1. < MAC & Bronchiectasis
Profile picture for ninjanana

Who are the best pulmonologists for MAC/bronchiectasis in Texas?

Posted by ninjanana @ninjanana, May 22, 2022

I have been searching this forum for the best pulmonologists in Texas for MAC/bronchiectasis (I am in Austin) and I keep seeing Tyler, Tx and Dr. McShane's name. Is that the best place to go in Texas? Are all the docs there good or should I try to get in with Dr. McShane? My bronchoscopy results have not come back yet but since the doc saw pus in my lungs I am expecting a MAC diagnosis. I am also trying to get in at NJH since we visit Denver a lot. Any recommendations for a specific doc there? Thanks!

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Profile picture for pacathy
pacathy | @pacathy | Nov 11 5:42am

Since this older thread popped up, I'll add this piece of info on CT's being read as "suggestive of MAC."
I asked my pulmonologist at Penn last month how many people have CT's that radiologists say looks like MAC (my CT's after bronch still had that that) and he said maybe 50%. He qualified that by saying he didn't have verified numbers. He also said he gets referrals to treat patients with MAC who have no confirmation they have it. Keep in mind this could be regional radiologists and MD's practice, though Mayo's said it, too.
I told him they need to at least add a less scary differential diagnosis.

REPLY
Profile picture for blm1007blm1007
blm1007blm1007 | @blm1007blm1007 | Nov 12 1:22pm
In reply to @blm1007blm1007 "Nancy Thank you for sharing the information and explanation. I was confused. With hearing all now..." + (show)
Profile picture for blm1007blm1007 @blm1007blm1007

Nancy
Thank you for sharing the information and explanation. I was confused. With hearing all now I have a better understanding between your case and mine. I have MAI you do not. Glad to hear your reports show improvement.
Hope your decision to stop the medication is the right one. I also hope my decision to still continue with "watchful waiting", per se, turns out to be the right one for me. So far all is good, I feel fine overall with just doing the full therapy routine 2x a day and the results I am getting with Air Way Clearance.
Wow, dementia on both sides. Hopefully it skips over you/your generation in the family.
Wish all doctors had the same type of approach with patients as Dr. L.
Barbara

Jump to this post

@blm1007blm1007 Hi Nancy I'm not sure if we discussed when you started to go to NJH to see Dr. L. As I mentioned in another post I went in Oct. 2023 for my initial week long visit with Dr. L as my lead doctor. After that visit I have been going to Tyler. I go from OKC to Tyler because of the distance difference verses going to NJH, Denver. However, due to various reasons I do believe it is a better choice to see the doctors at NJH.
Are you still going once a year and how many times have you gone?
How many days do you have to stay for your follow-up visits?
Do they do the PFT, C Scan and blood tests or other tests each time you go?
Barbara

REPLY
View MoreView Less
Please sign in or register to post a reply.