's after bronch still had that that) and he said maybe 50%. He qualified that by saying he didn't have verified numbers. He also said he gets referrals to treat patients with MAC who have no confirmation they have it. Keep in mind this could be regional radiologists and MD's practice, though Mayo's said it, too.
I told him they need to at least add a less scary differential diagnosis.
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4 Reactions@blm1007blm1007 Hi Nancy I'm not sure if we discussed when you started to go to NJH to see Dr. L. As I mentioned in another post I went in Oct. 2023 for my initial week long visit with Dr. L as my lead doctor. After that visit I have been going to Tyler. I go from OKC to Tyler because of the distance difference verses going to NJH, Denver. However, due to various reasons I do believe it is a better choice to see the doctors at NJH.
Are you still going once a year and how many times have you gone?
How many days do you have to stay for your follow-up visits?
Do they do the PFT, C Scan and blood tests or other tests each time you go?
Barbara
@blm1007blm1007
Did you see Dr Metha and what did you think ??
@pennypatt Yes I did see Dr. Metha. I think she cares about what she is doing.
I recently am involved with a local pulmonologist that I was referred to here in OKC and hoping it to be a good decision. Two things he has done that no other pulmonologist has done...is to arrange for a Infectious Disease doctor and Speech Therapist to be part of the team to see me.
I am really please with seeing the experienced speech therapist. I see the Infectious Disease doctor next month.
Due to the lab in Tyler for testing sputom and the way they report the sputum results and what they can do with it, I may see Dr. Metha as a second opinion annually.
Barbara